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I'm so sorry Womble. There's nothing I can add to help, just wanted  you to know that I feel for you and hope you'll be able to figure this out!

So sorry to hear you have another thing going on Katie. Sending warm thoughts

We can't tell you what you should or shouldn't do or try of course, but there are a lot of different bb's out there and you wouldn't be the first that did bad on one type and much better on another! I think it's best to ask your doc, good luck!

I'm sorry you had a bad experience Stellaluna, I wish this hadn't happened. Reading through though  made me think your doctor might have had a bad day him/herself (re the potassium thing ie, I'm sure s/he knows better!). After all, our doctors are human too. I hope next time you'll see him/her will be better! It doesn't help you but knowing it wasn't you might! 

Hi Selena, welcome to DINET! I'm not in your country, so not able to help but hopefully someone else can!

I'm trying a spinning bike for several months now. Today I got to 6,5 minutes which is a record for me yayyyy

Enjoy Disney shan1212, we were in Disney Florida lots of years ago and had a great time (that was before POTS hit me really hard)

And a few nice presents!

I'm located more west, in the Netherlands. Have been to Vienna once and loved it!

I'm so sorry, sending good thoughts and hope things will get in control real soon!

Enjoy everyone!

HI everyone, welcome!

Have you checked your pulse? For me when I'm overly tired it's usually my heart rate going low. Just a thought of course!

Welcome everyone!

Hey Matt, are you able to work with a Physical therapist or another professional? They could help you figure out what would work best for you. I tend to feel better when my hr goes up but there is a significant difference related to what I'm doing. I like a higher hr while rowing (I can do 2 x 4 minutes now and go up to 157) but biking always makes me feel worse (eventhough my hr gets up). 

Thanks Lynnie, I'm on Paxil and it sure helps my POTS!

That's awesome news, happy for you!!!

Just thought to let you know you're doing a great job!

Welcome everyone!

Mm I actually wouldn't know, maybe ask our doctors in our next newsletter? There will be a topic when we need new questions!

Hi Marly! Don't have any answers, just thought to say hi and welcome you!

Welcome everyone!

Welcome everyone!

Thanks for sharing Katie!

That sounds awesome! Happy for you!

Hi chrm, welcome to our forum! I haven't seen dr Novak (I'm in Europe) but wanted to let you know I'm really glad you're taking her serious. I hope Dr Novak will be able to find out what's going on and help her!