toomanyproblems Posted February 16, 2018 Report Share Posted February 16, 2018 And what symptoms make you seek medical help, like going to the hospital? Thanks! Quote Link to comment Share on other sites More sharing options...
CowardlyLion Posted February 18, 2018 Report Share Posted February 18, 2018 My girlfriend was experiencing severe palpitations. Then she was finding it hard to breathe, or it felt like it was hard to breathe. Ambulance was called, the guys were jerks and figured it was just anxiety. But when she was attached to the monitor her heart-rate was very abnormal. Her heart-rate was going from 80, to 120, to 160. After the diagnosis of POTS, we returned to the ER a couple more times whenever she felt like she was having a hard time breathing or catching her breath. I would consider a "flare up" for her to be when it's too much to stand up. And from what I've read, that seems to be luckier than most. Quote Link to comment Share on other sites More sharing options...
yogini Posted February 18, 2018 Report Share Posted February 18, 2018 We all have increased symptoms from time to time. A "flare up" is when the increase is suddenly much worse and omens't go away quickly - like if you are sick in bed for several days. Your doctor should advise when to go to the hospital. Quote Link to comment Share on other sites More sharing options...
Missy M Posted February 19, 2018 Report Share Posted February 19, 2018 I specifically asked my doctor who monitors my dysautonomia for guidelines on when I should go to the ER versus just rest at home. He knows all of MY medical peculiarities and gave me some good rules of thumb to go by on when I should go to the ER. My recommendation is for you to have that same frank conversation with your doctor. Because what might be no big deal for me might be an urgent situation for you. Quote Link to comment Share on other sites More sharing options...
Pistol Posted February 19, 2018 Report Share Posted February 19, 2018 In my case a flare-up is considered any time my POTS symptoms become so bad that I can no longer function without medical intervention - in my case IV fluids, increasing meds or becoming bedridden. Quote Link to comment Share on other sites More sharing options...
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