Guest Finrussak Posted September 7, 2005 Report Share Posted September 7, 2005 I have been to **** and back so many times. I have just spent hours ( in tiny 10-15 minute doses...like many, unable to be upright at my pc) reviewing your posts. I finally feel like I am NOT alone or crazy or "lazy". (I am awash in greatful tears and unfortunately the emotions have provoked a minor 'episode'...but its one I can almost welcome due to the RELIEF!!!)My own sister has repeatedly told me that I am still "ill" because I truly dont want to get well...if I TRIED hard enough or FOUGHT the symptoms ( i.e. ignored them) Id be fine. She even called me selfish for all of the trips to specialists, and ERs,needing home health aides etc . She even had the audacity to call my estranged husband who is finally trying to be a little more supportive financially and physically -driving to ERs etc...that he shouldnt have to "deal" with me becasue Im not trying to get well...and he should put me in a nursing home and walk away!!!! ( which totally upset my 2 older kids, now 22 and 20 away at college) AND for the past 18 months my 16 y o is also suffering. We both have very bad lyme and other tick borne illnesses and I myself have had these weird and funky symptoms you all describe so well...and I finally got to see Dr Grubb this past June and I am NOT crazy or lazy- I have the unfortunate panoply of Joint Hypermobility plus OI/POTS due to most likely the multiple tick infections and autoimmune components. Since I was infected near end of pregnancy with the 16 yo and since he was rebitten age 5 and incompletely treated; he has relapsed bad...we are both bedbound etc. Last few months he is showing all the signs of OI/POTS. Now, we both also have other medical probs as well;. Curuious thing is he has been called mild Chiari and My own MRI brain last year for first time showed a SHIFT of my hindbrain to be called borderline Chiari too!!!-- noticed a few posts mentioning this...Anyway for now I want to say THANK YOU and GOD BLESS all of you who share and support each other and if so allowed may I also join your group???So many questions...so little time...especially since the LYME BRAIN ( brain fog in addition to the POTS fog) comes and goes...may all of you have a better day!!! Quote Link to comment Share on other sites More sharing options...
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