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Found 10 results

  1. Dysautonomia means dysregulation of the autonomic nervous system. The autonomic nervous system is the master regulator of organ function throughout the body. It is involved in the control of heart rate, blood pressure, temperature, respiration, digestion and other vital functions. Dysregulation of the autonomic nervous system can produce the apparent malfunction of the organs it regulates. For this reason, dysautonomia patients often present with numerous, seemingly unrelated maladies. Diagnosis frequently requires a specialist familiar with autonomic dysfunction and the various disorde
  2. At first glance, Caryn is living an enviable kind of life: she is 56 years old, living in South Florida and is the Director of Imaging Services for a national radiology group. In the short time, I spent talking with Caryn, her positive disposition and tremendous strength were evident through all that she said. So, while she certainly seems to be living a great life, I suspect that not many people know how hard Caryn has fought to build this life or how much she continues to overcome to achieve it. At age fifty, she was diagnosed with neurocardiogenic syncope (NCS) after a harrowing medical ba
  3. Otherwise referred to: Neurally Mediated Syncope, Neurally Mediated Hypotension, Vasovagal Syncope This disorder is characterized by an episodic fall in blood pressure and/or heart rate that results in fainting (Robertson, 2002). The disorder occurs intermittently, with patients sometimes reporting good health between episodes. Our web site provides general information on NCS, and also explores its symptoms, mechanisms, diagnosis and treatment. A page full of links to other neurocardiogenic syncope resources on the Internet is included as well. To read more about neurocardiogenic s
  4. DINET member name: Missy Milton Missy's home town: Fayetteville, AR Diagnosis: Dysautonomia (POTS & NCS) website: https://www.melissamiltonart.com/ In Missy’s words……. Living with dysautonomia requires me to spend many chunks of hours laying down. Laying down is a necessary tool for regulating my roller coaster blood pressure. After about a year of spending so much time being “stuck horizontal” a dreadful, negative boredom ensued. I decided to start painting again as a fun way to pass the time when I can’t move about. Before my illness, It had been over 30 years since I had
  5. DINET member name: B.KELS Kelsey's home town: Los Angeles, CA Diagnosis: POTS/NCS Music video link: https://vimeo.com/224607332 My portfolio: https://bkelsstudio.cargocollective.com/ Notes on the project: My name is Kelsey Boncato and I am an LA-based visual artist living with POTS/NCS. My project is a music video I animated and directed for the electronic soul group, Idesia. The piece is entitled “Ain’t Over” This video was a collaborative effort. The Music Producer, Co-Director and writer of the music and lyrics to this song is Daniel Oldham. Daniel also lives a life strongly affecte
  6. Please keep in mind that recent clinical findings will not be included in earlier publications... Cheltenham Syncope Clinic: http://www.syncope.co.uk/ Vasovagal Syncope in 2016: The Current State of the Faint, Dr. Raj et al http://www.openaccessjournals.com/articles/vasovagal-syncope-in-2016-the-current-state-of-the-faint.html All that shakes is not epilepsy YM Hart Consultant Neurologist, Royal Victoria Infirmary, Newcastle upon Tyne, UK http://www.rcpe.ac.uk/journal/issue/journal_42_2/hart.pdf Syncope (NMS) in Adolescents by Martin A. G. Lewin: http://hpps.kb
  7. I am glad I did it but it was horrible in my case, I have IST and NCS, with convulsions he said my bp was unreadable on the auto cuff but when he took it manually it was 60/30 he said it was all over the place along with my heartrate. He said my autonomic system is very out of whack, he moved me up to 0.4 mg a day of florinef. And plans for other meds if this doesn't work. He also said after I get insurance I have to get treatment for my digestion issues, and neuropathy. I don't want to go into it but that was the worst thing ever, the EP was shocked at how my hr and bp did. He was so intere
  8. So, i keep reading each one...... i read ncs, and it sounds like me. I read dys and it sounds like me. I read mcad and it sounds like me. I read cfs and it sounds like me. BUT THEY ALL HAVE MOSTLY THE SAME SYMPTOMS!!!! Agh!!! Is there any read difference between these??? in mechanisms? in symptoms that could be told apart from the other??? thanks tennille
  9. Hello all, When I was diagnosed with dysautonomia they said I had NCS. I logged my BP and HR yesterday 4 times. Supine - 119/61 Hr- 40 (8am) standing- 85/48 Hr- 85 Supine- 126/62 Hr- 42 (12pm) standing- 89/55 Hr- 83 Supine- 109/61 Hr- 56 (4:30p) Standing- 88/53 Hr- 88 Supine- 97/53 Hr- 50 (9:30p) standing- 86/52 Hr- 86 So i understand that with NCS you faint because when you stand your BP and HR drop. Except my Hr is spiking anywhere from 32 bpm- 45 bpm upon standing. I did it today at 8am and 12p just to check to see if it was the same and it was. So my BP is dropping but my Hr
  10. Has there been any studies linking NCS or POTS to ADHD or ADD? My 13 year old son has been diagnosed with NCS, but I think it may be POTS. The doctor treating him said the two terms are almost interchangeable, but I have read different. My issue is that he also has other issues including migraine headaches, frequent nausea and vomiting, and ADHD (more ADD). He is having a lot of problems with attention and concentration at school. I am trying to get help from his school, but they have to do their "testing" before he can qualify. Does anybody know if there is a link between these issues t
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