Linj10

Thanks for all the support! It does not help that on top of all this I'm trying to finish nursing school and plan a wedding. One of my good friends disowned me yesterday because I told her that I did not have room and that since it was Christian ceremony and she is an avid nonbeliever I wouldn't feel comfortable. She said I had been sketchy lately and called me a low and disgusting person for using my health as an excuse to avoid hanging or out or for why I can't stress. I ultimately got so upset and stressed that I ha a panic attack, I was trembling, my heart rate was rediculous and I eventually passed out. Her response, you may be sick but only in the head. It is so frusterating but I appreciate the support.

I'm a young 23. I should be able to go through a day without a nap or a headache. I should not have crazy mood swings. I should be able to go out with friends and drink and have a good time and be able to keep up with them. But I can't. I can't deal with the stress from a fight inside the girl group or drinking alcohol without falling out and the sad but factual truth is I have to take a daily nap like a 6 year old. My friends do not understand. I think it is because I do not know how to explain. To them I appear as having excuses or being a bore or just plan lazy. The symptoms stress brings are an "attention getter" and a way to not deal with life in their eyes. They do not Understand the chest pains and headaches. The mood swings or instability. My family is the same way. I just do not know how to shed light on my situation or make them see I'm sick all because.... I DO NOT LOOK SICK

It's the caffeine. I had to go completely caffeine free 7 months ago bc of weird feelings!

Actually they did not tell me. My mom takes the medicine for the same problem and told me to take it in the morning and on an empty stomach but I definetly have not been waiting an hour and taking is soley with water. Thanks!

I've had the stand up and feel really woozy spells before I was diagnosed and recently with medicine they have not been happening, but just recently here at work when I was cleaning up after some kids I would stand up and have that issue and even after sitting down and stabalizing my vison is blurry and my head feels swimmy. I have a pounding headache and I feel like I am having adrenaline rushes too, kind of the feeling like someone has knocked the breathe out of me. I have not been super active this morning, but I have had a good bit of sugar over the last day and a half. Has anyone else experienced this?

My primary care doctors nurse called me late Friday and the doc called in synthroid low dose without even seeing me. I'm glad I found the results and got the meds.

I have had rapid weight gain. My cardiologist had me do blood work for my thyroid and the results came back today that it was 5.016. I know the normal range is 0 to 5.0 and she told me to contact my primary care doctor and they would fax the report and I still have not heard. I have the symptoms... -weight gain -hair loss -brittle nails -low body temp - tiredness I'm worried that my primary care doc isn't going to give me meds. Anyone's thoughts?

I have a b12 deficiency and MVP so some of these may overlap from that. -dizziness/room spinning - black out feeling when standing too fast -headaches from mild to feeling like my brain is pulsing. -shaky hands - leg and other muscle twitches - mood swings - sensitivity to bright light and loud sound - stuttering - memory and word loss - weight gain - tachycardia - severe chest pains - needle sensation in my feet - cold hands and feet - low BP - cold sensitivity - blurred vision

I was diagnosed with asthma at the age of 1. I've had severe asthma since then and I am now 23. My sophmore year of highschool I was very active. Sang, danced, was on colorguard. I was in my history class, the symptoms began with suddenly getting hot but having chills, dizzy, feeling like the room was spinning, shaky, and i got up to ask to go to the bathroom and passed out hitting my head. I was tested for low blood sugar, and all sorts of other things. All which came back normal, and i was told just to make sure i was eating normally. Fast forward to college and i had the same spell my freshmen year, but avoided passing out and then again last year. I was again tested for low blood sugars and whatnot, nothing. I started to get headaches. It felt like my brain was pulsing. They became a daily occurence and resulted in me having to take an afternoon nap EVERY day. I became so fatigued that my mom worried I had caught mono and had me tested for that too, all was normal. My anxiety was through the roof, i worried about EVERYTHING, panicked about everything, and obsessed over getting things planned. I feared the absolute worst outcome in everything and always had a sense of doom. I began to start waking up in the middle of the night gasping for air and feeling like my heart had stopped. This time last year I started having chest pains. The first time I honestly thought I was having a heart attack. It felt like a knife through the front of my chest, through my ribcage and shoved into my left shoulder blade. The pain was so sharp that it took my breathe away. I ignored them while I could, even chalked it up to heartburn or indegestion. I finally went to the doctor for a cold and mentioned this to him. He did and EKG and an echo and still nothing alarming. He tested my b12 and found I had a defieciency which was causing me to be anemic. That made sense, I bruise very easily. He prescribed injections which i give myself once a week. This stopped the tired feeling, headaches, and even the chest pains. Last summer I was at the beach with my fiance and his family and i was putting our laundry in the washer when I caught another chest pain that brought me to the floor in pain. This happened a few other times. On my annual appt with my gynocologist I had one of these pains with her. She immediately listened to my heart and heard an unnormal sound, sent me for an echo, and referred me to a cardiologist which specializes in mitral valve prolapse and dysautonomia. I was diagnosed with both of those. I was put on wellbutrin XL and seratline for anxiety, I take a beta blocker, and up to two klonopin a day to keep my chest pains away and my heart under control. This seems to help. I have switched meds around a couple of times because of expense, and weight gain. with all that medicine, plus the injections I still have rough days. I get to feeling better and try and go without my injection and i get so weak, shaky, and my chest starts to hurt that i have to give in. Is it normal for the b12 deficiency and mvp/d to be linked together? I'm no sure if this was a from birth thing, but it is important to note I was having several cases of strep throat a year. Up to 6 a year at one point, and finally had my tonsils removed this past thanksgiving. It stinks being young and not being able to have a drink or glass of wine because my legs go numb instantly, my head starts swimming and my speech becomes rediculous. It isn't fun being attached to a needle and vial of pink liquid for probably the rest of my life. I am thankful to live in a state, Alabama, that has a center for MVP/D. Any thoughts, comments?

