Linj10

It went well. Had some anxiety but went under well. Waking up my Bp kept dropping to about 100/55 but would bounce back. It took me longer than most to come to ad get my nervous system back with it. I'm groggy still and a horrible headache. Thanks!

I am having an epidural pain block in the morning and am being fully put under. It's been over 5 years since I last had anesthesia and was not dealing with MVP and dysautonomia at the time. I told the PA and she said not to worry the anesthesiologist was great and they'd keep me in recovery a little longer than usual. Anyone have problems with anesthesia? Side effects or reactions?

Thank you all SO much! It does makes sense that it is the frustration of not having complete control over my life tht gets me the most upset. I'm a very have it together, planned out, an organized person...knowing that I can't control this adds anxiety. Anger of what I feel like is something so ridiculous get to me, and frustration that I feel not one person around me understands. My fiancé is great, he has a coworker whose wife suffers from the same mvp and dysautonomia, and having someone who an explain it and deals with their wife suffering has made him understand a lot more. However, my parents, friends, and family do not always understand when I suddenly have a meltdown or I have to just stop what I'm doing. I feel like everyone else around me judges because they do not understand and it looks as if I'm lazy or crazy and then I feel like a wimp. I can deal with the MVP, it's the nervous system illness that I wouldn't wish on my worst enemy.

I feel fine for a week or a few days at a time, sometimes even months. Then all of the sudden it is like I just have a "spell" and I get in a terrible doom and gloom mood. I am ill, snap at everyone, hate everyone, hate everything, cry hysterically over nothing, and have imense anxiety over nothing. My heart races and my head hurts and I feel like I just want to beat the crap out of someone instead of being nice and friendly and my normal self. This makes me feel like I am crazy. Like I am bipolar or schizoprenic when, obviously, I know I am not. I just do not understand how any normal person can go through these stages and spells and be a sane person. Does anyone else have these problems?

It's pretty much the same as others like Wellbutrin but it is supposed to give you energy, make you focused, and not take away your sex drive. I need it for energy bc I completely came off caffeine and I'm trying to survive nursing school

Yes, I forgot to mention candy was just research. They do try trials but no exact treatment. Only stuff that may or may not help. Their website is great though!

I am currently on Wellbutrin Xl and am starting a starter pack of viibryd in the morning to replace it. Has anyone tried this med?

I see dr. Susan Phillips at that center and ADORE the women!! She gave me my life back and is so understanding. I'm sure you'll have a good experience. A friend if my fiancé's wife, who lives in north Alabama, was going to bandy and traded it in for the MVP here in bham. The great tng about their office, you can email the nurse anytime with questions and they always respond! Very helpful esp if you don't live around here. I feel very lucky to have this clinic in my hometown. Wear comfy clothes and tennis shoes. They take you back and do your height and weight and have you out a gown on. I had my echo first, then an EKG, then did the tilt table test, and the stress test. If you're a women, modesty does fly out the window as your heart is located under a lady part everyone makes you feel so comfortable though and talks to you. After all the tests you speak with the doctor about your diet. It takes a good few hours.

Does anyone take, bak with, or use coconut oil in their everyday life?

My doctor took me completely off caffeine. It's horrible for symptoms and causes them to increase drastically. I went from drinking 5-6 caffeinated drinks a day to not having a drop in over a year. I am a nursing student as well. I find the vitamin water zero rise flavor helps me. No caffeine just lots of vitamins.

I suffer from MVP which diagnosed my dysautonomia. Before I got diagnosed with either I would have this horrible horrible chest pains. Like my valve was pinching or someone had stuck a knife through my ribs and up through my heart. So bad I'd keel over I've been good since starting beta blocker, but the last few days the pain has started back and just now I was laying on the sofa and one hit me out of nowhere. A pain do bad that it took the breate out of me, I broke out in a sweat, and honestly thought I was going to pass out. Anyone else experience this? My checkup at the cardiologist is in September. Not sure if I should call? I was diagnosed with strep Monday, could that be interfering?

I have been doing good for a couple of months. Wih summer starting I started spending weekends on the lake, tending to a boat, and laying out. It has been around 95 degrees and I realized my weakness, dizziness, and chest pains came back. It has been 100+ here lately in Alabama and my extent of being outside is walking from my car in to work/school/house, but I just feel awful. The past week has brought back headaches, tremors/jitters, chest pains, moodiness, and pass out feeling. I feel like I can't hold my head up. I was weeping pretty well to until all this fired up. Now my sleep is light and sporadic. I wake up for no reason. Do symptoms just come and go like this?

My mom and I had a major blow out tonight. I got hysterical bc I cannot control my nervous system and he told me my sickness was no different from anyone else's and to suck it up... Needless to say I equalled for a while and got so depressed. We apologized but still I know she doesn't understand.

My fiancé is great and super supportive of what he can understand... Our mothers on the other hand...I'm an only child so my mom's super involved in the wedding and just gets upset if I say differently an his mom isn't all that easy to talk to so its super stressful trying to please everyone. My aunt and uncle obviously don't care enough to not cause problems in our family and my aunt by marriage just laughed at my diagnosis. Not a real nice lady.

