Help Me Please Im Loosing Hope Today Was Very Bad

[nikigrl8883]

hi well i went to the doctor today to have blood work done for my hormonal doctor in 5 days...as usual i felt like i was floating on air as i was walking in (not in a good way either) i felt like i could faint anytime,, i forced myself in and sat down and waited to have it done as i was sitting there i developed severe anxiety becasue i feel like fainting i hate the feeling so much and it makes me so nervous that i literally have to move some part of my body mostly my leg... i was very unsettled finally the nurse called on me when she took blood i really thought i was going down i didnt say anyhting but she obviously noticed becasue she asked me if i was ok i just told her i always feel like this! becasue its true in my case i always do it just gets more pronounced at certain times...i tried to get out of there as fast as i could,,,for the record, blood work and the doctor has never made me nervous before even as a child i wasnt scared at all...so i know its not becasue im afraid its becasue i feel so crappy i dont know what to do anymore seems like no one can help me ever and get to the bottom of this feeling....ive had anxiety since april when i got ill/ bad anxiety,,, i think its becasue my body doesnt know to react to the illness or somthign is effecting that part of me...i came home and cried i cant take this anymore i could handle it if i always didnt feel like fainting and off balance and like theres somthing wrong with my head or heart but somthing is so wrong i just know it ive had so many tests and blood work up the wazzooo nothing comes back bad besides little things nothing to explain this at all...i always feel like my throat and going down is tightning up ...this is gross but when i burp now at all i get that bile crap in my throat..and im not overwieght at all and i dont eat bad i dont think i dont drink soda...my main complaint is defenatly feeling lightheaded and floating drunk all day long that is disabling me more than anything if it wasnt for that id be able to do some things im sure of it...i need some help , some advice some comforting words im desprate now and severly depressed i cant imagine living like this forever i just cant anything but that lightheaded crap i can take

[futurehope]

I'm so sorry you are feeling this way. I understand how difficult it is to do everything including going to a doctor or getting blood drawn.

My suggestion is be up front with the people at the lab and at the doctor's office, before hand, if necessary.

Tell them your situation and how you would feel a lot more comfortable getting and being there if there was a way they could let you recline.

That should go a long way in easing your anxiety about the situation.

Before hand maybe you could load up on salt (via taking baking soda in water) and on fluids. That should help.

Is there someone who can go with you until you feel more comforatble with your situation?

Have you been diagnosed yet? Are you on any meds? I'm sure things will not stay the same forever, and a doctor will give you something to stop some of the lightheadedness.

Please, don't lose hope. People have improved once they are being treated.

[nikigrl8883]

I'm so sorry you are feeling this way. I understand how difficult it is to do everything including going to a doctor or getting blood drawn.

My suggestion is be up front with the people at the lab and at the doctor's office, before hand, if necessary.

Tell them your situation and how you would feel a lot more comfortable getting and being there if there was a way they could let you recline.

That should go a long way in easing your anxiety about the situation.

Before hand maybe you could load up on salt (via taking baking soda in water) and on fluids. That should help.

Is there someone who can go with you until you feel more comforatble with your situation?

Have you been diagnosed yet? Are you on any meds? I'm sure things will not stay the same forever, and a doctor will give you something to stop some of the lightheadedness.

Please, don't lose hope. People have improved once they are being treated.

yes the problem is i have been diagnosed with Pots thats it so far,, i am taking atentnolol for it a half of one a day i also take yasim birthcontrol pills for ovarian cysts and a thick lining ...i dont know what to do the atennolol doesnt help the lgihtheadness i also felt it before i took the atenolol ....!!!! why do i have that ive had mris transcranial doppler echocardiogram ekgs nothing everytime but yet i feel like death

[DSM3KIDZ]

My heart goes out to you. The lightheaded, off balance drunk feeling *****. I can relate to how your feeling (I think) but mine is not constant. It did just start happening after being on treatment for the past 6 months so I don't know if things are getting worse which scares the crap out of me.

I also understand the anxiety part. I am now having small anxiety attacks because of these lightheaded episodes that scare the crap out of me.

Maybe you should try a different medication. I'm currently trialing an SSRI to see if it helps with these episodes. So far no success but it's only been a few weeks.

How about trying Flornief?

Hang in there I know how hopeless and depressed your feeling I pray things will get easier for you soon. If you ever need a shoulder to lean on you can pm me.

Dayna

[nikigrl8883]

My heart goes out to you. The lightheaded, off balance drunk feeling *****. I can relate to how your feeling (I think) but mine is not constant. It did just start happening after being on treatment for the past 6 months so I don't know if things are getting worse which scares the crap out of me.

I also understand the anxiety part. I am now having small anxiety attacks because of these lightheaded episodes that scare the crap out of me.

Maybe you should try a different medication. I'm currently trialing an SSRI to see if it helps with these episodes. So far no success but it's only been a few weeks.

How about trying Flornief?

Hang in there I know how hopeless and depressed your feeling I pray things will get easier for you soon. If you ever need a shoulder to lean on you can pm me.

Dayna

i actuallu have florinef from a previous doctor never tried it though its actually called fludrocortisone are they the same? dont you have to take salt pills with it? my other doctor who perscribed the atenolol told me not to take that i dont know! maybe i should take somthing for anixety too maybe nothing i dont know what to do i wonder whats casuing the lightheadeness if its an underlying thing///ive already had many tests though for things that would cause that all negative

[futurehope]

I'm sure you are aware by now that lightheadedness may be because of POTS.

The fludrocort is the generic for florinef and helps increase blood volume by helping retain salt and fluids.

Your lightheadedness is also increased if you are anxious. So it's a vicious cycle.

Maybe the athenolol is not for you and isn't doing anything. Do you have a doctor willing to work with you?

