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Everything posted by MomWithPots

  1. Excuse the title..couldn't think of appropriate wording I know sex is usually a private topic and I hope it's ok to post about it here, but I'm curious if anyone else has any issues. During intimacy, I experience symptoms such as numbness (legs and hands) and nausea. Afterwards I have episodes of shaking and I have a hard time getting my body temp back up..I don't see my husband much due to work and travel and with these symptoms it makes me want to avoid any relations at all. My husband is very understanding, But it still takes a toll on our relationship of course. He has even accused me of
  2. I haven't yet, but I have a doc appointment this week and am requesting one. Praying for some relief. I can deal with the other symptoms, but take my sleep away and things get ugly lol It was a hot bath, I know it's bad! It is just always so tempting because I have such a hard time keeping my body temp up..I'm one of the very few that love the heat and have been known to take my portable heater everywhere..The cold / winter on the other hand causes major flare ups for me. Our bodies are just so weird!
  3. I have has this before! It usually occurs on my thigh and is hard to explain. Just one small area would get very warm for no reason..my mom also had MS...another wierd symptom! My body never fails to surprise me anymore! Let me know if you find any answers
  4. My symptoms were getting a lot better the last few years but this year they took a turn for the worst and are now worse than ever! In addition to the fast hr, brain fog & leg cramps, I have also developed very scary episodes when sleeping where I quit breathing and wake up in a panic attack. I'm also getting these very quick and intense dizzy spells that come out of no where..I literally just had one in the bathtub and thought "oh no, they're gonna find me naked!" Maybe i'll find that funny later.. So I'm not getting any sleep and I'm feeling worse..this is leading to depression..my husban
  5. Thanks for the reply! Funny you mention that, I tell my husband "oh no you dont" many times..sounds horrible I know, but when you feel bad sometimes you just can't help it! I have that same fear as well. Thankfully im not known to pass out *knock on wood!* but its still scary. I actually considered getting one of those medlife (think thats the name) buttons to wear in case something does happen since my kids are so young. That sleeping schedule sounds crazy! Does your symptoms get worse with exhaustion? I notice if I stay up to late ill have a major flare. Im also scared of sleep apnea..every
  6. Things were looking up for me this past year; I still had a fast heart-rate but that is normal to me..all of my other symptoms seemed to lessen if not vanish all together...until last month. It all started with what I call my "attacks." Now I have a few small palpatations daily but during my attacks my heart beats out of my chest and can get up to 200, it sort of feels like a fish is jumping around in my chest and I can't breathe and go into fight or flight mode. I had one of these attacks one morning (oddly while bending down to pick something up, it just set it off?) and with it came back al
  7. First of all, congrats!!! A baby is such a blessing! I have went through 3 successfull pregnancies with pots. The first few weeks my hr. was a tad higher than normal (my normal is 130) and I had a few episodes of intense palpatations...surprisingly, as my pregnancy continued, my symptoms almost vanished! It was after the delivery (csection) that I had issues. My hr was all out if whack and my bloodcount was very low. They kept me an extra week for observation. After my body somewhat settled, I went back to my everyday symptoms. Just make sure to discuss your condition and meds with the doc! B
  8. You can really never say fir sure..I work full time and usually have symptoms that I deal with daily such as a fast heart rate, leg pain, dizziness, etc. I do everything I can to prevent it though! I eat very small meals and listen to my body, if it seems like a bad day I don't push myself. Tmi alert, but I am a woman so I always have a big flare up once a month...just have to deal and be prepared
  9. The fastest I've seen mine was 190 in the Er..it get up to 130-150 daily. I was told to bear down like your having a bowel movement (tmi sorry) and that's suppose to help. I just lay down with a good book or take a relaxing bath to calm myself down
  10. I get this often and its very scary. I will lay down and attempt to fall asleep...as soon as I feel myself drift off it feels like my heart stops (or skips a beat) and this sends and adrenaline rush throughout my entire body and causes me to loose my breath. When I sit up I still can't breath and it takes a second to get back to normal. I also went numb last night but I think I had a panic attack when I couldn't catch my breath. Its SO frustrating! It happens several times a night and it takes me until about 3 am before I finally pass out. I just want to sleep! I work full-time and its affecti
  11. I got married very young, at the age of 15. I developed pots at the age of 14 but my Symptoms did not start flarring really bad until 16. Everyone in my family, including my husband Doubted me. My husband Was never mean about it but he would get really frustrated after working all day and taking me to the ER all night multiple times a month ( before I was diagnosed) He let it slip one time that he thought it was all in my head...It took a very hard toll on our marriage. It was not until I was diagnosed that he finally started believing me. We have been together 7 years now and still work thru
  12. Thanks guys! I am going to discuss this with my doc of course and make some major changes to my diet... I already cut out caffeine years ago. Im really considering this gluten free diet. Wish you all good health!
