• Content count

  • Joined

  • Last visited

Community Reputation

0 Neutral

About blizzard2014

  • Rank
    Advanced Member

Recent Profile Visitors

The recent visitors block is disabled and is not being shown to other users.

  1. blizzard2014

    POTS and low blood sugar.

    It could be both the diabetes and the dysautonomia. The body is soo darn complex. One little thing goes out of balance and it throws the whole system into chaos.
  2. blizzard2014

    POTS and low blood sugar.

    Maybe so. This just happens to me from time to time. I have been off insulin for three days now and eating whatever I want from cereal, to donuts, to hamburgers and my blood sugar is on the low side. This happened last year for about three weeks where my body was normalized; well I still had and have to take Metformin, but do not need post meal insulin. Then all of a sudden the diabetes will be back and I will need lots of mealtime insulin again. I hate this because it just changes like the BP and other issues that come and go. I brought donuts to work with me last night and caught the hypo trying to happen and corrected it before I got symptoms. I also figured out how to crank up the air con and that helped my POTS symptoms. I still had a racing HR between 125 and 150, but with the cool air blowing on me, I did not feel dizzy or have to sit back down. It all worked out as I paced myself a bit slower too than I did on the first day. Thanks for the advice!
  3. blizzard2014

    POTS and low blood sugar.

    I was wondering if any of you guys get low blood sugar for no reason, or reactive hypoglycemia? I used to get this a lot. I am a type 2 diabetic, so this could also be the culprit. I worked for 3 hours on Sunday after consuming nothing more than 1 stick of beef jerky. I drove home and was preparing to eat my dinner (now keep in mind I had just injected my fast acting insulin) and it takes at least 40 minutes to start working. I do not think that was the issue. I began to see white and black everywhere. It was like the lights in my head were about to go out. I began to shake, drop things, twitch uncontrollably, and I almost passed out. I checked my pulse and it was 145 with an oxygen level of 92. I then had the idea to check my blood sugar and it was 60. Usually I do not get these kind of symptoms until my blood sugar is at least in the low 40's. It was so horrible. I had to scarf down my dinner and an entire bag of small donuts. Then I got deathly ill and had to lay down for 10 hours. I don't know if it was a reactive hypo, or maybe it was BP. I was too wasted to check my BP. I was weak and out of it dropping things and not in good shape. I used to get these kind of attacks a lot before my diabetes diagnosis. I would eat a meal and 4 hours later like clockworks, I would get a hypo into the low 40's. I would have to eat a bunch of cookies to feel better again. I began having these issues in 2009 when I almost passed out while on a delivery to Laredo. I was wondering if there can also be dysregulation of the blood sugar with autonomic dysfunction, just like it does to my BP when I'm standing. I'm getting scared that this new job is going to put me in into the hospital. If this would have happened at work, I would have been in deep stuff, because I had no sugar on hand. I worked hard for 3 straight hours and was sweating. As soon as I completed my last job I was very out of it and I had to sit down. It was really scary seeing white flashes and black all over my field of vision. It was like maybe there was no oxygen getting to my brain. I am wondering if an oxygen level of 92 could cause this with a 150 BPM HR? Has anyone experienced anything like this? I will see how my work day goes on Thursday and assess things from there.
  4. blizzard2014

    No POTS? Clean EMG. Now what?

    She did note that you have problems with several different body systems. There are so, so many things that can go wrong with the body. It's mind blowing when you do the research. Have you ever looked into SLE Lupus, or even Sjorgen's. I spelled the second disease wrong, but it is known to cause muscle issues, fatigue, sleep issues, dry eyes, gastroperisis, and a lot of other issues. I actually have symptoms of dysautonomia, but I think mines are from diabetes being out of control and not just born with a defective system. Even if you don't have dysautonomia, there are other things like chronic fatigue syndrome that can also cause these. Fibro. Believe it or not sleep apnea can really mess you up. I also have that and it can cause high BP and high HR and low blood oxygen. But the way the doctor is speaking to you is just wrong. Her tone is all wrong. She should be more compassionate towards you seeking an answer for your ill health. Dizzy, fibro causes a lot of alpha wave intrusions during sleep that disrupt the sleep cycle and cause body pain and brain fog. Sleep apnea can also be so bad that one feels like they're dying literally because it is so damaging to the body. If sleep disorders are ruled out, then you need to keep on looking for autoimmune causes. When there are multiple symptoms, there is always something causing it. I hope you find some answers. We believe, embrace. and support you. The most important thing is that you know what's going on. You will find answers.
  5. Have you ever been tested for blood clotting disorders? Hughes Syndrome sometimes goes along with dysautonomia. I also have that and Factor 2 Mutation. APS usually causes clots when your body has an infection too. I hope you feel better soon.
  6. blizzard2014

    New here. Just needed to vent.

    Some doctors are just dense. Normal people do not go to the doctor making up crazy symptoms. I never seen a doc for 12 years until I had my blood clots. Now I have a gang of issues going on and sometimes they try and downplay them even though the tests show the issues. They are telling me an enlarged right heart is common after blood clots and not to worry lol. I don't even have a dysautonomia diagnosis yet. But that doesn't matter to me. I know what's happening and I discovered it on my own. Sometimes you have to just use your doc for scripts. But every once in a while, you find a good doc who will listen to you and figure out what's happening. I hope you feel better soon. Being in a walker has to be rough. But if it helps your condition, then that is all that matters. I'm not in a walker, but I have to be careful as I have a bad leg from DVT's.
  7. blizzard2014

    Low pulse pressure with pics.