Remember, things will change for the better with the right meds.

How is your blood pressure when you are feeling lightheaded?

P.S. Hit the "Add reply" button so you won't be repeating the prior posting in your answer.

[nikigrl8883]

the atenolol helps the heart rate though alot my bp is low somtimes and nomral somtimes so i cant tell if its from that ...wha im saying is theres been plenty of times ive gone to doctors and its been ok and stil felt lightheaed since all this ya im sure being anxious makes it worse but its like all the time unless im laying in my bed completly calm ...id like to add somthing to this that i find strange....maybe you or somone else can help me out when i had my glands tested by the endocrine doctor the pituitary showed an elevated prolactin level it wasnt right.. so the doctor made me go for a pituitary mri of the gland it showed nothing substantial besides borderline enlargemnet no sign of a tumor or anyhting/ more than one doctor saw it to...when i asked the doctor she didnt know what to tell me basically she said theres not tumor visible and your thyroid gland is normal and adreneals but obviously theres a cause right? it doesnt even make sence im wondering if my pots has somthing to do with this do you know anything about that?

[futurehope]

It sounds like you did the right thing by having the endocrine tests done. Your doctors must not think there is someone from the endocrine standpoint that needs treating. They may be wrong. They may be right.

The search for answers continues. Meanwhile, you do need to increase fluids and be treated for your anxiety or you're going to drive yourself nuts.

Are you aware that sometimes doctors cannot find a cause for a person's POTS symptoms? Sometimes they can and it's treatable. Sometimes they can't and some treatments help.

Sometimes it takes longer than we like to get this all sorted out. Don't give up. Just make a decision about what you are going to do next. And do it.

Best wishes. BTW, I'm getting the impression (maybe I'm wrong) that you are frazzled beyond belief because when you compose your post, there is no punctuation. Are you frazzled? If not, I'm sorry and I don't mean to insult you.

[desiree942]

Are you seeing a POTS specialist and have you discussed an SSRI or SSNRI like lexapro or cymbalta. From my experience so much of the anxiety feelings like you described have improved greatly when I was given cymbalta. My POTS symtoms like lightheadedness and feeling shaky when standing and off balance also improved. I take it with florinef and while I am not back to normal I am a lot better than I was...functioning at a higher level. When I have very bad day I try and remember an OK day with POTS and just remind myself there are bad days and so-so days...one or two good days every few months. Depending on how long you have been on your current meds it might be time for a new set of eyes to advise you on your case and try something new.

[nikigrl8883]

yes im quite frazzeled........

[kholdefer]

Hang in there Nikigirl. I often feel very undone after any doctor's visit. How's your support system? Who makes you laugh? You need to do something, anything to take your mind off of this. Even if its something very small. When I'm really sick I feel like my entire life is my illness, and then I start to feel even worse. My grandpa always sprinkles me with "wiffle dust" this imaginary cure-all, when I'm really sick. I have a little left over. I'll send it through this message with all my hopes and prayers that you feel better soon.

Kady

[nikigrl8883]

thank you kady

that was very nice of you,, well i dont really have anyone at the moment...i am not married and dont have a bf anymore i cant work and stay home most of the time...i have my dad but he doesnt really understand...my mom i never had in my life so i cant talk to her... my crutch has always been my faith in god through my whole life...i feel lucky that i have him

[Aprilmarie52]

Im sorry that you are feeling so bad! Anxiety/panic attacks are the worst! I get them sometimes after a POTS episode. I would definately talk to your dr about an SSRI. They have helped me tremendously! Feel better soon!

[Guest dionna]

anytime i am upright i feel dizzy or lightheaded and then when i lay down i have the vertigo for a minute sometimes it will last up to 5 or 10 minutes but usually it just lasts a very short time. i have fainted about 350+ times in the past two years. i do understand you. i have had blood drawn maybe 50+ times. i was in the military so i didn't have to pay for it and they were always testing my blood for whatever. i was ordered to go to the ER a lot by my commanding officers and about half the time they drew my blood to see if i was drunk since i said that is how i felt. plust they wanted a lot of drug test ordered too. long stories. plus i had a lot of innoculations too. which they always made me ill for about a week. it was like i they had given me the flu just not the fever with it.

the point is... i know how you feel. all i can say is try to stay positive. every day is a challenge and it is another day to get stronger. the best thing i found to help me... i counted my blessings and i thought of what could be worse. i was in the hospital with the guys that got blown up in iraq. that to me could have been worse. i would much rather have pots than be missing my limbs, guts, or eyes. i also saw a lot of cancer patients while i was there. i would much rather have pots than have cancer. the guys helped me out a lot too. they always made fun of me in a good way. they were laughing at me but with me you know. it made me feel a lot better. they would say things about how they would pay a lot of money to feel goofy like i do. and they did every night! that is all they did is go out and get drunk! but we made jokes about it. they were jealous cause i got it free and they wasted their entire checks to feel like me. they would even say they went out drinking to feel drunk so i wouldn't have to feel drunk by myself. lol. they were a trip. maybe you could think of it that way?

i wish you luck. i do know that it is hard and at times i feel really down too. i just cry. it is all i can do. we all feel down at some point and really who can blame us? it is only human. it is hard having so many problems. remember that God will never put anything before you that you can not handle. thinking in the way, i feel honored that God sees me as a person who is strong enough to handle this. a lot of people i come into contact with say that there is no way they could go through what i go through everyday. yet all of here do it everyday.

i hope we have helped you in some way. take care.

dionna

[bttrflyamby1981]

I didn't get a chance to read every ones response, but I wanted to let you know that your not alone. My Dr's still aren't quite sure what's going on with me. I'm sorry your feeling like this and I know it's even worse when you don't have any answers.

(((HUGS)))

Amber