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Bigskyfam

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Everything posted by Bigskyfam

  1. Overall a good one. Even despite that 4 hr window. My inlaws finally saw my 170 spike/ 150/125 Bp and syncope symptoms... Didn't pass out thank God. While a bit embarrassing it was nice in a way for them to see a window into my life. Really don't want betablockers for Christmas hope everyone had the best day possible .
  2. I found the small details in planning an outing like thanksgiving are huge. I didn't cook this year. Brought a bag of stuff I thought I'd need. Feeling a bit rough, had a 170 spike upon standing before dinner. Not sure what that was all about... Had salty potatoes/ham/ Gatorade and spikes are only up to 130s for now. Is this the new norm?
  3. That's good to hear. I have to work to help support our Fam... Mine is in the back office on my feet 8 hrs a day. So I'm concerned. I've been off for a month. I'm at the point that I can go on short excursions... But need to sit. Did all lifestyle changes for past week... Holding off of meds as long as I can
  4. Mine too. Hot one minute cold the next. I use rice packs . One in fridge one in microwave. I've even had one side hot one side cold. That freaked my husband out
  5. I am so thankful to have found you guys. Appreciate the support, understanding and hope. Happy Thanksgiving! Now let's put some salt on our potatoes!
  6. Esoskis.....Do you have any symptoms? How high does your hr spike?
  7. I took it for one day. Discontinued after loss of vision, given rx for nadalol. Haven't started. Working on lifestyle changes.
  8. You guys have been such a blessing! I'm learning so much and I'm in the medical field, go figure. Started cardio/ picking up compression socks/ v8 on tap....
  9. Another one yay what helps you get through? Meds? Breaks? Water?
  10. Margiebee do you mind if I ask if you are on meds
  11. That's great margiebee! That is encouraging. I can only hope I'm in the same boat. I went to store with hubby today. Wiped out. But blessed that I tried and could.
  12. I'm newly diagnosed started cardio rehab this week too
  13. I agree rosey. I noticed in class my last few weeks of college before I was diagnosed that I needed a distraction. I took hard candies and popped em in my mouth to see how long I could make em last. Mind over matter. Not a fan of meds and newly diagnosed.doc is confused why I wouldn't want meds
  14. I was on no meds prior to my ttt. No other testing yet. Welcome to the forum, I'm a newbie too. Sorry I don't have much to add
  15. Thank you guys so much. My employer had been patient.No indications for work from my doc...she did say when you can get back to work you'll have to sit... Our last visit wasnt great... After my experience with betablocker, i told her i wanted to start with sodium/ fluids/exercise... No meds at moment. She said you won't see improvement if you don't follow the plan and left the room. Her nurse came in and give a rx for compression stockings... No strength or dx code. So I can't get them. I'm in Limbo. I think I'll have to be proactive and do something. Just wish someone could tell me what I should do... I don't know fmla/short term/long term... Who initiates it etc. my sick leave is gone... Now we are struggling. My hubby is working and helping with household and kids when I can't. I'm the only one in my area with pots.. So I feel alone. I don't know what to tell my employer. Mecca your situation with work sounds ideal. Hopeful
  16. Thanks for the post. Just don't know what to expect. Still all new to me
  17. My diagnosis came quick so I've been off work for just a few weeks. Hoping to go back. I was on my feet 8 hrs a day. Would anyone care to share their experiences? I've medically withdrawn from school already
  18. I don't know. I asked my doc about flu vacc and can see the pros and cons. I'm sorry you are going thru this. I'd call Doc on call. Best I can do. Hugs
  19. I may have to make them festive for the holidays.lol thanks for the heads up guys!!!
  20. Can you tell a difference in them with your heart rate/ overall feel?
  21. She said thigh high didn't know compression strength. I'm the valleys first pots patient. I think... Hope... Pray she'll phone her mayo friend before she orders. It's winter in Montana. Ready for leggings and sweaters
  22. On leave from work, had to medically withdraw from school.
  23. Getting my first pair. What strength, tips, styles. Waiting for my doc to fill out the order
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