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CowardlyLion

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Everything posted by CowardlyLion

  1. My girlfriend was experiencing severe palpitations. Then she was finding it hard to breathe, or it felt like it was hard to breathe. Ambulance was called, the guys were jerks and figured it was just anxiety. But when she was attached to the monitor her heart-rate was very abnormal. Her heart-rate was going from 80, to 120, to 160. After the diagnosis of POTS, we returned to the ER a couple more times whenever she felt like she was having a hard time breathing or catching her breath. I would consider a "flare up" for her to be when it's too much to stand up. And from what I've read, that seems to be luckier than most.
  2. I was going to suggest this as well. My girlfriend has POTS and when she uses the compression stockings she feel so much better, it's remarkable. If you think you may have POTS or another form of dysautonomia, I would suggest trying to get a referral to a cardiologist or somewhere that you can get a Tilt-table test. We were lucky that the hospital she was admitted to from the ER had this test and that the nurses were so kind to her.
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