Star382000

That and the older kids might not want to have their mommies and daddies with them but the mommies and daddies dont want to let them go off on their own and warmth is always wonderful, especially with chilly October, and it's a rest for the tired feet! I hope you have a great time, happy Halloween!

Thank you so much! I can't explain what you're saying that means to me..I'm nearing tears yet again I've been on the zoloft since before being diagnosed with POTS and my being waay too sensitive seems to be compartively more recent. I'm even more emotional when I miss taking it in the morning I see the same psychiatrist my mom does as well as an amazing LCPC who wholheartedly agreed that lowering the Zoloft wouldn't be good for my mental health. Would you know of another med that could help at such levels but not cause said side effects? And as for the hormones, mine are definatly there but thankfully the big change and them really kicking in are past and they seem at least kinda stable (for lack of better terminology ) And thank you! *uber warm fuzzies* I have most amazing and wonderful friends who I wouldn't be here now had it not been for them. I've shown some of them this site and they keep saying how wonderful it is that I've found it and how nice everyone is. They've said it's helping them to learn about what I'm going through too, and one of my closest friends said she'd join but she'd feel out of place since she doesn't have any form of dysautonomia I love my friends Thank you so much, words don't exist to show my thanks, thank you thank you thank you!!! :D

One of the doctors said it was a really big dosage but he didn't know all the internal etc. reasons for my being on it and all. And it doesn't help completely, but it helps lots I hardly watch tv anymore as well. But mostly it's thing like right in front of me that will set me off crying or something that someone says or something that I'm working on but won't work or I get stuck on a small detail or something with my homework. Have you found anything that helps you when really emotional times? And once again I have to say, thank you all so so so much, here I am near crying again it just means a whole lot to me, you're all really wonderful people, thank you

I don't know much but am learning more. I know that most of the tests the cardiologist did for me came up mostly normal, including a 24 hour halter moniter. They haven't done a TTT but I've heard them talk lots about it. Basically what I'm trying to get at, is with my limited knowledge, I think there is definatly possibilty for you to still have POTS. I would maybe see about trying to find another proffessional more experienced and knowledgable about POTS. I would mention my doc, but I go to Children's so I don't know what all the differences would be because of that I know I've totally lost and confused myself, I hope I've at least helped a little

I've been brought up in a family not against medical aid when it is there. I will list down what you said and ask my mom if we can search on them some more and see about getting some aside from meds and time, and some of my mom's vicadine (sp?) on one occasion, the only thing we've tried is Healing Touch but it didn't help so much, I think that was because I didn't go in thinking it would.. I've been really sensitive for a long time but especially these past months, and I dont know whether thats because just lots has been happening or not..like right now I'm near crying and asking some of my friends (gotta love instant messengers in the middle of the night) if I'm obsessing about something and just.. So often I feel *is reminded of a poem* that I'm just taking things waay out of proportion and behaving like I shouldnt, thanks to my brother in part..when you grow up with things constantly being told to you, whether you want to or not, you start to believe them as true.. I will look into those herbal meds and such, thank you a lot!

The headaches were one of the first signs that got really bad 9 months or so ago but I will have to keep that in mind. Origionally I had been on Adderall for my ADHD but one of the reasons I switched those meds was because it'd been known to cause headaches. The docs at the pain center in the city said that the stuttering and headaches could be partially caused by the amount of zoloft I'm on but someone would have to be ill-informed or really not-smart to lower that.. The smallest things upset me and I get all uptight and cry about. I was near crying earlier because of the thing with the bracelets, I got so excited about them. And thank you I can't wait to have one and those cards too and wear it at school, I know for one it will definatly make me feel better and not like Im just some lazy person doing horribly in school and that Im not trying.. Thank you all so much, you're helping a whole lot, I'm like near crying again..but kinda good tears..kinda not because of other things going on right now..but yeah thank you all so so much

I tried the link Merrill just posted and it worked for me this is so cool..*is still looking around and getting the hang of things around here, just registered--looks at clock--yesterday * I love it here so far, I do I do I do and Merrill, I can't see yours either, maybe its something with the site thats making it a broken link there?

There have been days when my Oreo is the only thing that keeps me hanging on. We rescued him and Ginger along with their 2 sisters and other brother almost 6 years ago now. They were under our back porch step. The vet said they must've been just 6 weeks or so old. Me, being the very huggy sensative person I am, cuddled Oreo and held him so much so now he has developed being such a cat on his own. I'll be sitting typing at the computer and he'll just jump up and climb into my lap or around my shoulders and neck. He'll be waiting for me when I get home from school, and on the days when I am able to walk the 6 blocks between here and my high school plopping down on my bed right next to a lump under the covers can be the most magical comforting thing especially after a hard walk and strenuous day at school. Animals truly are a gift from above, I know my Oreo is.

