jennymac Posted October 31, 2005 Report Share Posted October 31, 2005 I am just finding out about all the symptoms of POTS and wondering if all those years of heavy sweats, migraines, and lightheadedness (that I thought was low blood sugar) were really POTS- anyone else get migraines and what does anyone know of the relationship? Quote Link to comment Share on other sites More sharing options...
Ernie Posted October 31, 2005 Report Share Posted October 31, 2005 Hi,I was told I have migraines but I did not officially get the specialist's report yet. I want to see it black on white before saying it for sure. I am still in the testing process. Quote Link to comment Share on other sites More sharing options...
persephone Posted November 1, 2005 Report Share Posted November 1, 2005 Oh yes I definitely get migraine and pots. I have familial hemiplegic migraines too, which I never had before pots. Quote Link to comment Share on other sites More sharing options...
taylortotmom Posted November 1, 2005 Report Share Posted November 1, 2005 I have a history of not only classic migraine but atypical complicated migraines that may have contributed to a small stroke I had three years ago. The realtionship to dysautonomia with me is the correaltion between MVP and migraines which is very strong. It my opinion my erratic heartrate and low blood pressure are contributing factors that disrupt oxygen flow to my brain thus resulting in the migraine. This was also the consensus of my former neurologist I saw for the migraines.CarmenPS Migraines are discussed frequently on this forum so a search might help you get some answers as well. Quote Link to comment Share on other sites More sharing options...
JenniferInOhio Posted November 1, 2005 Report Share Posted November 1, 2005 Hi ~ I have migraines with visual aura. The aura lasts about 20 minutes with a headache soon following. My first migraine was about 7 years ago. Although I was diagnosed with POTS this summer, I don't know how long I've had it. Quote Link to comment Share on other sites More sharing options...
steph37822 Posted November 1, 2005 Report Share Posted November 1, 2005 oops Quote Link to comment Share on other sites More sharing options...
OCsunshine Posted November 1, 2005 Report Share Posted November 1, 2005 Oh yes, a major migraine sufferer right here. *Waves hand in the air*Mine last for about 24-36 hours, I have to lay in a quiet and completely dark room. Severe pain. I pack my head in ice (literally) and often end up vomitting because the pain is so intense. Recovery takes a few days.I don't know if my NMH causes the migraines specifically, but I have a CFIDS diagnosis and that is listed as a major symptom (along with a thousand other things). Quote Link to comment Share on other sites More sharing options...
Stace915 Posted November 1, 2005 Report Share Posted November 1, 2005 Not only do I get migraines.. I have one as i sit here typing. Before I was diagnosed with POTs I went to a neuroligist who ran every test under the sun and said he couldn't find a cause, now that I finally found a hypotension specialist who knows what he is doing he said that the pots, hot flashes and migraines all go hand in hand... there are so many unaswered questions about this illness it makes me crazy sometimes! Quote Link to comment Share on other sites More sharing options...
Ianankatie Posted November 2, 2005 Report Share Posted November 2, 2005 I suffered migranes for years but when I was diagnosed with NCS my cardio told me that I had never had a migrane, every episode that I had thought was a migrane (and been treated for by other doctors as migranes for years) was actually an episode of pre syncope. I don't know what to believe but I know that I can't take migraleave anymore (UK migrane treatment) so I suppose it doesn't really matter what they are called we just have to work through them!!!What ever it is I can completely sympethise with you- its horrible- I hope you are feeling better really quickely!!Best wishesKatie x Quote Link to comment Share on other sites More sharing options...
ramakentesh Posted November 6, 2005 Report Share Posted November 6, 2005 according to my doctor people with POTS suffer a particular type of migraine activity that actually constricts the arteries in the brain causing symtpoms similar to those experienced during the onest of a normal migraine without the headache. Quote Link to comment Share on other sites More sharing options...
Evie Posted November 6, 2005 Report Share Posted November 6, 2005 Darn migranes, sorry to hear you suffer them. I, like alot of OI sufferers get migranes, especially when stressed. Last semester during exam period i kept seeing flashing lights when i was trying to sleep, i thought i should call a electrician then my boyfriend told me he was not seeing anything and the lamp was not plugged in. I was a tad freaked out then found out it was a sign of classic migrane. I did have a sore head but did not realise they could impact on sight so greatly. Also sometiems when i turn my head or stand up i will get a sudden pain in my skull like i have been hit. Othertimes i wont have pain but everything will be blurry and i will feel quite lightheaded. Other times the pain kicks in and then i think i get a rush of seratonin as it makes me feel quite high and i just giggle and giggle .... quite embarrasing if in public. As far as i am aware all are related to OI conditions and fairly common (not sure about the giggling though eek). Sorry for the long response ... just wanted to cover all bases of my experience.Not sure about the relationship, however as my condition has improved so have my migranes so hopefully thats a good sign and means they are linked in cause.Im pretty sure you can put the heavy sweats in the POTS basket too! only danger is that you can put so much in that you may miss signals for other conditions. So of course get it checked out just in case Quote Link to comment Share on other sites More sharing options...
Guest Mary from OH Posted November 7, 2005 Report Share Posted November 7, 2005 Migraines and POTS are comorbid disorders. As others have mentioned, you will see them frequently discussed on the forum. Chronic Fatique Syndrome or Fibromyalgia is also another comorbid disorder that can occur with POTS. I have both.I suffer from Intractable Migraines. This (in simple terms) means that I suffer from them almost every day. I am now on time-released morphine among a BUNCH of other preventatives. It is VITAL to have your migraines treated by a specifically trained headached neurologist so that you get the best care available.Any migraine that lasts over 72 hrs without a break in pain puts you at high risk for a stroke!!! This is an emergency conditon which is called status migrainosis and needs to be treated at once!! Please make sure your migraines are being treated properly. They are nothing to mess around with! Quote Link to comment Share on other sites More sharing options...
Sunfish Posted November 8, 2005 Report Share Posted November 8, 2005 another "me too" here. although in the realm of the migrainers i don't have them as often or as severely as many.i've had lots of ups & downs during my years of dysautonomia fun but three fairly major crashes/downfalls...the initial one, which brought my NCS diagnosis, the middle one where my symptoms - to some degree - have been much more present since, and this past year where i've had a lot more multi-system involvement. for me migraines entered the picture during the middle crash. and they tend to come on for me when i've been upright too much, expending more physically, etc. there's certainly a direct correlation for me. melissa Quote Link to comment Share on other sites More sharing options...
MightyMouse Posted November 8, 2005 Report Share Posted November 8, 2005 Yep, me also. I get them almost every month two days before my period. They last anywhere from a few hours to my worst one, which was 4 months long and was devastating to cope with. Currently, I see a neurologist and pain management group, which help to keep me as patched up as possible. I'm currently trialing several different meds and am supposed to report back in a month or two to decide which one to go with long term.Nina Quote Link to comment Share on other sites More sharing options...
lalalisa Posted November 8, 2005 Report Share Posted November 8, 2005 Hello,I also get migraines with visual aura (the aura is always especially scary if I'm driving or out somewhere). Thankfully the actual headache I get isn't as bad as most people.I've been getting migraines for about 6 years now and the POTS/CFS started 3 years ago. Lisa Quote Link to comment Share on other sites More sharing options...
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