Bigskyfam

Wow. And he had a sense of humor. Thx for posting

I bought one after I did a trial of beta blockers ,handy to have I don't use it as frequent now, like gjensen said starting to learn my own body. My BP went thru the roof when I started the BB and I discontinued. I had to go to er because I didn't have a monitor at that time. I have an automatic arm cuff.

Last unicorn... Boys will take every last drop of energy from you! My 6 year old is good at that My friend across the country has pots. She's always thinking what can I do to make money from home. I think even jobs at home are just as difficult.. Even though they save a drive. Thanks for sharing. Hoping better days

Jackie... Thank you! I read every word and felt in your shoes. Why is it that we are overachievers who put ourselves last? I'm pacing myself. Staying at 2 days a week. During my cycle I can't work at all. I'm 35 and have two girls 18,16. Scary to think my oldest may develop pots while in college a state away. I wish you well with disability. I can't imagine the process while not feeling well. My docs/ employers haven't even uttered the thought of it. Still a fairly new diagnosis for me. I crashed in October. But feel like you it had been building slowly for years. I Appreciate your thoughts

Bad

That's awesome! I was at work day 2 this week. It's amazing the little things I've found that help and hurt at work!!!! Fluorescent lighting, not cool. A stool at my computer station... Just right.

I followed your vandy trip. So beneficial to us and you too I hope

Thx lulu! I'm looking into tests at my hofpitsl even if it's process by elimination.

Powerade zero/ broth

Self diagnosed myself same thing. Dx pots in nov. I've had 2 episodes this winter. Second one currently.keeping feet warm and covered. Blisters haven't popped yet. I'll be watching this post for other folks experience.

Bump for the new members

Hormones. I agree that's my culprit

I can relate. I can now drop off and pick up kiddos. Missed a few big things, but managed to contribute. We are gardening now.. Just veggies, no fruits. Pumpkin patch I hope( can't do pumpkin patch/corn maze with Fam with ease) we have ducks we got for Easter. Eggs and love watching them grow, learn and be part of the bigger circle. Gjensen... How have your kids adapted overall?

How long can you tolerate the high heart rates and at what cost? This has been asked of me and it's reply is.... Noone knows. But I hang on to the simple fact that we don't know, but it might not be bad. I empathize with you. My employer at this point has made exceptions for me with days worked and that I can sit when needed. I think I need to sit more... Most of my shift. I can't in my job description. I hope my employer can start to help me troubleshoot. We can only go up from here. Pun intended

Quick reply by mobile... More indepth to come. I empathize with so much of your post. You are understood here and home

Yay Becia. Only up from here

Im in cardiac rehab. I like being monitored on the EKG while exercising. The idea of massage sounds nice and warranted in our everyday lives

Thanks!

I work in the medical field also... But back office on my feet. New territory for me and my employer. Glad to hear you are Fighting

Cleo... Do you mind me asking how your quality of life is? Do you have symptoms, better or worse with lifestyle changes

Thinking of meds for hormones. By being off meds and just doing lifestyle changes... I've found that I have the most flares and flurries as I call them are around time of my cycle.I have an iud currently which releases Progreterone.

Doing my lifestyle changes and going to cardiac rehab( thank you insurance co) what else could benefit me that may be covered under insurance? Anything different help you guys out there? Ex. Physical therapy, massage therapy, chiropractic care, personal trainer.....

Thanks pink and Allison! I think a desk job might be up my alley. Are either of you on meds? I have kids as well. Some are starting to drive but we don't have cars got them. I can't imagine going through this with little ones. My little guy is in first grade. I guess I will know when I know about work and school. I have a hard time following my gut nowadays. I've always been a go getter and organized and decision maker. I hope that'll return a bit in time

I had wisdom teeth removed/ dental work done before my pots diagnosis. Might be connected.

I'm looking into laser dentistry.. More expensive. Less shots.