potsiebarbie Posted January 21, 2019 Report Share Posted January 21, 2019 This is probably my third ER visit in the past two weeks, and the first time they have decided to check my Magnesium which the doctor said is severely low. I'm about to get some via iv and he is making sure I follow up with nephrologist and endocrinologist. Me being the anxious wreck that I am, I am a wee bit concerned. Any ideas on what could cause it besides diet? Quote Link to comment Share on other sites More sharing options...
MomtoGiuliana Posted January 21, 2019 Report Share Posted January 21, 2019 Mine has been low when in the ER a couple of times in the past, when I was in a bad POTS flare. Quote Link to comment Share on other sites More sharing options...
misseb Posted January 21, 2019 Report Share Posted January 21, 2019 Mine is low. Sadly I'm unable to tolerate any more than 200mg of magnesium a day despite being told I have to build up to 1200mg. Anymore than 200mg and I'm a stumbling fatigued Potsy mess the next day, and waking up is a real problem. Quote Link to comment Share on other sites More sharing options...
Help4Me Posted January 21, 2019 Report Share Posted January 21, 2019 I too can only take about 200 mg of it at a time......mine is always low on blood tests as well....I don't know why.....diet or not absorbing things I guess..... Quote Link to comment Share on other sites More sharing options...
andybonse Posted January 21, 2019 Report Share Posted January 21, 2019 It's so spooky I came online to post this exact same thing. Mine has been hanging around 0.68-0.79 mmol/L - I am on Omeprazole which can cause hypomagnesemia, so I lowered my dose to see what happens, I have increased the amount of magnesium I am eating also to 400+ per day plus a magnesium supplement. Can you find out what your levels were? Any symptoms? I have also ordered a red blood cell magnesium test which is a more accurate test of the magnesium in cells! Andy Quote Link to comment Share on other sites More sharing options...
WinterSown Posted January 21, 2019 Report Share Posted January 21, 2019 I know I need a boost when I am constantly having to go lay down or curl up in the rocking chair. My energy feels like it has been sucked away and I just wish my batteries would run longer. My cardiologist told me to scrub my face with epsom salts. Just dampen your hands and pat the epsom salts with your fingers and palms (that's all you need) and then give your face a gentle scrubbing. I often do my neck and forearms too. I feel a bit more perky almost immediately and that energy boost has extended me often into the next day. And, how wonderful, my face is smooth and glowing--it's a great facial too! Beauty tips from my cardiologist. Win. Quote Link to comment Share on other sites More sharing options...
potsiebarbie Posted January 21, 2019 Author Report Share Posted January 21, 2019 1 hour ago, andybonse said: It's so spooky I came online to post this exact same thing. Mine has been hanging around 0.68-0.79 mmol/L - I am on Omeprazole which can cause hypomagnesemia, so I lowered my dose to see what happens, I have increased the amount of magnesium I am eating also to 400+ per day plus a magnesium supplement. Can you find out what your levels were? Any symptoms? I have also ordered a red blood cell magnesium test which is a more accurate test of the magnesium in cells! Andy .8 Tons of symptoms (hence the three ER visits), but idk which ones are directly related. Persistent tachycardia (even after iv fluids and hours of laying down) Chest pain (way worse than usual) S.O.B. (although this has been my most persistent and bothersome problem since pots) Back pain Muscle twitches ( including a wiggling right below the sternum in the stomach that I find extremely disturbing, but doctors seem all too unamused with it) Palpitations (of course) Nerve pain (at least I think it is nerve) And for the grand finale (newest symptom and incredibly disabling and unsettling) every time I'm walking my entire leg goes numb (starting from foot and working it's way up leg to lower back and abdomen) Quote Link to comment Share on other sites More sharing options...
potsiebarbie Posted January 21, 2019 Author Report Share Posted January 21, 2019 In breaking news! ... The ER called me and said that they were having some lab errors on the machine that ran my Magnesium. So it might not be low after all. I'm honestly really bummed cuz I was hoping this was a big ah ha moment and so many of my symptoms seemed to fit. I just had blood drawn to re-check at my PCP but the results may not be in for a couple days. I'm feeling pretty hopeless. Quote Link to comment Share on other sites More sharing options...
