Eillyre Posted July 12, 2005 Report Share Posted July 12, 2005 Hello dear friends! I'm sorry for my somewhat extended absence from the rest of the dysautonomia community, but I do have a good reason this time! I started to notice a significant decrease in my lightheadedness and moderate improvement in the brain fog department after I reached the full dose of Mestinon that Dr. Low prescribed. As my energy level was still dismally low, I began taking the NeuroHelp supplements that Dr. Low had pointed me to. Amazingly enough, after about a week on them, I woke up one morning, and hopped (yes, quite literally!) out of bed, brimming with energy. I walked a mile that morning, stretched, did arm weights, a little light barrework, took a shower (wonders never cease!), and even gave myself a pedicure! By about 1 pm I was really slowing down, but was totally determined to take the shoe shopping trip that I had planned all morning. It only lasted a half hour, but it was a start. It felt so wonderful to be able to do so much -- I felt decades younger! The most astonishing thing is, though, that I have maintained a similar activity level for the past 3 weeks, with one brief setback when I had to start rationing my Mestinon due to an insurance muddle (lightheadedness and brain fog made a resurgance, curbing my activity). I can usually walk about a mile each morning, handle short errands, and study for about 30+ minutes at a time. I've even started dancing around the house again (my mom almost cried) in short, spontaneous, glorious spurts! I am by no means cured. I still have to take frequent and lengthy rest breaks, cannot manage a half a dance class, hold a normal job, or handle an official college-level class -- but everything is so much better than before! It's a bit of a dangerous time for me, as the dancer in me urges me to plow through the low energy moments to get things done, so I'm having to monitor my zeal and impatience carefully. I do not want a setback! I'm not sure how long this energy kick will last, but I'm determined to wisely make the most of as long as it does. Thank you all for your prayers and encouragement! I just thought you'd like to share in the good news (finally!). Take heart, dear ones. Thank you all for your faithful friendship! I'll try to keep in touch more frequently.With love,Angela P.S -- All my warmest greetings to the newbies that I've missed welcoming during my absence. I'm looking forward to getting to know you better! Quote Link to comment Share on other sites More sharing options...
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