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AubreyJane

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  1. Howdy All! This is my first post and I am so excited to meet others with this crazy disorder. I have erythromelalgia and POTS (and gerd and all those other POTS things) and was just recently diagnosed at UCLA. I've been reading over the forums to try to get some answers and I've learned so much more than the doctors could share with me. I still have a few questions though... I'll probably sound like a newbie, but I was hoping you guys might have some answers. Any response will be appreciated, I promise! 1. Do cold and the flu et cetera make your symptoms worse? Especially the tachycardia? 2. Have any of you had recovery and relapses in POTS (I feel like I have)? 3. Without getting to personal, Do any of you take the birth control pill without any problems? 4. I have read quite a few of you say you have Ehlers-Danlos syndrome. Is this a concurrent disease with POTS (I have never had it mentioned to me)? 5. Do any of your have problems with maintaining your blood sugar? Or, have your tachycardia exacerbated by eating to much sugar? 6. Any good drink recipes for keep up your blood volume (I am getting so sick of gatorade!)? I would appreciate any help and extra tips/info too!! Thank you so much guys Aubrey Jane
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