Nursing school hasn't been an easy war to wage. I never could understand why I couldn't remember information...so I'm in my 5th year. I have a feeling of sheer panic almost. I have to have everything precisely planned out or I will have a panic attack because I feel like I'm loosing control. Everything is worst case scenario....anyone can say somethin to me and I aUtomatically think they hate me or are judging me.

The last week I have taken what seems like a turn for the worst. I was doing great, feeling much better and back to normal, excersising, and all around happy.... I went to the beach with my fiancè and his family this last week and on Friday I plummeted out of control. I had a total breakdown with the feelings of anxiety and doom. My headaches have come back to the point where I take 3 Tylenol at least twice or three times a day bc I cannot function, my hands and feet are going numb especially when I'm asleep, my heart feels like is skipping a beat, I feel depressed and so anxious that I can not control my crying, and I'm snapping at everyone. Given I am more stressed than I've ever been in my life. I'm in nursing school and finishing up a quarter, trying to plan a wedding with families who aren't really concerned with what I want but their needs, my mom and I constantly butting heads, venues I do decide on being booked or having complications, and a family feud right now. I just do not feel like I know this person or that I'm even me, I feel like I'm having out of body experiences where I'm justice who are you and by are you acting this way. I feel empty, guilty, and depressed and all I do is cry. Has anyone else ever been through this?

Yes, I love the Wellbutrin! And it is the most weight neutral. It was a combination of the two. Thyroid ands meds. Lexapro only caused a small weight gain, but it was making me sluggish so that's when I switched to Zoloft. I take the generic of both the Zoloft and the Wellbutrin

The dr just decided to amp up my Wellbutrin to make up for what I haven't been taking. Hopefully it works.

I was in lexapro for a year and felt lethargic so I switched to Zoloft. Well I took if for 3 weeks and then weened myself off without the doctors permission. I go see her tomorrow and I'm dreading telling her this. But I was gaining weight like no other. I'm already overweight and had lost 45lbs but gained it all back on Zoloft and with I diagnosed thyroid issue. I have been fine the 5 weeks I've been off of it but here recently my headaches and thoughts I doom and worst case scenarios have come back. I am getting married and trying to loose my weight again, any ideas of an SSRI hat doesn't cause weight gain?

I love them! They aren't hot bc of the fan inside and it usually relaxes me and helps my stress an anxiety and makes me feel better. I do 10 minutes every other day

Is there any diet such as gluten free that helps with these symptoms and POTS? Do any of you follow a special diet that you've noticed helped? As far as Gatorade and water....I was told to force water but I hate it. My drink of choice Is caffeine free diet Pepsi but im sure tht isn't helping. Does anyone notice a helpfulness of forcing water of by drinking Gatorade or vitamin water? And recently, I think bc I've been under major stress with school and wedding planning and. It resting, I've been having some neurological issues. I can think of words but I can't get them to come out of my mouth or I will stumble when I try and speak. I feel like I have a brain fog. I cannot recall as quickly as I could before and I can't always make my body do what I want. I trip a lot and scariest of all, last week I was feeling somewhat lousy but kept pushing myself. I went in Walmart and wrote a check and when I signed the check it looked fine, but when I went to sign the Walmart keypad I noticed after I had signed what I thought was my name turned out to be what I called cursive as 7 year old. Squiggly lines. I somewhat felt I was struggling when signing but did not realize til I looked back. I was scared to death I held myself together until I got to the car and then I burst into tears. How an I be loosing control of my body so young? My vision, which is normally corrected with low strength glasses and in jan I started using contacts, has become blurry with my contacts and unseeable with my glasses,one it is getting worse. Is all this our "normal"?

I take b12 shots for a deficiency and to keep me from being anemic. I do them once weekly. I do not know about energy but I can tell when I forget or do not take them. I get cranky, and moody. I get horrible headaches and bruise so easily.

I def notice if I'm not active as well. I'm young, just turned 23, so I try and stay going while I can. I can def relate to the drunken feeling though, good way to explain it!

Yes there are other to do it but I enjoy being active and honestly can not sit still! I just don't enjoy the after effects.

For the past two weeks I've been having rough time. I constantly feel just all around blahish. I sleep constantly as at work I am getting dizzy and woozy spells but not passing out. My vison has been very blurry even with my contacts in. I feel like I'm gasping for air and the headaches are horrendous. I'm moody and ill and snap very easily. I work Monday through Thursday 4 hours and go to school Monday and Wednesday for two hours. This past weekend I did not slow down. I spent all day Friday standing at the courthouse for a License renewal and then did not sleep food and started all over agin in early Saturday working out, tanning, and shopping with my mom and then went to your a wedding venue. When we came home our elderly dog had passed and so we had to deal with that and I didn't sit down to nearly 8pm. Sunday morning I got up early from not sleeping well due to the previous nights sadness. I cranked the backpack blower and worked in the yard and the. Spent an hour in Costco which resulting in picking up a 30lb bag of dog food and a 20lb bag of dirt. I feel like I just can not recover or get rested. Is ther such thing as overdoing with this "disease"?