Star382000

You would have to have blood tests and talk with your docs and such, but just want to tell you that it is NOT far-fetched, I have read here how some people's POTS has been caused by viruses of some sort. It's great that you have such a good idea of how it (at least may have) happened. Best of wishes and you are in my prayers!

Yes, yes, yes, yes, yes *sends hugs your way* I'm trying to think of what all else to say aside from a shouting YES and totally agree!! I want to say that if you have trouble with getting feelings out and all I highly suggest some journaling sites online, I know for me typing takes lots less energy than writing, I would be able to write in a paper journal..there is a WONDERFUL site called LiveJournal.com where you can have VERY particular custom settings so you know exactly who can and cannot see what you put there so they can be as private as you want and definatly help you get out feelings and such. Just saying that all in response to what you said about baring enough for one day. I hope it helps! and I definatly hope that this makes sense!! If this is all confusing and you are interested in the LiveJournal site I could help you with that if you want So yiah..I think my origional purpose in this was to say all that I have said..I cant remember Best of wishes!!

I don't even know what a Pheo is other than what I've gathered from y'all's posts but I hope the tests come back in your favor. I would say no matter what to get the blood tests done, always safe to just in case something's up with that once again, best wishes for best results

My mom (who has many health concerns of her own) is on more zoloft than I as well as on more meds (which I am now begging to question if they are all helping or just adding to her concerns?) which is probably why we haven't questioned the dosage before, this is definatly somethign that I am beginning to be concerned about and am trying to take care of with making notes on, as am I trying with many of the other very helpful things posted here, just wish my computer wasn't so evil and freezing up on me Thank you all so much for everything!

I think if we choose to we can take light of that and laugh, us girls like to be pampered and fussed about and be complicated at times

I think it's safe to say that not only does God have a bit of a sense of humor, but he also wants us to know that we're not alone and to be comforted by that and by those who can comfort us the most in that respect, our little ones who have the largest spaces in our hearts

I have a Meyers Parrot. He's not very big and will most likely outlive me but is such a sweety. He absolutly adores my mom and is warming up to the other members of my family. My caution is the amount of noise with getting a parrot. He can make a racket every now and then and my ears are overly sensitive When you do find a few species (or specific birds ) you like research up on their species characteristics and keep us updated! Pets are wonderful companions, I know all of mine are my babies (no pun intended! my birds name is Baby )

Oh yes, my ability to talk and put together words from what I know in my head..just so hard now! Usually I have been very happy with the medical world from my perspective. My mom is on a lot for a lot valid reasons and when she doesn't like something or someone she changes quick as can. I am just being overwhelmed by so much positive and wonderful helpful information, there is so much I want to make note of! *is at pain center again tomorrow* (what CSI I've seen is great, but I just LOVE Law & Order)

Ack I have to stop opening many windows in here! There is just so much and all so wonderful! I'm not positive, but I think my post at http://dinet.ipbhost.com/index.php?showtop...opic=1325&st=15 was meant for this topic.. and just as I say that I open another window!! I am so sorry for the disorganization and scatterbrainness..just all so but in a very good way!! Oh and another thing, I've found that it DEFINATLY helps me to keep moving (once my vision is clear) I've found an excuse for me to keep my old pace from before hit with POTS, the faster I get to where I'm going and back the sooner I can sit back down!

Oh there is so much I want to say! First and foremost I think it would be a big THANK YOU to all of you!! I plan on setting aside part of this afternoon to going through everything and taking notes down about what I want to look into and remember As others have said, I want to add that you are not alone in the feeling of impending doom, especially at night. I'll get the feeling from my chest or stomach. I often feel my heart on my right side instead of left and I near always can feel it in my stomach, so worriesome So many wonderful suggestions have been made, I myself cannot make any, but I know I want to definatly look into near all of them. As for the breastfeeding, follow your heart and do what you can to take care of you and the baby. As said and is true, a happy mommy is a happy baby! There is just so much, all of you are so wonderful, when I first posted here I was overwhelmed in a more negative confused sense, but now I am overwhelmed by the warmth and compassion from all of you. You're all so wonderful

sometimes in the middle of the night I'll wake up and will have a vibrating feeling spread with my heartbeat every couple seconds or so and I am usually shaky to some extent (diagnosed with POTS this past summer but I've had ADHD as long as I can remember which could explain the shakyness) And I've had muscle twitching noticably for a few years but always on and off (it's so annoying when that muscle right above your eye twitches or by your thumb!) But I haven't looked into any of this (I have a problem with just assuming that things like that are normal..) But just letting you know that you're definatly not alone. Do check with your neuro as suggested, hopefully they can help!

