WinterSown

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About WinterSown

  • Rank
    Advanced Member
  • Birthday 08/23/1957

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  • Website URL
    wintersown.org

Profile Information

  • Gender
    Female
  • Location
    Long Island
  • Interests
    Winter Sowing, metadata, learning new things everyday.

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983 profile views
  1. WinterSown

    Lexapro making things much worse

    It is a known side effect, you can check online. I'm off it for at least five more days. Swallowed a smart pill this morning and can't do anything that causes soft stools.
  2. My EP has me chopping in half carvedilol. No problems.
  3. WinterSown

    Lexapro making things much worse

    Yeah, I know it doesn't turn me into a happy person overnight. #sarcasmlost Nor do I think I will be happier tomorrow or a month from now if the side effects don't end. When does the diarrhea go away? Did that taper off eventually?
  4. WinterSown

    Lexapro making things much worse

    I started Lexapro two days ago. I do not like the sensation that there is a film/saran/clear wall between me and reality. We all get effected differently but this is just freaky, I hope this fades as I get used to the medicine. And the loose stools are not fun either. How am I supposed to retain water if the Lexapro is causing me to lose it? I am no fan of this drug, I don't know if I will continue with it past the weekend if my side-effects do not improve. There must be something better than this sensation--if this is happy I will take back my sad.
  5. WinterSown

    Anyone not doing extra salt?

    If only salt could make me puff up like a glass of wine. I have extra salt on everything and meh, not much retention. I have four ounces of pinot gris and I'm bloated for two days.
  6. My cardiologist is going to drown me from the inside out. I said 'I'll go live in the ocean.' It didn't float with him. And less starch, less carbs, less proteins, more veggies and fruits. Keep walking, keep exercising your body and mind, keep doing stuff, and let me know how it all goes. I gave him a hug, said 'Three months.', and I was out the door. It should always go this well. Everywhere.
  7. WinterSown

    Anyone not doing extra salt?

    Salt pills chew up my stomach so it comes for me by way of shaker or salty snacky yummy stuff.
  8. WinterSown

    Claiming disability

    This is the whole thing in a nutshell. From what you've written I don't think you are ready to emotionally surrender to being legally labeled disabled. This is a big decision to make as you have to find balance in how you live your life. I hope you can soon find the right path forwards.
  9. I thought I was there, that I had reached the calm point where knowledge and experience were making it easier to handle the endless symptoms that go on 24/7/365. Life goes on, and I had to learn to manage it; water, electrolytes, healthy food, exercise, medicine, self-education, and introspection all combined to help get me to where I am physically and emotionally stronger though attacks. My EP, with a wink in his eye, calls them my neuro-cardio-vaso-vagaly-things. We both then smile because I don’t collapse so much anymore. I began telling myself that I was content. That an ideology of ‘what can I do’ was okay and would quickly replace ‘this is what we’re doing today, and then we can do this tonight and that tomorrow.’ I had already accepted that I could not do most of my old work, and I cut down to what I can manage. The amount of energy or non-foggy thoughts you can crank out does affect your life. But I am lying to myself when I say I’d be doing less in my 60s anyway--didn’t I read that 60 is supposed to be the new 40? If I found acceptance, why am I not enjoying myself? I walk the dogs late at night and speak to the heavens asking them the hows, ways, and means of my life. The answers come through natural shows of clouds parting before a full moon, with so many geese flying across the sky I could feel their wingbeats, the sounds of mockingbirds singing at midnight, the sound of the wind whispering through the trees; I even have been graced with shooting stars. And in all of that, there is no answer for me but to acknowledge that the world is still beautiful after dark. I tried going down to the beach and screaming at the ocean. It does nothing except give you a sore throat and cuts on your feet from the clam shells. I might as well pound sand. Acceptance wasn’t working for me. It’s been something nice to tell doctors and friends who want to hear anything about getting better. I think it makes it easier for them, as most people don’t understand much about dysautonomia, they only know it is bad and want you to get better. And, when you run into them at the store, you smile and say, ‘Oh, I’m doing a lot better.’ But then you’re nearly fainting at the register five minutes later and holding onto the cart handle for support; they don’t see you get through it, go home, and crash on the couch before you can empty your bags. This is unacceptable to me. I want my energy and my life back. I was out in the garden when I made the decision to un-accept acceptance. I made this determination while looking at the state of my garden. Some of the beds have been fallow since my symptoms began four years ago and are looking more like a young forest than the once fertile and well-tended rows of tomatoes, veggies, and herbs. Some of the beds are in transition though, and I was able to prune a few back and get out the weeds before the heat of summer came on. I have partially restored them, and I struggle to keep the weeds out. But the zinnias I sowed are starting to bloom and attract butterflies. Of all of the gardens, there is one bed that I am content with—it’s been cut back, reworked, replanted and sown with wildflowers--it is thriving and growing and blooming. It was these three beds that brought me to my decision—the wild young forest, the in-between bed fighting off weeds while still blooming bright, and the finished bed where the wildflowers are healthy and abundant, bees and butterflies are busy at the blooms, and the weeds don’t have room to sprout and take hold. To me, my own backyard became the symbolic comparison of my struggle and effort to get symptoms under control. The wild and uncontrolled, alongside that which is still in work and can go either way if not kept in check, bordering that which is satisfying and right and good. I made the decision, that while I can, and for as long as I can, I will not be complacent and sit back. I must tend my life as I tend my garden. I know I can control some of it and each time I make a little effort I get more under control. Water, nutrients, and fresh air can make a big difference in how I look and feel too. I am ready to challenge myself to improve; I am not prepared to accept that my life has gone to the weeds. Return to Table of Contents
  10. That's how it goes with me. One moment fine and the next not so much, and I never get a warning. I am getting better at 'being used to' such rapid differences in symptoms--it takes time but I am now at a better place in my head than I was a year ago. You are going to get through this, you will.
  11. Only a medical professional can diagnose you but the people on the forum can help with experiential advice. There are multiple dysautonomia, POTS is not the only one. My cardiologist is always telling me to find balance. That's because my symptoms swing far and wide. Sometimes I am great and sometimes I am not. It's all about learning that there will be no consistency with symptoms and that I have to be prepared either way. Celebrate the good days, stay hydrated and increase your electrolytes on bad ones.
  12. WinterSown

    Odd question.....

    Here is an article, it is a treatable condition. https://www.sweathelp.org/where-do-you-sweat/sweaty-hands.html
  13. WinterSown

    POTS Beauty/Fashion/Life tips thread

    Best 'beauty' tip I got came from my cardiologist. Scrub your face and neck with epsom salts. You get an energy boost from the magnesium and the salts are an awesome exfoliate--you are smooooth afterwards.
  14. WinterSown

    Rhodiola Rosea

    It has some side effects that I think can negate its use; dizzyness and drymouth. These are already dysautonomia symptoms which might increase with this supplement, so caveat emptor. Maybe call your doctor and ask their experience with this herb.
  15. WinterSown

    POTS after taking Metronidazole?

    Hi Sarah, welcome to DINET. I used our search engine and entered Metronidazole and found several conversations about the drug. I think making a new post about your experience would be perfect for the forum--new ears and eyes may have new information.