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What symptoms do you consider a POTS "flare"?


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My girlfriend was experiencing severe palpitations.  Then she was finding it hard to breathe, or it felt like it was hard to breathe. Ambulance was called, the guys were jerks and figured it was just anxiety. But when she was attached to the monitor her heart-rate was very abnormal.  Her heart-rate was going from 80, to 120, to 160. 
After the diagnosis of POTS, we returned to the ER a couple more times whenever she felt like she was having a hard time breathing or catching her breath.  I would consider a "flare up" for her to be when it's too much to stand up. And from what I've read, that seems to be luckier than most. 

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I specifically asked my doctor who monitors my dysautonomia for guidelines on when I should go to the ER versus just rest at home. 

He knows all of MY medical peculiarities and gave me some good rules of thumb to go by on when I should go to the ER.

My recommendation is for you to have that same frank conversation with your doctor. Because what might be no big deal for me might be an urgent situation for you. 

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In my case a flare-up is considered any time my POTS symptoms become so bad that I can no longer function without medical intervention - in my case IV fluids, increasing meds or becoming bedridden. 

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