This is so frustrating! http://www.dynakids.org/registration_form.jsp So far I've filled out the form at least 3 times and with a good amount of time in between some and it keeps showing up as an error page and I click back and I have to type everything in again and no progress is made but for to upset me even more I don't know why it wont work and Im near in tears again Oh nevermind that..I got it to work after trying again and I just noticed I made this entry under the wrong topic anyway

I'm afraid I do not have experience or any knowledge on advice to give, just want to let you know that you and the baby are in my prayers and that I second Gena's natural herbal suggestions. Don't get down on yourself and feeling guilty, you're doing the best you can with the best you've got and you should be proud of you. Keep hanging in there, keep dancing. Best wishes and God Bless

I have trouble noticing how I am from one time to a next in relation to what all my meds are, I know these past weeks have been very roller-coaster-ish and completely draining me because of things with friends and all but I do believe I notice a difference when I DONT take my meds..and it's not a good one Everyone here is so wonderful! I only registered yesterday and..you're all helping so much! And my friends are noticing a change from yesterday too! Grandma Doris(4:56:30 PM): I tell you what ..I can see a change in you already since you started talking to the people on that forum warm fuzzies (yes I have my friends using warm fuzzies now too, but they credit me for exposing them to it ^^) I tried to register for dynakids but when I went to submit the page it came up an error message It's the little things that can help the most, it's the little things that pick a person up so that they soar above the skys, and it's the little things that drop a person crashing beneath the dust. And just think what all the larger things can do!! and finding this forum and all of you, definatly a very large thing! I'm very talkitive once I'm comfortable, I have no doubt that I will keep you updated Once again thank you so much! I'm so glad I don't have school tomorrow, I can use the day to compile everything that I have learned so far and can bring it with me to the Pain Center on Tuesday, hopefully my specialist will be there

I think we all are ruled by our stomach, that and the rest of our digestive system and I mentioned getting it checked out to my dad (definatly not the person to go to in any form of..anything) but will definatly note it and ask my mom about inquiring with the doctors, I know she had at one point taken note about it but that was before I was diagnosed and one of the small things lost and stuff..that so didn't make sense And maybe you can see about cutting back on gluten on everything but those even without the test, that way you can see if less of an intake helps or not? Best of luck and best wishes! You are all in my prayers

It's a term I've known but not used for years until a few years ago at a church retreat the theme had to do with warm fuzzies and we had those little puff balls used to sybolize them (they really do turn cold scratchies if you keep them in your pockets) and with these past months having so much trouble with talking aloud I mostly type and converse on the computer (I'm not so outgoing in person to begin with..) and I have trouble with words and online it's so much harder to convey feelings and emotions, so using the term warm fuzzy helps a lot so that others know what you mean It's so awesome and..warm fuzzy!! and thank you, it's so wonderful here! You are all so amazing and Heavensent

This is all I have joined, this is all new to me and I'm just now looking around at everything and trying to find suport and such, everyone here is so amazing. I will definatly look there and probably join, thank you so much this is the first place I have been online and everything here is so helpful and..just so amazing I keep tearing up..thank you so much :)

In trying to look through the sites posted all of these are helping so much. And Mary thank you SO much for the information on making your own heated things!! I told my Grandma Doris about it because she gets cold hands too, I am having trouble finding things to help cold hands on the sites but the cosy sole slippers look so warm, I'm definatly now working on a list for gift ideas for me for the holidays (my birthdays in the winter too) Thank you all so much! This is all just so wonderful, you are all so wonderful!! A warm fuzzy for all of you I do hope, I know I love warm fuzzies from my greatest friend (3:33:39 PM): i love these people, and I'm not even one of them (3:34:03 PM): ^^ *is finding it great you haff somewhere to be* Thank you all so much, just all so amazing and, now being overwhelmed but in a very good way

My mom is, or at least has been, on Paxil before and my dad and brother are on Welbutrin and I know that's something that the doctors have brought up before, that name as a possibility. Thank you so much! I haven't watched losts of CSI, but some of my good friends from school LOVE it

Celiac sprue? I think that's the spelling, my aunt and her children have that, it's something my mom took down to look into but never did..this is all so interesting and seeing how things I've been dealing with and with some my family members are and how they relate..this is just so fascinating..

I'm trying to think of questions that I had wanted to ask, I know there was one of my own and another that one of my dear friends had asked me about and I wanted to know too. I'm pretty new to all this, meaning everything and POTS (diagnosed over the summer which seems years ago to me been sleeping so much and so much has been going on it's just all so much) I know this is a really vague and kinda general question, but that means there's more that y'all will have helpful advice on then right? *attempting to be optimistic here* But would you have suggestions on things that help you to feel better at least mentally or when you're really emotional? I'm doing a little better than I have been I think, but still not so good when it comes to that..you all have been such a big help so far. Thank you

I have to take notes down and/or be sure to make sure to tell my mom, sound so yummy and I know I need to work with my nutrition and eating well thank you

Seem in a way 'lucky' that yours was caused by a virus and not something out of the blue per se and it's wonderful that your body is healing itself, really wonderful best of wishes and luck to all of you

Macaroni & Chesse as wel as hotdogs can be quick. Have you looked into Ramen and the variety of other noodle meals and such that there are out there? They are really delicious. Most of what I can think of are more one person lunch ideas, like tv dinners and instant mashed potato cups It's wonderful that you're feeling stronger! Best of wishes

Oh and I have an apt. at the pain center on Tuesday but I don't know if then I'll be seeing my specialist too or not. I see my LCPC (she's really wonderful, a reverend too) weekly and the psychiatrist every 3? weeks. I think I see her sometime within the next week or two as well so many doctors, I don't know how my mom keeps track of all of mine on top of all of hers!