It was hard! I've been off about 8 months solid. It did help bc I was drink 5 to 6 cokes a day. I also have trouble when I'm mad, anxious, or nervous. I notice mine laying down to sleep the most. When I'm trying to get my body completely calm.

My cardiologist took me off caffiene completely and it has helped drastically with all symptoms.

Yes, I am always shaky to some extent but I go through periods of my hands trembling. Usually when my BP is low

What I'm confused on though is if they're the same thing? I know why MVP but was never told was dysautonomia means

I was diagnosed with MVP and dysautonomia, they call it MVP/D. The MVP was causing the passing out and severe chest pains that felt like heart attack pains. I'm assuming the dysautonomia goes with it. My blood volume is so low that my heart has a hard time pumping my blood. My feet and hands stay ice cold constantly. The lack of blood to my brain causes fainting and massive panic attacks, and what feels like homesick feelings, I think they're mini attacks. Anyone else?

I was passing out constantly and having dizzy spells, mood swings, and then eventually horrible chest pains. My BP has always been low. Like 94/60, my gp did an EKG and found nothing so he decided to do blood work. Turns out my b12 was super low. I don't eat a lot of red meat, but that's not the sole cause. My body just does not have the blood volume or desire to be normal. I was told the pills do not have enough to make a difference and that they're pointless to see a result with. I was prescribed to take a shot every two weeks but I do it very week. Without a shot I get horrible headaches, I'm super snappy and cranky, the bad chest pains come back, my head gets foggy, my vision gets blurry, and I'll get real faint. Needless to say it makes a huge difference in my life and with out that 1ml of b12 I'm no fun

I was passing out constantly and having dizzy spells, mood swings, and then eventually horrible chest pains. My BP has always been low. Like 94/60, my gp did an EKG and found nothing so he decided to do blood work. Turns out my b12 was super low. I don't eat a lot of red meat, but that's not the sole cause. My body just does not have the blood volume or desire to be normal. I was told the pills do not have enough to make a difference and that they're pointless to see a resut with. I was prescribed to take a shot every two weeks but I do it very week. Without a **** I get horrible headaches, I'm super snappy and cranky, the bad chest pains come back, my head gets foggy, my vision gets blurry, and I'll get real faint. Needless to say it makes a huge difference in my life and with out that 1ml of b12 I'm no fun

I was on lexapro for a year And it helped my symptoms but it made me feel worn down. I'm young and should have energy and I didn't. I tried to quit and jut take Wellbutrin and I became a living nightmare, I couldn't even stand myself. Now I'm taking Wellbutrin and Zoloft and I feel much better!

I was diagnosed with b12 deficiency about two months before dysautonomia. I take weekly injections bc without them I stay dizzy, have a constant headache, pass out, have panic attacks and just super moody. It is somehow tied to my dysautonomia but I'm not sure how?

All through highschool from the time I was 16 until I just turned 22 I woul randomly just get the feeling and could feel myself beginning to pass out. I only fully fell out twice. I got to the point I could pinpoint the signals and sit down. We constantly thought it was low blood sugar. I had that checked and it was fine. Still no answers. My blood test did show a b12 deficiency and I started doing weekly injections. Those made the headaches and blurry vision ease up and definetly helped with the mood swings but the dizziness and faintness did not stop. Over the last year I developed horrid chest pains. To the point i would be standing and talkin and take a breath and suddenly it felt like someone had reached in with bear hands and a knife just ripping me to pieces. It would take my breath away and cripple me over for about 30 seconds. Randomly while at my yearly gyno checkup last fall I had a pain and asked her. She grabbed a stethoscope and listened and heard a skip am sent me straight for and echo that showed nothing. She did not feel right and referred me to a cardiologist. Turns out this cardiologist works in a practice that specializes in mitral valve prolapse and dysautonomia and I have both full fledge. However, I did my get much info and I cannot find much on the Internet either. I have cut out caffeine completely. Going from probably 5 or 6 can drinks a day to none or caffeine free. I did it cold turkey and talk about rough. But it has helped. Along with the passing out I was always anxious or nervous or constantly worrying. My heart would race to the extent I thought it might just jump out. I would have extreme mood swings, headaches that weren't migraines but enough to make me useless and I was always tired and lethargic. Since being diagnosed I was put on the b12, klonopin, lexapro, Wellbutrin, and bystolic because my BP was always rediculously low. I felt fine for a few months but since thanksgiving I've gone back down hill. My questions are: 1) what exactly does this "diagnosis" mean? 2) do adrenaline surges feel like mini panic attacks starting up but then disappear? 3) is it normal to feel so overwhelmed? 4) does going gluten free help? I am considering it.