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headhunter

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Everything posted by headhunter

  1. headhunter
    Working but holding on for dear life.....morning dizziness, overheating, now burning feet
  2. headhunter
    interesting potsticker...any other meds u take?
  3. headhunter
    I get (when I look t an object) the edges are raised...and words on tv....its when I feel shaky or "on alert." Been that way for 20 years.
  4. headhunter
    its so hard to work--been doing it for years--don't know how
  5. headhunter
    Good to hear, glad there is hope to get sweating back!
  6. headhunter
    I had the colors in my hands years before symptoms even started. Recently, however the hands and feet overheat and burn. I have issues with NHL games. It passed for a while then came back. I cant look up. I gotta stay calm and balanced. Hard to explain. Good luck man, stay focused and positive..
  7. headhunter
    I take Losarton....I don't feel great but its the best drug so far. I also was on Clonidine years ago...believe .2. Made me feel very very weird and tired and super dry mouth... I now take the Losarton 50/12.5 and 60 mg Inderal 2x.
  8. headhunter
    Still baffles me how little we know about this....so many unrelated things that hit us all. I get the same spells..
  9. headhunter
    Solely temperature dependent right now. I can work, skate, row, etc---but has to be like 65 or under...even room temperature (72) can knock me down....no idea how to combat that.
  10. headhunter
    how high? ana is a general rheumatic thing--been tested for it many times..lupus falls under it
  11. headhunter
    Inderal has been gold for me....but extremely extremely heat sensitive...online says that beta makes that worse
  12. headhunter
    I get this...always seems to come back to anxiety, but it feels so legit..
  13. headhunter
    Kris, I been there... One thing to remember is that this condition is cyclical, so it can cycle right back to you being able to do this again. I had to give up many passions...just tonight was a softball game for National Night Out...;( Just think of this as a temporary thing--it will be back
  14. headhunter
    Oh just read about it...I could not walk into a room that temperature. Not even for a minute...
  15. headhunter
    I had a similar experience, but any more. I used to feel fine about 2 beers in. Even shakiness would go away. But I would wake up in middle of the night with a racing pulse. But 2 drinks wont kill you...enjoy
  16. headhunter
    How do you know if you have MCAS? I haven't been to a POTS doc in some years??
  17. headhunter
    Effexor was the devil for me--didn't last 2 days--tremors even...did u try Paxil? For me really relaxed my body and symptoms....would like to taper off the Xanax, but it beneifts me too much now
  18. headhunter
    .25 of Xanax (hate to be on it) every morning makes my mornings bearable....and I was on Paxil twice...it made my symptoms much better, but it made the symptoms worse while I was adjusting to it for about 4 weeks. But. the Paxil made me gain 20 lbs very fast. But my sleep got better and my weakness went away somehow.
  19. headhunter
    Welcome.. been gone years myself. Yes I too am taking a high dose of Beta (Inderal)....normalized my pulse. Even when standing. But like stated above it doesn't take the other feelings away. Hang in there, it will not cure, but will get better. And we all know the issues of others dealing with an invisible disease.
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