Guest ScottS Posted January 21, 2019 Report Share Posted January 21, 2019 An excellent food (not supplement) source of magnesium are hemp seeds (aka "hemp hearts"). I put them in my post exercise protein smoothie and whatever soup I'm having that day. Three tablespoons (30 grams) of the seeds supplies 197 mg. magnesium - 4 mg of iron, 460 mg phosphorous and .3 mg thiamin too! 4 hours ago, WinterSown said: I know I need a boost when I am constantly having to go lay down or curl up in the rocking chair. My energy feels like it has been sucked away and I just wish my batteries would run longer. My cardiologist told me to scrub my face with epsom salts. Just dampen your hands and pat the epsom salts with your fingers and palms (that's all you need) and then give your face a gentle scrubbing. I often do my neck and forearms too. I feel a bit more perky almost immediately and that energy boost has extended me often into the next day. And, how wonderful, my face is smooth and glowing--it's a great facial too! Beauty tips from my cardiologist. Win. Per https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5579607/ : "Therefore, cellular magnesium uptake is only being carried out by specific magnesium transporters and not by diffusion. However, since dead cells of the upper skin layer do not contain functional magnesium transporters, which have not yet been identified in detail, magnesium absorption may be possible only at the small area of sweat glands and hair follicles. A recently published study showed that magnesium ions can penetrate the stratum corneum in a concentration and time dependent manner which is significantly facilitated by hair follicles. However, hair follicles and sweat glands constitute only 0.1% to 1% of the skin surface. Even if a substance is absorbed in this area, the question of the clinical relevance of absorbed amounts needs to be addressed. In the study that examined the permeation of topically applied magnesium no information is given on the quantity of absorbed magnesium." By the way, I take an epsom salt bath (3 cups per full tub) every night before bed. Quote Link to comment Share on other sites More sharing options...
potsiebarbie Posted January 22, 2019 Author Report Share Posted January 22, 2019 5 hours ago, FileTrekker said: Honestly try it anyway. Blood mag levels aren’t even a good indicator. It does no harm to give it a try. I find it helps massively. I for sure will. I definitely think it helps with at least some of my issues and that's better than nada! Quote Link to comment Share on other sites More sharing options...
WinterSown Posted January 22, 2019 Report Share Posted January 22, 2019 18 hours ago, ScottS said: An excellent food (not supplement) source of magnesium are hemp seeds (aka "hemp hearts"). I put them in my post exercise protein smoothie and whatever soup I'm having that day. Three tablespoons (30 grams) of the seeds supplies 197 mg. magnesium - 4 mg of iron, 460 mg phosphorous and .3 mg thiamin too! Per https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5579607/ : "Therefore, cellular magnesium uptake is only being carried out by specific magnesium transporters and not by diffusion. However, since dead cells of the upper skin layer do not contain functional magnesium transporters, which have not yet been identified in detail, magnesium absorption may be possible only at the small area of sweat glands and hair follicles. A recently published study showed that magnesium ions can penetrate the stratum corneum in a concentration and time dependent manner which is significantly facilitated by hair follicles. However, hair follicles and sweat glands constitute only 0.1% to 1% of the skin surface. Even if a substance is absorbed in this area, the question of the clinical relevance of absorbed amounts needs to be addressed. In the study that examined the permeation of topically applied magnesium no information is given on the quantity of absorbed magnesium." By the way, I take an epsom salt bath (3 cups per full tub) every night before bed. I know this white paper 😞 This about Magnesium Oil which isn't even an oil. Your skin is better at repelling than absorbing, a spritzing is not going to do it enough to be noticed. Ingesting magnesium in food or supplement form is going to give you a better boost that a few spritzes of Magnesium Oil. Obviously, scrubbing with epsom salts barely dilutes the strength and at such high concentration what is absorbed is beneficial. Same for the bath, you are soaking for a prolonged period of time up to your neck--it's greater exposure with greater length of time. It helps too. And a nice warm soak is also good for the soul. Quote Link to comment Share on other sites More sharing options...
Guest ScottS Posted January 23, 2019 Report Share Posted January 23, 2019 On 1/22/2019 at 9:56 AM, WinterSown said: I know this white paper 😞 This about Magnesium Oil which isn't even an oil. Your skin is better at repelling than absorbing, a spritzing is not going to do it enough to be noticed. Ingesting magnesium in food or supplement form is going to give you a better boost that a few spritzes of Magnesium Oil. Obviously, scrubbing with epsom salts barely dilutes the strength and at such high concentration what is absorbed is beneficial. Same for the bath, you are soaking for a prolonged period of time up to your neck--it's greater exposure with greater length of time. It helps too. And a nice warm soak is also good for the soul. I just thought it interesting that our skin has "functional magnesium transporters". Who knew? (I didn't.) Quote Link to comment Share on other sites More sharing options...
andybonse Posted January 23, 2019 Report Share Posted January 23, 2019 I'm having an RBC magnesium test tomorrow, so will see what that shows with my low end serum magnesium! I bought some Magnesium Citrate which is 400mg, but 16% is elemental magnesium meaning 64mg of actual magnesium. Seems tiny and that's taking 2 tablets of the stuff! I've been eating over 400mg per day in food. Anyone else know if my math is correct there? lol. Quote Link to comment Share on other sites More sharing options...
