Guest malosp Posted May 3, 2006 Report Share Posted May 3, 2006 Hi everyone,Well, I know I have some form of dysautonmia but I still don't know the cause. As I told everyone earlier I have a appointment with a neurologist middle of May. I finally could take no more and made an appointment with a new doctor - internal medicine. Waiting just kills me lately - I have waited so long already. The doctor did the standard tests in the office, reflexes etc and ordered some more blood work. At least this doctor checked my reflexes, sense of touch etc. I never had one of the other doctors ever do that. Even though any trained doctor should have been able to tell that I had some form of autonomic nervous system problem from my symptoms that I have repeated and repeated for over eight months....inappropriate tachycardia, HTN?HYPO, dizziness, balance problems, arms falling asleep, extreme muscle aches etc. The new doctor also ordered an MRI (for tommorrow, I guess he didn't like some of my reflexes) before my neurologist appointment and said the neurologist would appreciate it.Still waiting for that illusive diagnosis. Thought it was B12 - still could be. So there is always the possibility of MS, CDIP (which is an autoimmune disease), some type of dysautonmia etc.It is hard to believe that this time last year I was soooo healthy and took my health for granted. I wonder how long it will take to lose that memory of great health. It is fleeting now even as I type. Life can change in an instant, and of course one doesn't realize that until it is too late sometimes. I assume there are stages of grief that we all go through when we lose our health. I hope I come to accept whatever my diagnosis is.I am so grateful to be able least read other peoples posts, and know that there are other people out there that are experiencing some of the same fears as me.Thanks for a great site. I will let everyone know what my diagnosis finally is. I feel that I will find out soon - it such a shame it could not have been sooner. I was diagnosed with everything from chronic fatique syndrome to CMV to possible endocarditis. It has been a long road. Quote Link to comment Share on other sites More sharing options...
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