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About Gemma

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  1. Thank you for your input but that is not what I am asking. And what you are referring to are work credits, whatever you earned already is not taken away and working extra amount of time adds up to your working credits. It even says that in your link. I have researched enough about work trial period while on disability. I wanted to see if there are people here who actually went thru it and how it effected their benefits. Thank you!!!
  2. I did read information on their website. Its not very clear and there is nothing about have to work for another 5 years before you can requalify. That doesn't make any sense! I was wondering if anyone tried returning to work or was able to work part time to see if they can manage it before loosing the benefits. Thank you.
  3. Hi everyone. Can someone provide information what happens to disability benefits if return to work part time? Are people on disability allowed to try to work without loosing benefits? Will they take away the benefits and if so, is it difficult to reinstate the benefits if unable to work? Anyone been in this situation? Thank you for the info. Not sure if this post belongs in this part of the forum, please move if it diesn't. Thank you!
  4. Wow. Thank you all for replying. I greatly appreciate it. Its very scary not to know what to expect, especially that lots of obgyns do not know much about POTS. My high risk also told me that I do not need to be seen by him, unless I will need some meds. So i am basicly seen by regular obgyn. I had 3 different clinics that i visited and it was so difficult to choose. Maybe someone can recommend what would be the best choice for my delivery. One doctor that i saw is very nice and she is the only one in the practice, which means she will be delivering the baby. But she is not familiar with POTS
  5. Hi, thanks for a reply. I am actually under the care of high risk doctor. But I only saw him 2 times and he said if needed he will see me again if any complications. I asked him if he can recommend wether vaginal or c-section is better but he said it doesnt matter for POTS. He knows of this condition well, but no real recommendations from him as to labor and delivery. This is the reason why I posted here in hopes to get some answers. I did hear before that we can not get certain anesthesia and the epidural needs to be administered special way, but I don't have exact details. If anyone is fam
  6. Hi marigold. You said after delivery you felt much better. Do you mean you feel like your POTS is getting better? I've heard that some women stop being sick after delivery, as if some hormonal changes fix the body. So, I am hoping this could be the case for some of us.
  7. Is this post appearing on the forum at all? I wonder why nobody answers? I am pretty sure lots of women here went thru labor and delivery and I would really appreciate some recommendations. Thank you all.
  8. Ohh, no one for POTS. Just my primary as needed and obgyn for pregnancy. None of the POTS/OI docs were helpful so i just stopped looking for one. 2 years of trying to find a good doctor was enough!
  9. I spoke to him on the phone. He was very helpful. I was planning on going to Florida to see friends but it got canceled so I never saw him. But on the phone we had a very long conversation about my symptoms and what meds would help and what meds I already took. We spoke for like 30 minutes and I am not even his patient. Very nice and helpful guy. I wish I lived there and could become his patient.
  10. Hi Sarah. What do you mean who I am working with? Did you mean the doctor?
  11. Hi everyone! I am 5 month pregnant and trying to get more information about pregnancy and labor with dysautonomia. If anyone who went thru pregnancy can recommend any useful info. What kind of anesthesia are we able to get if needed C-section? How about epidural, are we allowed to get that? Is vaginal labor better for us or C-section? I was told we are not considered high risk, was anyone told differently? Do I need to let any important info to my doctor? What might go wrong? Also, how everyone was feeling during pregnancy? I am so so, fatigue better, but have occasional presyncope fl
  12. Thanks everyone for replies. I greatly appreciate it. My symptoms now fluctuate. Some days I feel very POTSY, like just taking shower makes me fatigue and lightheaded and my HR goes above 100, but some days I feel perfectly normal. Last Saturday I had my first panic attack . I haven't had one in over 7 months. I take no meds now. I do have a cardiologist but he is not very knowledgable in POTS but very understanding and supporting, so I am hoping if things get crazy he can advise some treatment. I also saw high risk preg doc, and he said to come back when I am about 10-12 weeks, unless some pr
  13. Hi everyone. I have a question about pregnancy. So, my POTS has been clearing up since April and I was almost symptom free, only experienced spontaneous symptoms that were very manageable. Last week I started feeling certain symptoms that I was not sure what to associate with: out of breath upon exertion, elevated HR when walk or stand and elevated resting one as well by like 20 points. I went to my cardio did ekg and all is fine. Then 5 days later I found out I am pregnant. We have been trying for some time but this happened unexpected. I was wondering are my POTS symptoms coming back or thes
  14. Hi everyone. I started zoloft 7 days ago. First 2 days spaced out, then felt really well and my POTS symptoms were less. However on the 7th day very severe lightheadness started, dizzeness, near fainting episodes, fear, anxiety, almost panic attacks. Is this a reaction to the med? Will it pass? Or can it get worse? I had similar symptoms while on xanax, but after I went off xanax my lightheadness started going away. For the past month, I didnt have lightheadness at all. Please help, i dont know if I should continue with the med. Thank you.
  15. Hi everyone. So today is the 7th day that I will be taking zoloft and I do not know if I should continue. So, to sum up first 2 days on zoloft I felt spaced out, it went away, then I was feeling great. My POTS symptoms were much better on zoloft, however I started feeling that weird rocky boat feeling like my brain is moving inside my head. This feeling was gone lately and now with zoloft it came back again. Due to relieve from POTS symptoms I decided to stick with it. However, today i started feeling presyncopy again which I havent felt in months and adrenal rushes which almost lead to panic
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