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Pistol

POTS is like cabin fever

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So, with social distancing we now have a very accurate way to explain what POTS is like to people who have no clue: 

- we cannot leave the house, unless it is for necessary things such as food or doctors. 

- we cannot exercise unless it is something we can do in our home. 

- we often need to retreat to a quiet room to calm down ( due to simple things as conversations or other "stimulating" activities ). 

- dealing with the family can be overwhelming and stressful ( sad to say but true ). 

- there is only so much we can do to combat inactivity and boredom. 

- it is easy to become irritated at simple things and lash out at others

- monopoly can cause our BP to spike 

What other examples have you encountered?

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All this is true! I was saying the exact same things to my mum today 😂

It's just not a shock to the system to me as this is how I've been living anyway. I'm just watching people around me falling apart already. 

One good thing for me is I got my children home with me and don't have to be crying every morning because I can't take them to school anymore.

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I agree with you and I was thinking this week that many of us with POTS who have experienced months of being homebound are probably better adjusted to this than many in the general public.  We have learned to accept limitations and uncertainty in our lives whether for long stretches in the past, occasional flare ups, or our current situation.  We may be faring better psychologically than many others for this reason.  I think many of us are already taking measures to avoid illness too, so that is already second nature to us (washing hands, maintaining distance).

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DINET's VP, Chelsea Goldstein posted this question to the dysautonomia community to see what tips people came up with to explain to the "healthy" world, what  we have discovered during our years of frequent stay-at-home time and isolation.

1769406373_2020.03V2COVID-19tips_CGoldstein.thumb.png.6ffff55c8f6bd107de8d53bb210372b5.png

2020.03 V2 COVID-19 tips_CGoldstein.pdf

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