Hey, I'm in the same boat with you. I'm going to a big multi-specialty place in mid-May with the hope of finding something out, and not being told that I'm having 7 day long "panic attacks". Just to have someone say "you have dysautonomia" would be helpful. I think there are a lot of leads in my case. I have a chiari malformation and weird environmental and food allergy issues. But it seems like I can't find anyone qualified to help me, or willing to look harder. I don't know if they'll be able to figure it out for me or not. I'm trying not to obsess over it so much, and trying to adapt my lifestyle and attitude. I'll say one thing: this has been a personal growth experience. Anyway, I know what you're feeling. It's good to know we're not alone.
