JenniferInOhio Posted September 17, 2007 Report Share Posted September 17, 2007 What changes do you see in your POTS for the better or worse during this time?My heart rate is up. Do you think the changes we get during this time is due to hormones or blood loss? Quote Link to comment Share on other sites More sharing options...
Ernie Posted September 17, 2007 Report Share Posted September 17, 2007 Hi,Mine is moslty hormonal. Makes me faint all the time. Quote Link to comment Share on other sites More sharing options...
maryfw Posted September 17, 2007 Report Share Posted September 17, 2007 Mine is definitely worse during that time of the month. More tired, more palpitations and more everythingmary Quote Link to comment Share on other sites More sharing options...
MomtoGiuliana Posted September 17, 2007 Report Share Posted September 17, 2007 The explanation I have heard is that blood volume drops as progesterone rises. Most POTS patients feel more poorly in the days leading up to menses. I think if you have heavy periods that could make you feel poorly too! I know after a particularly heavy period I can feel badly for a day or two. Quote Link to comment Share on other sites More sharing options...
BEE Posted September 17, 2007 Report Share Posted September 17, 2007 Ditto on what both parties said..few days leadingup to period and then once my flow starts getting going I am absolutely weak and exhausted..with the heart flip floppys..HUGS..B Quote Link to comment Share on other sites More sharing options...
ladyt Posted September 17, 2007 Report Share Posted September 17, 2007 hey..mine was so bad that I whent on pills to stopp them.. Where good desision for me.. Quote Link to comment Share on other sites More sharing options...
lloppyllama Posted September 17, 2007 Report Share Posted September 17, 2007 I used to feel really bad during my period and around it, but now that i have started midodrine, it is the 2 weeks before my period that i feel the worst...during my period it is worse than it used to be, but it my symptoms get extra bad and intense the 2 weeks before. So i guess that would be hormones, plus my periods are very light usually so im not losing too much blood, which is good since we all need more! Quote Link to comment Share on other sites More sharing options...
Rachel Posted September 18, 2007 Report Share Posted September 18, 2007 Jennifer,My dysautonomia used to flare up for the week before and week of my period. Not fun! It basically put me on the couch all day. I just ended up totally exhausted and weak. For me it is the hormone changes. I do much better with steady hormones. I'm now on continuous birth control and have a period about 4 times a year. I still crash hard for the week of my period, but at least it is no longer 2 weeks out of every month. Plus, this way I can plan when I'm going to crash. It makes it much easier to get the extra help that I need for the week, or put off my period for another week if I need to.Rachel Quote Link to comment Share on other sites More sharing options...
preacherswife Posted September 18, 2007 Report Share Posted September 18, 2007 I had horribly heavy periods, so I felt just awful all around my period. I now have a Mirena IUCD, so I don't have periods anymore. It has made a huge difference just in that I don't have to dread my period. Quote Link to comment Share on other sites More sharing options...
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