Dizzy Dame Posted January 2, 2007 Report Share Posted January 2, 2007 Hi Guys,I just wanted to give another update, because I know I'm not the only one on this board taking antibiotics for suspected/confirmed lyme disease, and we need all the "success" stories we can get.The first month of antibiotics was brutal. All of my POTS symptoms went out of control, and I spent the last 2 weeks of December in bed, barely able to get to the bathroom and back. But the clouds have parted, at least a little. Over the past few days, I've been creeping back up to my baseline, and I've already noticed some improvements from before treatment: I'm having an easier time sleeping, and my joint pain seems to be lessening. These may seem minor, but after that month of h***, any sign that the antibiotics are working is a welcome one. I still have a long way to go...probably 6-12 months more of antibiotics, but I really think I'm on the road to recovery. And again, I think if any of you haven't figured out the cause of your POTS, and may have been exposed to ticks, you should consider getting evaluated by a lyme-knowledgable doctor. Lyme can cause POTS and is curable in most cases. Plus, a person can test negative for lyme and still have it, that's why it's so important to see a physician with experience in infectious diseases. Quote Link to comment Share on other sites More sharing options...
Rachel Posted January 2, 2007 Report Share Posted January 2, 2007 Thanks for the update, Lauren. Glad to hear you are creeping back up to baseline. I hope you continue to find improvement in your symptoms. Rachel Quote Link to comment Share on other sites More sharing options...
yogini Posted January 2, 2007 Report Share Posted January 2, 2007 Lauren,It's great to hear that your Lyme treatment is working. I look forward to hearing your stories of improvement!-Rita Quote Link to comment Share on other sites More sharing options...
AJVDK Posted January 3, 2007 Report Share Posted January 3, 2007 I am glad to hear your update. I hope thing keep getting better! Plus it gives me hope! Quote Link to comment Share on other sites More sharing options...
Radha Posted January 3, 2007 Report Share Posted January 3, 2007 i am unable to treat my lyme due to severe herx that i cannot tolerate even on a tiny dose of abx, did u take anything to help decrease the herx? glad you are improving, radha Quote Link to comment Share on other sites More sharing options...
Dizzy Dame Posted January 3, 2007 Author Report Share Posted January 3, 2007 Hi Rhada,I took lemon juice. 1/4 cup fresh-squeezed every morning. It's supposed to help the liver detoxify the blood. Also, I've been taking undenatured wheat germ. It's another suppliment that's supposed to increase certain kinds of antibodies in the liver, to help sift toxins. If you're interested in the wheat germ, PM me and I'll send you some scholarly articles on it. Have you spoken to your doctor about getting a saline IV drip for when you start antibiotics? I know a boy who has horrible herxes and uses a drip to help lessen their severity. Apparantly it helps. But mostly I just had to weather through the really rough parts. There were several days where I wanted to stop treatment because I couldn't handle the symptoms, but I kept at it, and eventually made it out the other side. I hope you can figure somthing out so you can take antibiotics! -Lauren Quote Link to comment Share on other sites More sharing options...
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