RichGotsPots

I found kedbumin in 2011 for use in hypovolemia hmmmm but a side effect is tachy..

Biologics is a broad area of medicine. Here is a cool link where they list all the approved biologic meds by year of approval. http://www.fda.gov/BiologicsBloodVaccines/DevelopmentApprovalProcess/BiologicalApprovalsbyYear/ucm242930.htm Jangle, which meds are u specifically referring to?

I get this, I just load up on the deodorant... Some ppl wear cooling vests, but I'm sensitive to cold too.. I just try to also drink a lot of cold water.. It's not easy to get but if you have a juicer celery juice helps a ton and also coconut water..

I Take 15 mg of zinc every 3 hours all day to boost my immune. B12 is good vitamin d is good, oregeno oil, spirulina,garlic... Sprouts, fresh juices from a juicer, especially tangerines... Wheat grass too.

I wish my standing was 90-100! Mine is 130-145

Sounds like the breathing technique Ive been using. I started it because of dr Stewart's theory on hyperventilation. I know now I don't have this but the way they treat this is by doing this type of breathing for 5-10 minutes 2-3x a day.. Jangles it takes about 2 weeks for it to work, so don't expect miracles right away.. Jangle- why did you start taking losartan in the 1st place? Haven't heard many trying it...

Why whenever I find a cool med it's not available in the us? I.e. invibradine ugh

* part out

Zap- I noticed the same thing about ginko, they separate a pat out of ginko and concentrate it so not sure how affective regular ginko is in comparison...

here's an idea that will not go anywhere lol what if it's not just the level of catecholamines but the sensitivity we have to them being dysfunctional..its not going to go anywhere because no one is going to look under the surface...

I think it matter for treatment because some of these pots meds are stimulants. If I have high adrenaline then stimulation isnt what I need I would think and it would also explain some sensitivities to certain meds. In the ER they once gave me percocet and it was such a yucky feeling like I never felt before. They said that was a typical reaction but something tells me it's not..

No idea..

you got a great point Dana! I wish I could just know and stop the researching too!!! For right now though I would settle for a miracle drug that would at least allow me to work...

I would try an allergist for the singulair. Also I have found this new thing called Platelet activating factors (PAF), very similar to mast cell issues.. wiki it, there is an antihistamine they list on there to try. I dont know if its over the counter yet..

Anoj- Looks like your NE is normal on HUT but high supine, that may be interesting to pursue, if you pm me I can talk to you about it more.. I'm not sure what a spike in epi means or what level is high but my epi was only 80 something... None of those treatments are for hyperadrenic just general pots... Rama- sounds like you are hitting on one of my first pots theories when I first came on the board. I thought BP issues might be selective to different organs/areas in the body. Sounds like you are saying these NET issues are selective. But this do they even have a test that can test catecholamines in different areas selectively? I think there maybe actually... That's why i think everyone is getting affected in different ways by all of these pots meds because most are systemic and not selective..

I'm looking into places that biopsy muscle tissue to look for deeper answers..

got my results back and i dont have it..

Has anyone heard of it or better yet taken it? How was it? http://en.wikipedia.org/wiki/Rupatadine

http://10thintcatsymp.org/ Looks like patients can go and there are all pots docs as speakers..

Or exciting right lol ugh

I would have just growled at her grrrrrrrr

Mine too just today phew!

Is it possible my NE in my chest is worse than systemically?

That just confuses more then :-/ how do I know if I should use hyperadrenic type of meds then?

Anoj- I think the number counts that's the point. I actually don't know my supine ne number though, maybe I will take a look at my 24 hour urine test to see, but had that in November.. Did you try treatment not directed at hyperadrenic 1st or did you wait until after that test and then start treatment? Sounds like you need a new doc...