kalamazoo

That's exactly what I thought, luckily I didn't faint though, which I've never done before but I sure came close. I can't imagine feeling that way for longer than ten minutes.

I've heard a lot about this dr grubb, I think I'm going to have my doctor try and contact him because I definitely think I need a second opinion. And I agree with both of you ladies, I didn't know there needed to be a time frame, sounds kinda fishy.

I will definitely tell my doctor this, he's new to POTs so I sure hope he can't help me as I'm going crazy. Hopefully he will put me on a holter for a few days. And I'm sorry your in phoenix, I used to live in Tucson and the heat made me miserable. I'm in alaska now and the cold is almost as bad!

So my heart rate went from 90 to 140 upon standing while my bp didn't change very much. But since my heart rate didnt stay that way longer than ten minutes the doctor said its inconclusive. What the ****! Anyone had these results? I just want a diagnosis, I'm going crazy.

70 is not a high number for a resting heart rate, even up to 90 is fairly normal. POTS or not.

I've had this for several years. It's from both my POTS and asthma and a little GERD too.

Mine is about 80-100 and then when I'm doing somwthing it jumps to 130-150. My fast heart rate is my most bothersome symptom.

I've tried running, walking fast and even lifting light weights but my heart rate just goes entirely way too fast so I have to stop because I become out of breath. I even become breathless just getting out of bed in the morning from my racing heart when I stand up and forget stairs, they are the devil.

Can I have all the information on him? I'd really like to see him and I'm going to seattle soon. Pretty please!

Doesnanyone else have high plateletes? Mine aren't abnormally high, they're 430 but I'm curious as to what everyone else's levels were.

Has anyone had any luck with this medication? My dr prescribed it because my heart rate was extremely high and my blood pressure was also elevated. I've also got erythromelalgia so I'm a little curious how this will effect it. Doc said it'll either be really good or really bad but that I need to take the chance.

That's great that you talked to your husband, talking especially involving this type of situation is the best thing. I had a complete breakdown the other night and my boyfriend simply said 'I will always love you and whatever you go through, I'll go through" That's the exact type of thing I needed to hear. A significant other can be the best medicine.

Wow thank you so much for all of thw information, i will definitely be asking my doctor about this. A lot of my symptoms fit thia description. I have a question though, what kind of doctor would diagnose this? I always get confused which specialist to see seeing as i have so many. Also I have another question, what type of specialist diagnosed your POTS?

I'm so sorry that happened to you. It hurts so much when the person you love the most cannot be empathetic. The worst part of this illness is the lack of understanding from virtually everyone. I often think that if my husband could feel the way I do for just 15 minutes he would never complain again when I'm "too tired" Leigh I'm so sorry, some people can be so selfish. It's his loss though! And gosh making anyone understand is like pulling teeth, its so hard to describe a feeling. Everyone feels love but everyone also describes it differently. This makes explaining something not many people feel even hard to explain. My boyfriend usually just hugs me because he doesn't know what to say. Sometimes its what I need, sonetimes it isnt.

My heart rate is always elevated i feel. Especially when standing and active. I want to start exercising but I'm too scared to even start or know how to begin? Can anyone give me pointers on how to go about exercise. I would really like to get ny heart rate lower and i know i need exercise. Any advice is much appreciated.

This is very inspirational, exercising still seems pretty impossible for me at this moment but im waiting to get the okay fron my cardiologist. I noticed you have a pineal Cyst, I too have one and go back in a few months for another MRI to see the size of it. May I ask what ever happened with yours? And I'm very surprised at such low resting heart rates. I was definetly expecting higher as mine is usually around 100.

On average, what is your resting heart rate?

Wow thats some good useful information I will most definitely be getting myself some of this, Issie!

I love anything natural, thanks for all of the information! Time for me to start adding some of these into my routine. May i ask if you could tell me the dosage of the B complex. I was instructed to not take too much niacin because it promotes flushing which can essentially lead to pooling and worsening of my pooling so I'm curious what the dosage is.

I feel stupid but what is ist and ncs?

Wow thanks everyone for the information! Very informative. this is definitely the best place to find information. It sounds like everyone has mixed reviews, more worse than positive it seems though. i just want my anxiety to go away my heart rate is bad when i have a panic attack, I can't even ask the teacher a question or stand up to say my name because immediately my heart starts throbbing. I have rrad beta blockers are good for panic attacks.

I forget things quite often and have begun mixing up words. I say things like 'door the open' instead of open the door. It happens quite often. There's roughly a 30% blood flow to the brain upon standing depending on the severity of POTS. I'm sure this affects memory.

I'm confused as to what this is or symptoms ? Can someone explain it. I can't find too much online.

This is so weird, I'm the exact opposite. My legs and hands pool and when after eating I constrict.

Wow thats interesting Katy, thanks for all of that info and i hope you finally find a true name to your disease! And that high flow pots, after doing some reseach sounds spot on to the symptoms I'm experiencing. Plus I have erythromelalgia which always complicates things.