Jump to content


  • Posts

  • Joined

  • Last visited

Recent Profile Visitors

The recent visitors block is disabled and is not being shown to other users.

TigerLily's Achievements


Newbie (1/14)



  1. I just orderd a heating pad to wrap my feet with. They are getting so cold they hurt.
  2. Oh you have the red ear thing as well?
  3. Do you ever get clear nasal drip with your attacks?
  4. Oh d*** this sounds exactly like me:( Who diagnosis this?
  5. Yes they gave me IV fluids. And everything normalized after that. I have had episodes at home though. My husband just told me my ears was fire engine red. This is an issue that started in 2008. Just my left ear would turn red. And one day it just stopped. Well now that's back. He noticed so I went and took my blood pressure. 128/100. So now I know my red ear directly correlates with my blood pressure going up. A doctor once told me yrars ago the red ear thing is called Erythromelalgia. I sometimes got it in my feet too. My neurologist believes I have small fiber neuropathy. She did say my white matter disease os stable so there's some good news:)
  6. I am not sure what happened but I sm greatful for the time I had where I felt totally normal. The last week has been awful. All of my symptoms are back. I was in the ER again with a BP of 163/ 118 and a heart rate in the 150s. My digestive system is on the fritz again as well. And I swear my left foot feels like it's hooked up to a tens unit:( Im actually seeing my neurologist tomorrow.
  7. A while back I may have wrote about my coat hanger pain. We things got worse and worse and my normally painless vestibular migraine turned into very painful migraines. So bad I was throwing up. I ended up seeing my old doctor because the ER notified them I was in. He had me come in and I told him that my head had been aching for a while and my arms were going numb. I thought I had a punched nerve or nerves in my neck because my arms kept going numb. On a whim he started me in Gabapentin. And holy crap what a difference it has made. My occipital neuralgia is gone. Vestibular migraine manageable. I have started sweating again and my hair has stopped falling out. My coat hanger pain is way better and I have not had near as much OI. My memory and attention are considerably better and I have not had derealization or my alice in the wonderland episodes but maybe 3 times in the last month. I can't explain why this drug has worked so well but it has. Edit: I did post about starting this medication a month ago.
  8. I had such a headache I ended up in the ER throwing up in extreme pain. I have an issue with my arms going numb periodically but lately it been all the time. Doc says I have bilateral cervical radiculopathy and the spasm in my neck and shoulders is quite severe. Im wondering if this could be the root cause of my issues. I will be having a nerve conduction study at my neurologists office soon. My doc put me on gabapentin for now and I only took it once last night and this morning my muscles were cool to the touch and not spasming. I guess I did not realize how bad this has gotten.
  9. I actually got it tonight pretty bad. It's just the weirdest thing. I first noticed it in 2008. I could go years without it happening then boom. I sorta wonder if it's a neck injury thing because shortly after it started I started getting bad neck pain and doc told me it was occipital neuralgia left side and pretty sure I have a pinched nerve in my cervical spine on the left side.
  10. I just got my test results back from my gastric emptying study. All of my stomach troubles are actually caused by gastroparisis:(
  11. I get this from time to time over the years. It's just my left ear. Turns bright red and burns and gets very hot. Kinda thinking it might be related.
  12. I have this head wooshing. Especially when I bend over or turn my head to side in an extreme way.
  13. Adrenaline rushes is what I first called my episodes. I have had so many that they no longer cause me the complete panic attack they used to cause. If you find any help for this I would love to know about it.
  14. Yes. I used to have it in my legs especially at night. But then i got it in my torso. Goes right down the middle of me and feels like a low electrical current. It still comes and goes but for a while i thought it would just stay forever.
  15. Your attacks sound a lot like how I wake up just about every morning:( My stomach on fire. Hard heart beats. Usually when I wake up with it my BP is really low and it gradually goes up. I wonder if my BP goes really low and suddenly my body kicks in to bring it up and it goes into overdrive.
  • Create New...