Lulu Posted March 22, 2006 Report Share Posted March 22, 2006 Ok, y'all:CFS &/or Dysautonomia????So are they the same or different or related in some way medical science hasn't figured out? I read Sophia3's posts about it & I'm just more confused. For YEARS in my twenties, before I was diagnosed with NCS and later POTS, I kept trying to tell my doc I thought I had CFS. I had read about it and had all the symptoms. My doctor at the time was great, but he wouldn't "settle" for that dx and had me do LOTS of different testing and then sent me to an infectious disease specialist, who then sent me for TTT. And shazam! I have dysautonomia and this explains my symptoms.Now, here's why I'm confused. My then-doc said that CFS was like a 'wastebasket" dx. That it really didn't explain why all these ppl had all these sxs, just grouped them together. When I found out I had a form of dyautonomia (and how long it took me to get that dx and be taken seriously) I kinda understood why CFS was thought of that way by this doc. I just thought that folks w/ CFS really had some form of dysautonomia and hadn't been dx'd properly/thoroughly yet. Now, I'm unclear about this, hoping someone knows. Sorry to be so dense about this. Peace and light,Lulu Quote Link to comment Share on other sites More sharing options...
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