andybonse Posted October 31, 2018 Report Share Posted October 31, 2018 Hey, I am just lightheaded ALL the time to at least some extent. From when I first get up right over the course of the day it gets worse and worse. To the point when I lay down it helps but I'm still lightheaded for ages. My blood pressure is always perfect and heart rate can even be 60 lol. Cerebral Over Vasoconstriction? Nothing seems to really help, except waiting it out, or sometimes eating a large meal!?! - Not blood sugars, already checked all that with my little kit! :). Anyone else feel like this? I was on florinef which was helping my heart rate symptoms and lightheadedness was reduced, but still got lightheaded with a hr of 60 bp 120/70 and laid down!! It's my worse symptom it's just like I'm not here and lightheaded, NOT DIZZY. I can feel everything change in the brain like the bloodflow its hard to describe. I am seeing a specialist again tomorrow to check more on autoimmune cause but wanted to see what other people said! - Andy Quote Link to comment Share on other sites More sharing options...
StayAtHomeMom Posted November 1, 2018 Report Share Posted November 1, 2018 Lightheaded is what I use to describe an odd brain sensation that is usually accompanied by my vision going dark. Dizzy is where the world or I spin. And the world "tilts" when I feel like I am not standing straight when I am. Do these sound familiar? Quote Link to comment Share on other sites More sharing options...
bombsh3ll Posted November 1, 2018 Report Share Posted November 1, 2018 Yep I have exactly the same, we sound v similar! Normal numbers but still lightheaded (presyncope NOT dizziness/vertigo) all the time except when lying down/reclined. I would really like to hear what your specialist thinks/suggests for this. Cerebral vasoconstriction is a possibility (I wish we could get doppler/spect scans for this in the UK) but I also suspect low cardiac output. This cannot be calculated from HR or BP, stroke volume also needs to be known. CO increases by about 2 litres when we lie down. The brain gets about 15% of CO so I think my brain is simply getting 15% of a too low amount. Also, low cardiac output increases sympathetic tone - which can constrict cerebral vessels! Best wishes with your appointment, B x Quote Link to comment Share on other sites More sharing options...
DizzyGirls Posted November 1, 2018 Report Share Posted November 1, 2018 Just a thought....when my daughter's heart rate gets lower, she feels really, really lightheaded. If her heart rate was down to 60, she'd have passed out! She is actually most comfortable with a heart rate of about 85-88. She wore a Zio monitor patch for 12 days a few years ago and her cardiologist at the time said it was just normal for her. When doctors try to lower it, she gets really lightheaded. Quote Link to comment Share on other sites More sharing options...
bombsh3ll Posted November 1, 2018 Report Share Posted November 1, 2018 37 minutes ago, DizzyGirls said: When doctors try to lower it, she gets really lightheaded. That's interesting. I am also not a believer in medication being prescribed just to make a patient's numbers look better, in this case to lower HR. Tachycardia is a physiological response to a diminished stroke volume, so suppressing that can be unhelpful and make matters worse. What did your daughter take to lower HR? I think beta blockers are the worst for this as they reduce the strength of contraction of the heart, further lowering cardiac output. For me HR doesn't really seem to correlate with how I feel - I am lightheaded whether it is high, low or normal. I did once try midodrine (although my BP is not low, thought it was worth ago to help any pooling) and that reflexively dropped my HR below 40 - that really did feel awful! B x Quote Link to comment Share on other sites More sharing options...
StayAtHomeMom Posted November 1, 2018 Report Share Posted November 1, 2018 I take a beta blocker and it lowers my HR by about 10-20 points depending on position. I think the lowest I have ever seen it is 70 while I sleep but that is rare. Without it I average high 90s sitting. My Beta Blocker really helps my heart palpitations more than anything. Without it my heart rhythm feels weird. To a lesser extent it helps everything else. Not sure if I could function as well as I do without it. Maybe I am lucky and I respond to that one medication the way I am supposed to. Quote Link to comment Share on other sites More sharing options...
yogini Posted November 1, 2018 Report Share Posted November 1, 2018 Have you been diagnosed with dysautonomia? Are your blood pressure and heart rate ever not normal? Quote Link to comment Share on other sites More sharing options...
jklass44 Posted November 2, 2018 Report Share Posted November 2, 2018 I actually feel the most lightheaded or dizzy when I'm tachycardic. I experience episodes of bradycardia as well (30s-40s) and although that comes with it's own set of symptoms, lightheadedness isn't one of them during those times for me. Good luck with your appointment. Let us know how it goes! Quote Link to comment Share on other sites More sharing options...
peachychou123 Posted November 5, 2018 Report Share Posted November 5, 2018 On 10/31/2018 at 8:01 PM, andybonse said: Hey, I am just lightheaded ALL the time to at least some extent. From when I first get up right over the course of the day it gets worse and worse. To the point when I lay down it helps but I'm still lightheaded for ages. My blood pressure is always perfect and heart rate can even be 60 lol. Cerebral Over Vasoconstriction? Nothing seems to really help, except waiting it out, or sometimes eating a large meal!?! - Not blood sugars, already checked all that with my little kit! :). Anyone else feel like this? I was on florinef which was helping my heart rate symptoms and lightheadedness was reduced, but still got lightheaded with a hr of 60 bp 120/70 and laid down!! It's my worse symptom it's just like I'm not here and lightheaded, NOT DIZZY. I can feel everything change in the brain like the bloodflow its hard to describe. I am seeing a specialist again tomorrow to check more on autoimmune cause but wanted to see what other people said! - Andy Sometimes my bp is lower, sometimes it's normal, sometimes I'm hypertensive. I have felt dizzy and lightheaded at all of these pressures. For me, I think it has less to do with bp and much more to do with heart rate. Slow and fast heartrates can both lead to lightheadedness. In both cases the body is struggling to circulate oxygenated blood around the entire body. I also have felt lightheaded sitting and sometimes laying down. Currently I am in the middle of a POTS flare, so my lightheadedness is awful, I keep getting those weird 'trapdoor' 'falling' sensations even when sitting. It is NOT vertigo. I have been up and down to the ER a lot as I am worried about the possibility of something more serious. The dizziness is very debilitating and the symptoms which has always been the biggest source of anxiety for me. What did your specialist say? Quote Link to comment Share on other sites More sharing options...
DizzyGirls Posted November 6, 2018 Report Share Posted November 6, 2018 Hi bombsh3ll! - I just wanted to clarify that my daughter DOES take a beta blocker, metoprolol. Without it, her heart rate gets up to the 150's. So, it is necessary. What I meant was that some doctors think it should be lower than the mid 80's of low 90's for her to feel better. Just making sure it doesn't jump to the 150's makes her feel a lot better! Everybody's "low" seems to be a bit different. Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You can post now and register later. If you have an account, sign in now to post with your account.