Nin Posted March 20, 2020 Report Share Posted March 20, 2020 I find after I drink a cup of coffee in the morning I feel better. I know I wouldn't if I kept drinking throughout the day, I have another one around 3pm and again feel better. I thought coffee would make you feel worse. I'm thinking maybe my problems are more brain related like a leak as caffeine helps, i have had brain trauma off the back of problems with both ears. Hopefully having MRI Saturday but if they don't put dye through I don't think they would see a leak. Quote Link to comment Share on other sites More sharing options...
Guest KiminOrlando Posted March 20, 2020 Report Share Posted March 20, 2020 Coffee helps me. It doesn't make sense to me, but it works. I would think it would over stimulate, but it doesn't. Quote Link to comment Share on other sites More sharing options...
Philipp Posted March 20, 2020 Report Share Posted March 20, 2020 It does help me as well. I think my problem is actually too much vasoconstriction and caffeine leads to vasodilation in the periphery Quote Link to comment Share on other sites More sharing options...
Pistol Posted March 20, 2020 Report Share Posted March 20, 2020 It helps me as well and I too suffer from excessive vasoconstriction, like @Philipp. I used to only drink one cup in the morning but actually have increased it to 3 cups over the day and it helps, oddly. Quote Link to comment Share on other sites More sharing options...
Sushi Posted March 20, 2020 Report Share Posted March 20, 2020 Helps me too—but in moderation. Perhaps because I have so much brain fog in the morning a little spike of caffeine helps. Quote Link to comment Share on other sites More sharing options...
TCP Posted March 20, 2020 Report Share Posted March 20, 2020 It doesn't help me - makes my nervous system buzz Quote Link to comment Share on other sites More sharing options...
Philipp Posted March 21, 2020 Report Share Posted March 21, 2020 Did you try any other vasodilators like losartan? Quote Link to comment Share on other sites More sharing options...
Nin Posted March 21, 2020 Author Report Share Posted March 21, 2020 No I haven't tried that. I'm not even sure what vasoconstriction or vasodilation is to be honest? Which one of those effect in a hot bath do you know? A bath make me feel terrible after. I even had a siezure after a bath the other day because I felt exhausted after it and pushed myself to keep going. Quote Link to comment Share on other sites More sharing options...
Nin Posted March 21, 2020 Author Report Share Posted March 21, 2020 What's excessively vasoconstriction? Do a bath trigger that? Baths make me feel terrible afterwards. I had a siezure the other day after a bath because I kept going and my body was telling I need to lay down. Haven't had a siezure for about 3 months. Quote Link to comment Share on other sites More sharing options...
Pistol Posted March 21, 2020 Report Share Posted March 21, 2020 9 hours ago, Nin said: I'm not even sure what vasoconstriction or vasodilation is to be honest? @Nin here is an article that explains vasoconstriction and dilation in detail: A bath would trigger vasodilation - relaxing of the blood vessels which causes a drop in BP. 9 hours ago, Nin said: . I even had a siezure after a bath the other day because I felt exhausted after it and pushed myself to keep going. I take seizures, but mine are usually caused by vasoconstriction. But both excessive vasodilation and vasoconstriction can cause reduced blood flow to the brain, which can result in seizures. If your BP drops after a bath and you push yourself to keep going the ANS sometimes will release too much adrenaline which will cause the blood vessels to constrict. In my case - and maybe yours - if this happens too fast it causes a seizure b/c no blood goes to the brain ( imagine a kinked hose - nothing goes through ). Quote Link to comment Share on other sites More sharing options...
Nin Posted March 21, 2020 Author Report Share Posted March 21, 2020 22 hours ago, Nin said: Thanks pistol. I've learnt a lot from the info you sent Quote Link to comment Share on other sites More sharing options...
cmreber Posted March 25, 2020 Report Share Posted March 25, 2020 HyperPotsie here. Coffee does help me. In fact, when I had originally seen my neurologist at the Mayo Clinic, he suggested at least a cup of coffee or caffeinated tea first thing when I get up. I do think it has to do with getting the blood pressure up. I have noticed a pretty big difference on the rare occasion I don't have a chance to have coffee. I have to be careful though, if I have too much, it can lead to panic attacks, probably from over stimulating my system. So an interesting line to walk! Quote Link to comment Share on other sites More sharing options...
Derek1987 Posted April 20, 2020 Report Share Posted April 20, 2020 Drank a 7.5 oz coke and was sick all day and night and overloaded with anxiety. I used to down 200mgs of caffeine and get everything done. Now 23mg puts a hurt on me. Quote Link to comment Share on other sites More sharing options...
sitcedar Posted April 21, 2020 Report Share Posted April 21, 2020 Coffee is my brain booster, but I lessen my intake. From 3 cups to 1 cup daily. I get dizzy with too much caffeine. Quote Link to comment Share on other sites More sharing options...
misseb Posted April 21, 2020 Report Share Posted April 21, 2020 It definitely helps me. As does Diet coke and chocolate - but only if it's low in cocoa content or I mast cell flare. If my blood pressure these help get it back up. Breaks all the POTS rules but I can't get by without them. If I go a day without them I crash after food straightaway. I'm sure this is not healthy but it's keeping me on the bouncy crazy tight rope. Quote Link to comment Share on other sites More sharing options...
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