StayAtHomeMom

Rapid gastric emptying is a good word for that. My boss (has a degree is the medical field) said it takes 24 hours for food to go through you. No way can you eat something and cause diarrhea 15 minutes later. My argument for that is that the food hits my stomach and my stomach sends an emergency signal to empty my bowels. This has gotten better for me since I started the Keto diet. Not sure why the carbs would make that big of a difference because I don't have celiac. But it has been my experience it has been amazing. Unless I eat a lot of the sugar free chocolates.

My heart has always skipped a beat. About once every 3 years or so. Makes you take a deep breath. Sometimes cough. When my POTS presented I started skipping a beat at least once a month. I thought the skipping was a heart palpitation. And it is but I also found out anytime you feel your heart beat fast or slow it is a heart palpitation. And that happens daily without my meds. My metoperlol really takes care of that for me. My major symptom is an issue breathing (nothing wrong with my lungs) so the propranolol that is the usually go to medication made that worse so they started this cardiac specific beta blocker and it has done wonders for my HR and heart rhythm. My midodrine help the rest of my symptoms. You are supposed to be upright up to 45 minutes unless you faint. Injection of medication is individual. I had it twice and neither used anything injected. I am currently considering applying. Right now I am working on getting everything I can diagnosised to help my case. I have an appt this month to get my ADD and OCD diagnosised to help them see the whole picture of what I deal with. I do currently work part time but if my boss wasn't so flexible I can't see me being able to work. I can text the morning of and not come in. No other job will offer that for me.

Welcome to your 30s. I had a similar thing happen. It is like I hit 30 and my body fell apart. Be patient it will get better. Try not to compare yourself to before you got sick. Take it one day at a time. And there are multiple types of medicines that can help. Personally I take metoprolol and midodrine to help me. There are other medication combos I have seen people use on here. Also try to listen to your body as much as possible. There is a lot of good advice on here as well

Have you tried being allergy tested? There are multiple types of allergy tests and that may be a better route than the GI doctor.

I am sure that is not the best situation to be in.

Have you considered taking a vacation? Somewhere you don't have to do much unless you want. Just a few days to rejuvenate yourself? I never thought it could be so nice but I did a small vacation with my mom some years back. 4 days of no kids or hubby. No responsibility and I could do what I wanted at my pace. I missed my family those four days (first time I had spent more than 24 hours away from them). But when I got back I felt back to my old self. I felt like every little thing they did didn't bother me as much. I missed them and their irritating habits

See if she would be willing to read a journal to get things started so that you don't have to exhaust yourself trying to tell her everything going on. Also 1/2 tablet of dramimine (the OTC motion sickness med) could help with those dizzies.

I would try a low dose beta blocker again. And there is also midodrine to help raise your BP. These are the meds I take and it controls my BP in all positions, and keeps my HR from shooting up as often. Occasionally I get breakthrough tachycardia but just walking and driving to the doctor's office I can do. I drive 3 hours one way to see my specialist by myself. I think if you could get enough assistance to be more independent your stress levels would come down and you might feel better. Whether it be a person or medication. Then you won't have to rely on your hubby or kids and won't be so upset when something doesn't go your way. Out of curiosity have you had therapy for yourself since you were diagnosised?

Also my sister in law sees a specialist out of state because her state does not have a specialist for her MS. It took some red tape to go through but Medicaid does cover it for her.

I am curious did you have an epidural when you had your child?

Try an internist or cardiologist that specializes in heart rhythms. EP cardiologist? I can't remember what they are actually called or what EP stood for.

I am sorry you feel used. Honestly I have seen people do what you do and not be disabled and still can't handle it. Personally I would tell them all to go take a leap. I know they are family and that is a big thing to me but if you can't do it then you can't do it. You have to stay within your limits so you can function. As a cheat for shopping, Wal-Mart and a few other grocery stores deliver or you can order online and then just pick it up. They even load it into your car. These episodes sound panicky. I get something similar. It looks like a panic attack but my mind is clear. Mine is noise related. Sirens from police and fire trucks make my body freak out. Do you take any meds?

I am on Medicaid and I had to wait 6 months for my specialist but I found good doctors that were willing to learn and was diagnosised before I seen the specialist.

I have never gotten it. I would ask whoever is giving you the shot if it is a live virus. If it is I would see if you can get one without it if you are worried about your immune system response. My sister in law used to get them every year but then she would get the flu. If she didn't get the shot she didn't get the flu. It happened for over 10 years. So now she just doesn't get the shot.

It sounds like you may need to find a new doctor.

Propranolol is the first medication used for POTS. Small doses is also used for anxiety and tachycardia. And sustained jump in HR is what they are looking for. That being said moving usually brings it down slightly. Everyone on this forum has been where you are (regardless if you actually have POTS). Unknown symptoms and no obvious cause is pretty normal here. I am sorry you are having such a hard time. If you are concerned about any symptom I would go to a doctor you trust. I would also do a poor man's tilt table for at least a couple days and show the data to your doctor as well.

I had a full allergy test, scratch and injections, and the only thing that came up was 2 different types of fall molds. I don't think it is soy. Gluten could be a possibility but I don't think it is that either. I tried a low carb tortilla and if I remember right it was gluten free and it messed me up for a day. So I just avoid all the flour now. I want to try almond flour but it is too expensive and I have 2 teenage boys in my house

All of my tests come back normal. So I treat mine on my own at this point. Since I started my keto diet (to help lose unwanted weight) I have found my GI issues have mostly resolved. It is a very nice unexpected thing to happen.

I was hoping maybe it was a type of heat in the winter causing issues but I guess that doesn't work.

Do you have a gas heater?

Can you try different types of caffeine for your fatigue. Like soda (it is half of what coffee is)? Just curious. I know fatigue is awful but your blood pressure could so many worse things.

My question would be did they run your tests while you were on the beta blocker. That would definitely skew any tests. I would definitely go back or see another. My specialist was dismissive at first but as I got to know him and him me he is much nicer now. He re ran all of my testing so he knew it was done right and then confirmed my diagnosis. He even agreed to see my 15 yo son to test him because it can be genetic. I almost didn't go back after my first visit (it is 3 hours away one way) but he has made it worth my while to see him.

Are you doing anything that could be upping your BP, like smoking or caffeine? Even some medications. My hubby's blood pressure came way down with the lisinopril and no caffeine. And it is staying pretty steady.

In theory if you take the meds like you are supposed to it will help you get on your feet to help you feel better. Have you ever been put on something just to bring down your BP. That seems really high.

Yea I have that problem. I rebelled for a while because I hate taking medication but I have gotten to the point of I don't have a choice. If I don't take it I feel bad and I am tired of feeling bad.