Chrissy Posted November 10, 2005 Report Share Posted November 10, 2005 HI. I have had POTS for a year (confirmed) and had no idea that all the pain I get in my joints and bones was related to this illness. My ribs get extremely painful and my ankles sometimes feel like they will snap with my next step. I called and asked about it today and found out it is extremely common in POTS patients. Please share your experience with this kind of pain so I can compare to what happens to me. Thank you! Quote Link to comment Share on other sites More sharing options...
morgan617 Posted November 10, 2005 Report Share Posted November 10, 2005 Hi Chrissy, sorry about your pain.I feel like my ankles are constantly sprained, which makes walking wonderful. I have lots of aches and pains too, like my ribs have detached. It's all pretty strange. I find that one advil will help, but it does make me dizzier, so I have to decide which is worse. I'm not supposed to take it anyway, but somedays, it gets top honors. I wonder if there is an over lapping fibro thing, but who knows. morgan Quote Link to comment Share on other sites More sharing options...
Dizzy Dame Posted November 10, 2005 Report Share Posted November 10, 2005 Hi Chrissy, Pain was actually my first symptom ( I was diagnosed with Fibromyalgia in 2002 after 4 years of chronic pain-- it started when I was 16). I have pain almost all the time, mostly in my legs (thigh area) and shoulders, but I also have frequent muscular chest pain. Sometimes it's just a dull ache which I would compare to the ache one gets the day after working out too much (if ya know what I mean). Other times it feels like my bones are breaking/broken and it takes all of my strength to keep from screaming (at these times I usually lay in bed moaning and generally feeling sorry for myself). I used to have a perscription for Percaset (spelling?) and Neurontin for the pain, but since getting POTS, my body is unable to handle both medications. Now I just weather through the pain...I guess I'm finally getting used to it after nearly 8 years. Hope you find some answers and some treatment - Lauren Quote Link to comment Share on other sites More sharing options...
Ernie Posted November 10, 2005 Report Share Posted November 10, 2005 Hi,I have muscle pain, joint pain and bone pain since I was a young child. I don't remember being pain free.The pain lessens with BB and K+. Quote Link to comment Share on other sites More sharing options...
MightyMouse Posted November 10, 2005 Report Share Posted November 10, 2005 I'm with Ernie. I can't remember a time when I was free of pain, and I'm about to turn 41.Nina Quote Link to comment Share on other sites More sharing options...
hockeykid Posted November 11, 2005 Report Share Posted November 11, 2005 I used to be very active and after many practices and games I would end up limping off the field. When I was a young kid I had lots of ankle, foot, wrist and knee pain. Soccer and running really got them going after a hard practice. I did therapy one summer for knee pain but it didn't help. Quote Link to comment Share on other sites More sharing options...
dizzygirl Posted November 11, 2005 Report Share Posted November 11, 2005 I can add a "me too".. I can not rememebr not having some kind of bone/joint/ or muscular pain.. Now if there were a magic pill to take away the mysterious pain.. along with the pots.. that would be great!! Quote Link to comment Share on other sites More sharing options...
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