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That's really good that you're still continue doing the things you love! Wishing you good luck testing, hope things will work out giving you the tools to find out what's going on an hpefully get better!

I haven't heard that before. Would it be an idea to contact your pharmacy and ask whether they have any information on that? Hope others who are more experienced on this subject can chime in!

Severe brain fog for me is when I can't think straight anymore, where I have trouble remember my name. When asked any questions I can't answer coherently, it's def a point where I need to lei down and recuperate. More common brain fog is when I don't understand questions, can't make connections or don't understand what I'm reading. I have to write down what we have for dinner every night as I can't remember what to do with the ingredients in the fridge. I hate brain fog!

1. Other- brain fog

Thanks for the reminder mechamoss!

In fact, your bp needs to rise upon standing though not too much of course! If you have any concerns you best call your doctor's office like Katherine suggests!

I'm so sorry Sean, this doesn't seem appropriate to me. It  might be helpful to keep track of your data for let's say a week. You could do your own "poor man's" test measuring heart rate and bp while seated, then stand up and measure for about 10 minutes, every 2 minutes. It will give you insight in how your heart rate and bp react to standing. You could hand over the list to the nurse/doctor and talk over the results. I'd also let them know being cleared by a psychologist (it  could be helpful to have that on paper also!).

Hope this helps. Good luck!

I'm not aware of POTS patients having heart attacks. Have you had your heart checked out by a cardiologist? I have been checked with all kind of test by my cardio just to make sure he didn't overlook anything. Fortunately my heart is happy and healthy! It turned out my symptoms are POTS and I'm comfortable knowing this as my cardio did what he could to make sure nothing else is going on.

Nemesis, I deleted your post, it's something only mods and admins can do!

I'm sorry your doctors don't understand. Could you present info re this to your doctor like yogini mentions? If not it might be helpful to find doctors that are willing to work with you!

This is from the POTS what helps page:  Ritalin increases peripheral vascular resistance via alpha receptor stimulation (Grubb, Kosinski, Mouhaffel & Pothoulakis, 1996).  Ritalin is prescribed by some physicians, but can be addictive.

For me coffee (no sugar) works as a boost like you mention Nemesis. I have changed my diet to very low carbs (cut out all refined sugars) as my bloodsugars got out of control. I'm not diabetic but using sugars makes my levels get too low (like 2,6 ie). The symptoms mimic my POTS symptoms but I can tell it's low blood sugars as esp my legs get really weak. I'm telling you as perhaps it may be low blood sugars for you too?

Yayyyyyy happy for you Ancy!

Hope things will go according to plan and you will be home real soon Ancy!

Hope you feel better today Artluvr!

Hi Biljana! Welcome to DINET!!!

Hi Mk1! Glad you found us! Havre you checked our physician's list? It may help you find more local doctors (easier to travel to?). A lot of us have been to clinics like Mayo, VanderBilt and Cleveland so hopefully they will be able to help you on your way! 

So sorry katcanny. It helps me to listen to music or try to do some coloring. I find coloring so relaxing! I have books and crayons and a sharpener in a box next to my favorite place on the bench, so really easy to grab them and put aside. Hope things will start getting better soon!

So sorry Ancy! Hope things will get better real soon. Sending healing thoughts your way!

That's really good news Draven! Hope you doctor will be able to get you "on your feet" onwards and upwards!

I thought of looneymom too and found you a post she wrote on this:

There is more to be found if you try our search box (top right) just fill in cunningham panel and topics and posts on this will pop up. Hope this helps!

I feel this is a strong possibility and hope you continue to do well!

Thanks a lot Bill, I'm glad you find this website and forum helpful! For me the forum was a life saver, knowing I wasn't the only one with these strange symptoms really comforted me. People understanding (from their own experience) and exchanging tips to live your life the best you can to me means SO much!

Hi Bill, I don't know about Oxycodon and Oxycontin but have been on ritalin. The ritalin (in combination with other meds like bb's, mestinon, ssri) for me worked really well re alertness. Hope this helps a bit!

katcanny, your's is a very good question and like you noticed this topic has been discussed before (thanks Katybug for pulling these posts!). I think it's really important to have this discussed, it's such an important subject in our lives!

Happy Thanksgiving everyone!

Welcome everyone! DINET has been my lifesaver. It's SO good knowing you're not alone! What I also like so much is that members from all over the world meet here. And help out! And become special friends! Hope you all will feel comforted and do ask whatever you need to know!