  13. Im so sorry! I know how scary it can be when it isint beating "right" especially when no-one around you really understands. Just hang in there! Feel free to message me if u need someone to chat with...feel better!
  14. I get this too...wierd how it differs..im in college and when I have to speak in front of others I swear my hr hits 200! Other times when im scared it will shoot up and then slow down dramatically...when this happens I can also hear it beating in my ears. Just wait for it to regulate again.
  15. I have been dealing with nausea (a new symptom) and other gastric issues (delayed emptying, bloating) for the past few months and it has gotten so much worse lately. Last night after eating a few pretzels and drinking water, I feel extremely nauseated! It was so powerful that it made my chest feel very heavy and cause palpitations and shortness of breath. It felt like I had trapped air or something. I could not throw up no matter what I tried, ironically! I ended up taking a 3 hr bath and forcing myself to fall asleep. When sleeping I could feel the pressure and my hr was very erratic. I event
  16. Congrats on your first baby! I am so happy that your doing good with your pregnancy! Ive had 3 c-sections. I had to have one with my first as my son was having complications, he is ok though. After your first, most doctors prefer that method with your other children. I did not have a problem during my surgery, except my hr going up, but I was awake and nervous so its expected...it was after that I had issues! My hr was all out of wack (palpatations) and it took a few scary days to get it back to "my" normal. I think this was due to blood loss during surgery as I almost had to have a blood tran
  17. Hmm...when I get really upset or nervous I get this! Maybe that is what your experiencing; I also have a lot of anxiety around other people and like to be alone best.. Kinda off topic, but I also get really dizzy and shaky if I use the computer too long...we just have very weird bodies!
  18. Im sooo sorry! Im also 22 and know how hard it is. Tmi I know, but me and my hubby only have relations once a month bc I have the exact same symptoms u described. The nausea is the worst part for me... talk to ur doc and please try to hang in there! Feel free to email me at kjdenson @ mc.edu sonetimes just having somebody to relate to makes a world of difference! Hang in there, hugs!
  19. My legs are aching so bad tonight. Ive had a few leg cramps in the past, but this is just pain all over both legs, which is new to me. Anyone else have this? What helps? I did have a busy day and pushed myself even though I felt bad...I also did alot of driving today and I drive a manual. Think pushing that clutch in isint helping..just another symptom to add Thanks in advance for any suggestions!
  20. Yes! If I stay up too late, I get really bad shortness of breath and fast hr. It almost feels like pressure when I do lay down. Larned this lesson when I stayed up till midnight completing a paper.
  21. Sorry to hear that. I had the same problem and I didnt have a diagnosis at that age, so we actually got in trouble with the state and had court. I eventually went into homeschooling and graduated at 17. Im now on my third yr of college. I know she doesnt want that, but she doesnt have many choices The program I went through is called penfoster. The total cost is around $1200 and u can pay $50 installments. There is no deadline on your work and you turn assignments in at your pace, which is perfect for pots. You can finish as fast as you want. Just one option.
  22. Im really big into numerology, im just wierd like that. Im an 11 and learned that 11s have a really sensitive nervous system...hmm? So I was just wondering what your guys sign was, even if your not into that kinda thing, its all in fun. To get your number, add Each number in your birthday. for example, mine is 7-20-1991 so I will add as follows 7+2+1+9+9+1= 29 Then 2+ 9 = 11
  23. Plenty of rest and plenty of fluids! Being dehydrated is not a fun state to be in when you have pots; I got dehydrated last year with the flu and passed out a lot! Keep water and Gatorade handy. Also heard chicken noodle soup actually helps colds, etc. Hope you get to feeling better
  24. Thanks for the replies guys! Even though this thread is about depression, each one of you have made me laugh out loud! Im starting to like pity parties, lets face it, its the only real time I could ever order up a drink...ironic huh? FaintingGoat - I know what you mean! I wouldnt wish any illness on anyone, but I have to thought that it would be easier to have an illness that actually had a cure! Its just hard to comprehend that I may have to deal with this forever...one day at a time though! Katybug - I love how positive you are! I think setting expectations to high is part of my problem, im
  25. Oh my goodness, this brought many things to my attention and I thought I was the only one.. anyone else sensitive to noise? I tried going to a pool hall/ bar with my husband. They had a live band and the base literally felt like it was in my chest! Gave me palpatations. I also can't do elevator or even walk across a bed or trampoline; throws me completely off balance. In addition I get the shocking feelings but they are in my head and only last a few seconds. kind of like being hit with a hammar without the pain lol. thanks for the list! Very helpful
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