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About hardtohavefun

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  1. Tilt table tests and POTS in general is really unheard of in my country and many doctors don't know about it. I'll ask my doctor if he can refer me to a tilt table test and see what he says, thanks for the suggestion. I wish i could talk with a cardiologist 1 on 1, the only time I ever met one was when my physician refered me for those heart tests and you don't really get a chance to talk because its really crowded.
  2. Hi everyone, I stumbled upon this forum when I was searching my symptoms a while back and now I decided to post my story/journal. My story begins 6 months ago when I was tying my shoelaces and i suddenly started to feel dizzy and i started to lose balance and ever since that day I only have gotten worse, now I am bedridden for 70-80% of the day. if Im lucky one day passes by with minimal symptoms and almost no dizziness. I have done blood tests to check my vitamin levels and I had a Vitamin-D deficiency which Im now treating with vitamin D oil I did heart tests (ECG, ultrasound and blood pressure) everything looked normal except for my blood pressure which was a tiny bit lower than average. My Symptoms: Dizziness when i stand up/walk after a while. 60-65 Resting BPM and around 110-140 Standing/Walking BPM My skin and head/neck feels weird, hard to explain but something like polyester fabric. (This symptom came a bit later) My feet are blood pooling. Tingling/Sticking in feet and hands When I turn my head to the left I start to get white circles and spots in my vision (This symtom came a bit later) Shortness of breath (This symtom came a bit later) My face looks really pale usually after I have walked or stood for some time. My doctor doesn't have a clue or a guess on whats going on with me despite sending me on these tests mentioned above. I have been trying to think back on what could have caused this and I remember that I had a bad habit of cracking my neck and back, I also have constant phlegm in my throat, just a thought. I wonder if someone who reads this experienced similar symptoms. Right now I don't know what to do. Thank you for reading this, have a good day.
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