    I just caught my HR at 51 when I stood up and it bounced back to 80 after I sat down. I was trying to take a pic but it went up to 56, then to 80 after sitting. Maybe my heart is going to stop or go all crazy.
  8. blizzard2014

    Low pulse pressure with pics.

    Here is a pic of my HR whacking out. It was up to 118, then to 134 for a minute. It's in the 80's sitting and now going to 111/134 standing. My BP monitor showed another BP reading of 114/91 with 111 HR. Both the pulse ox and the BP monitor caught the spike in HR. My oxygen levels are bouncing back and forth between 94 and 98.
  9. I'm sorry if I'm bombarding this forum with soo many posts. I really can't get my head around how my BP is acting today. Yesterday at before this time, my BP was going really high again 8 hours after taking my BP meds. I did nothing different today. I got up at almost the same time, walked around, took the same meds, and had the same amount of coffee I usually drink. But my BP is swinging way low with very narrow pulse pressures. I feel dizzy, headache, sensitivity to light, chest pains on left side of chest, and pins and needles in my upper and lower extremities along with shortness of breath. Here are some pictures of what's happening. The 111/91 I got that same reading two separate times on different times standing. All of these readings are within the time frame of 10 minutes. I have multiple readings on my BP monitor with the erratic heartbeat symbol, and at least 6 times, my machine threw error codes because it could not read my BP. This will be my last major post for a while. The 111/91 is from standing. The 96/76 id from sitting. Both the 120/84 and the 107/77 are from sitting. Shouldn't a pulse pressure of 20 put me flat on my face? What do you guys think about what's happening here?
  10. blizzard2014

    New here. Just needed to vent.

    Maybe that is a good thing since all of this hype about chronic pain is causing so many doctors to shy away from prescribing Benzo's. I personally don't want anything to do with dependence on Benzo's, but I would take tham occasionally if they helped some. There are some patients on my FB group who were recently displaced from their good doc and new doc's are taking away all of their Xanax to the point of some of them having seizures from withdrawing too abruptly. It's not a class of med you want to mess around with.
  11. blizzard2014

    Home Alone?

    Hey. You will get better with the right meds. I used to go from 117/76 BP when sitting, all the way to 170/120 within 1 minute of standing, and it would stay that way until I sat back down. My heart rate would also go up 30-40 points. Sometimes as high as 150 BPM. You can see my other post "pictures of my blood pressure!" These are the numbers I have when I first wake up, or 8 hours after I have taken my BP meds. 115/70 sitting, then 133/100 when standing. When you have to worry is when the big BP number goes above 170 and the little one goes above 110. That is when you need to go to the ER, or sit back down if that alleviates your BP. There are other meds besides Clonidine that will help you lower standing BP. I usually do not feel any symptoms when standing until my BP reaches 140/110, but I think I'm like a frog in boiling water. I have been dealing with this for so long, I am just numb/immune to some of the dizziness and passing out, as even going from normal BP to 170/120 did not make me pass out, but it made me feel like I was having shortness of breath, heart attack, and I felt like death. Maybe some other members will chime in on what BP meds help them lower their standing pressure. I can maintain normal standing BP also, if I take .2 mgs of Clonidine every 8 hours. I just don't really want to take more than .2 mgs a day as this drug can have issues when withdrawing.
  12. blizzard2014

    New here. Just needed to vent.

    I take the muscle relaxers when the cramps in my leg get bad from the chronic blood clots. I was having cramps the other night that were causing my foot to spasm and bend down in certain positions. It is awful and pain meds do not help with the cramping. I also have to take a lot of potassium or else it gets really bad.
  13. blizzard2014

    New here. Just needed to vent.

    I have read somewhere that after Clonidine is used to lower high BP when standing, they usually switch patients over to Xanax, or benzo's for long term management. Have any of you ever heard of Benzo's evening out standing BP?
  14. blizzard2014

    New here. Just needed to vent.

    This week it is taking me 2 hours to fall asleep after laying in bed. Last week I was out within minutes and did not wake up for at least 7-8 hours straight in same position. I had to pound down a double dose of muscle relaxers to get to sleep last night. But it still took almost an hour to fall asleep. Maybe the sleep is not regulating properly? I have been tested for TSH and it is always 3.8. It never changes from test to test.
  15. blizzard2014

    New here. Just needed to vent.

    I have had terrible night sweats and dreams that I am seizing up and shaking in my sleep. Like hands clenching so hard that I even have fingernail marks in the palms of my hands when I wake up. Could this be blood pressure? This week, I have been waking up and tossing and turning every 30 minutes on bed. I'm wired but tired. Right now I feel again like I have not slept in a week and I am too wired to take a nap. Last week I was too weak to even sit up in a chair for 7 days. I was laying down so much. I was almost non-functional in my ADL's. I just have fast heart rate pounding feeling this week, no sweats even though I feel hot, and constant urination all night long. Last week I was so cold despite hot weather, tired, and backed up with my bowel. That is what finally lead me to come on this forum to try and seek some sort of answers. I drank a gang of double shot expresso's last week and went right back to sleep like it was nothing.