*We're sorry...the page you're looking for cannot be found. Please make sure the page name listed in the address bar is spelled correctly. Or, go to www.photoworks.com to look for the information you want. If you can't find what you're looking for, please try again later. This page may be temporarily unavailable.* I have a feeling that's all it is site changes can be very frustrating while taking place, but very rewarding once finished! hopefully it'll be up soon

*bubble* is being totally waay oversensitive and touchy and all that also a part? I mean I was like in tears when I read that the bracelets are metal because I cant wear metal, but went upstairs to my mom (my dad and brother totally zone everything out) and she said we can put felt or something on it so can get them once available, I love the idea! But yeah, being totally moody and so overly sensitive and it's really getting hard and unbearable because I try to not lash out at my friends and such (have already lost one of my best friends..) so I tend to lash out at myself and that's just a nasty circle..but yeah, would that be a part?

Hmm, I was recently put on Florinef. At present I am on 200 mg Zoloft 80 mg Strattera 300 mg Neurontin (3x a day) 5 mg Florinef 10 mg Propranolol Those last two dosages might be off a little, I'm typing off the top of my head *warm fuzzy that I can remember all that* And along with what you said, over-the-counter-meds don't help at all I tend to second-guess myself after acting, it'll be after I post this that I'll read over it a thousand times and keep wanting to change things I used to be a perfectionist, heck I have friends who called me Perfectionist but now, I'm able to appreciate the small things so much more. ADHD and depression run in my family, especially my immediate family. My mom has loads of health obstacles for herself but thankfully because of those she has connections and my doctors are wonderful, trust them with my life and have no doubts about that I've been told I am really smart and wise and all that and that when I say things online (I totally prefer to type than talk using my voice..it's so much easier..) that I sound so much older than I am and that I don't seem like I have trouble with words, but that's what I have the most trouble with Thank you so much for your help, it really, really means a lot to me

I get that type of feeling in my legs if I stand too long or do too much. Usually I just try to sit down some with my legs close to my chest that way the blood can get moving more, my doctor said to sit down like tying your shoe should help some. I get the feeling in my arms too but not so badly. For most things I usually just 'knuckle through' so I cant help much

The symptoms started to really develope and kick in this past May-June. I remember the last month of school I missed about 15 days because I was home, mostly sleeping totally oblivious to the world. After being to like 6 different doctors and specialists in other areas I was diagnosed with POTS so it was relatively not very long ago. The sleeping 20+ hours on end has greatly lessened but my body still needs lots of sleep and when I am awake I feel like I could fall asleep right there, no matter where I am. Standing up isn't anywhere near as bad as it was, so long as I take my meds. But now that I'm on more meds (diagnosed with ADHD when I was in elementary school and depression a couple years ago so I have meds for those) I get really bad chest pain in addition to awful headaches. The headaches for the most part aren't as bad as they were, but they can still get to be pretty bad. So far they've done 6? nerve blocks, first two in back then last time I was at the pain center they did 4, 2 in the back of my head and 2 in front. But they're not helping we've been told that they may take time to work, but it doesn't seem to me like they are working, and they hurt so much. I'm all for them so long as they help, but it's so frustrating and angry etc. when I get to feeling that they don't and that they wont because they hurt so much I go back next week and hopefully will have better news or something. I was looking at other posts and read a post of leah1321's in which she said and that's something the anasthesiologist at the pain center pointed out when we first met them. He said that at times I am very articulate and know what I am saying and can go on and on and on and he noticed himself without us even talking about it that at times I greatly stutter and can't find words and such. but that was before they even put me on the neurontin I think. I can't remember It's all just so frustrating, especially with how it's affecting every aspect of my life and school..so frustrating Thank you so much, I cant express how much it means to have hepl, and at least people trying to help, truly thank you

This is definatly a really wonderful idea that I know would help many people and our loved ones lots. And like Ghandi said *is referencing Jessica's signaure* "You must be the change you wish to see in the world" even if it's just change for the world of some people, it's wonderful. *hopes that made sense*

Hello to all who read this. I just registered here although my dad found the site some months or so ago. I'm trying to look around and get a hang of everything and helping but there's just so much it's overwhelming me. I have a feeling the fact that I not only have POTS (hence why I am here) but also ADHD is at least partial reason for my being totally upset over something that's nothing..I love to help and want to in any way I can, along the way hoping to find help for myself too..I can't remember my point and origional question and reason for this post. I'm so confused and I'm sorry Just any help with all this overwhelming options and links would be really wonderful..thank you bunches

I'm in highschool and when people ask me I usually refer back to something we did in biology last year. It was with taking blood pressure sitting down then standing up then after running up and down the stairs for some time. This was before my POTS really 'kicked in' (for lack of a better term) but I have asthma so I didn't participate in the running part of it. Anyway, what I try to say is like explain how for them, if they change from sitting to standing their blood pressure goes up just a little bit, and how that's something that because of my POTS, doesn't go over so well for me. I try and explain that my blood pressure and heart rate tend to go a tad haywire and that just standing up is something I can't tack for granted anymore. And sometimes will say just how my brain and heart and all don't communicate as they should which affects lots of just making it through the day. I didn't read what everyone else said, I know I should have, but I hope have helped somehow