WinterSown Posted January 23, 2019 Report Share Posted January 23, 2019 12 hours ago, ScottS said: I just thought it interesting that our skin has "functional magnesium transporters". Who knew? (I didn't.) Osmosis is the key. You have to have all the right components to keep cells fed, watered and oxygenated. That's why it is especially important for dysautonomics to eat a balanced diet. My cardiologist took me off of all supplements and told me to instead get everything from the foods I eat and drink. This morning for breakfast I had an english with peanut butter and banana chunks. Yummy. And good for me. There's also an apple cut in half on the counter for me to nibble on throughout that day, and a nice veggie soup I made from whatnots in the veggie drawer in the fridge. Yesterday i was snacking on sugared pecans--ate the whole bag too, slurp. https://www.huffingtonpost.com.au/2017/07/10/what-foods-contain-magnesium_a_23024245/ Quote Link to comment Share on other sites More sharing options...
Guest ScottS Posted January 23, 2019 Report Share Posted January 23, 2019 31 minutes ago, WinterSown said: Osmosis is the key. You have to have all the right components to keep cells fed, watered and oxygenated. That's why it is especially important for dysautonomics to eat a balanced diet. My cardiologist took me off of all supplements and told me to instead get everything from the foods I eat and drink. This morning for breakfast I had an english with peanut butter and banana chunks. Yummy. And good for me. There's also an apple cut in half on the counter for me to nibble on throughout that day, and a nice veggie soup I made from whatnots in the veggie drawer in the fridge. Yesterday i was snacking on sugared pecans--ate the whole bag too, slurp. https://www.huffingtonpost.com.au/2017/07/10/what-foods-contain-magnesium_a_23024245/ Thank you for the Huffington Post link. Fortunately for me I can (and do) eat (and often crave) pretty much everything on the list. The exceptions? Tofu and kale - ugh and double ugh. An aside, I LOL at your description of snacking on sugared pecans. You slurp them? Quote Link to comment Share on other sites More sharing options...
WinterSown Posted January 23, 2019 Report Share Posted January 23, 2019 6 hours ago, ScottS said: Thank you for the Huffington Post link. Fortunately for me I can (and do) eat (and often crave) pretty much everything on the list. The exceptions? Tofu and kale - ugh and double ugh. An aside, I LOL at your description of snacking on sugared pecans. You slurp them? I like tofu, I sear slices in a pan with some seasoning--simple and easily digested meal for me. No I do not slurp sugared pecan--but they will make you drool. Slurpy slurpy. And I think kale tastes like burning tires, one level up from brussel sprouts. Quote Link to comment Share on other sites More sharing options...
Guest ScottS Posted January 24, 2019 Report Share Posted January 24, 2019 https://www.johnnyseeds.com/vegetables/kalettes/ They are a cross between kale and Brussels sprouts. Provided for your reference (in case you garden and/or have a sudden change of mind). Or for your bemusement (as to "why"?). I can't eat soy of any kind, I'm allergic. (I will, however, have a handful of your pecans, thank you.) Quote Link to comment Share on other sites More sharing options...
Pistol Posted January 24, 2019 Report Share Posted January 24, 2019 So - if they are a cross between kale and brussel sprouts - that means not only do they taste horrible but to top that they also give you gas???? Quote Link to comment Share on other sites More sharing options...
andybonse Posted January 25, 2019 Report Share Posted January 25, 2019 On 1/23/2019 at 10:11 PM, FileTrekker said: You don't want to be taking loads in one go, and supplement is just that so maybe add a bit of dark leafy greens in or whatever too. Magnesium Citrate works good though. Been off of my PPI for 3 days and eating like 500mg per day of magnesium from food and my serum is now 0.81mmol/l!!! So much happier with it at that level! Quote Link to comment Share on other sites More sharing options...
Jason_X Posted January 29, 2019 Report Share Posted January 29, 2019 I've had good luck with magnesium malate. It's well tolerated, so that it gets absorbed without being a laxative. Magnesium citrate is absorbed well, but it's usually a laxative at anything other than a small dose. Quote Link to comment Share on other sites More sharing options...
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