artluvr09 Posted August 16, 2014 Report Share Posted August 16, 2014 This past week or two I have been lightheaded a lot. I have been getting blurry vision as well I am not sure if it is with the lightheaded spells or if it is after or without the lightheaded spells. My anxiety has been flared also which is strange I usually don't get anxiety this bad where I just feel restless, and irritable for no reason. Brain fog is bad too my words are starting to get mixed up! Anyone else get this and if so how do you stop the symptoms? I see my doctor not this week but next so I will also tell her but I hope this doesn't stay! Quote Link to comment Share on other sites More sharing options...
TCP Posted August 16, 2014 Report Share Posted August 16, 2014 Yes, it's all part of it. I guess dizzy from not enough blood flow to head or maybe even too much with some people. The blurry vision and brain fog from often overdoing things or even if my bowel is upset. It can be a mixture of causes even my hormones playing up. With me the only way I can get everything to settle is to lie down and relax. Nothing else has the same effect. I also find drinking lots of liquid and taking salt tablets helps with the blood volume and makes me less dizzy etc. I hope you can find something which helps you. Quote Link to comment Share on other sites More sharing options...
lfreem02 Posted August 18, 2014 Report Share Posted August 18, 2014 Have you looked in a mirror when you get blurry vision? I had issues with blurred vision during the first three months of symptoms. I looked in a mirror one time and noticed that my left pupil was dilated, but my right was not. I tried moving around to change the amount of light entering my eyes, but only my right pupil changed size. It finally stopped on its own. I found out later that the sympathetic nervous system controls pupil dilation, which would make sense that it would be an issue with Dysautonomia. Getting on the correct medications has helped a lot with my lightheadedness, and the feeling of anxiety. I was initially treated for hypo instead of hyper, so I was getting worse with medication. I also make sure to drink a lot of fluids, especially cold in the summer, but I have to keep my salt intake low. I do have ups and downs still. I called the microwave the AC, and put the dog food scoop in the trash can a few days ago. Quote Link to comment Share on other sites More sharing options...
stephsurf Posted August 18, 2014 Report Share Posted August 18, 2014 Yes, it's all part of it. I guess dizzy from not enough blood flow to head or maybe even too much with some people. The blurry vision and brain fog from often overdoing things or even if my bowel is upset. It can be a mixture of causes even my hormones playing up. With me the only way I can get everything to settle is to lie down and relax. Nothing else has the same effect. I also find drinking lots of liquid and taking salt tablets helps with the blood volume and makes me less dizzy etc. I hope you can find something which helps you. Just a quick question if you don't mind. You mentioned if your bowel becomes upset. Do you sometimes find that prior to a bowel movement you'll get hot and clammy and feel your heart racing more etc? This is one of the things I've started to notice myself and if I look back on some of the first signs that I had pots, before I was diagnosed this was one of the first. Would be interesting to know as it's always just before. Quote Link to comment Share on other sites More sharing options...
blueskies Posted August 19, 2014 Report Share Posted August 19, 2014 Hi lfreem I have 'sluggish' pupils, (not talking uneven pupil size) first noticed by my specialist before he diagnosed me with pots. Years ago, when I started getting migraines, though, I looked in the mirror and found that one pupil was much more dialated than the other. This continued for some years although I haven't seen it in a long time. It could still happen occasionally but I don't look for it anymore. I had my eyes checked by an opthamologist -- I really need to wear multifocals now but I can't get the right prescription ( I tried so many times) but my vision changes so often that it's impossible to be prescribed a pair I can wear all the time. I use reading glasses for close work but I'm missing on seeing a lot of stuff now, that goes on around me. My opthatmologist told me with my dys/ and changing vision problems that I should forget trying to wear multifocals. But every now and then I pick out a pair from the draw I keep my selection in and try to wear them as I worry that I will one day need to wear them to drive (at the moment I don't) and I don't want to have to stop driving because I can't manage glasses. I think it's a good idea to see an opthamologist, at least once for a check of the eyes.. Not just a optometrist. As opthamologists are highly trained doctors who find rare eye problems. Quote Link to comment Share on other sites More sharing options...
blueskies Posted August 19, 2014 Report Share Posted August 19, 2014 Blurry vision happens to me for quite a number of reason: anxiety, migraine, and it just happens.I find meditation a little disconcerting at times because my eyes will be blurry afterwards for a while. I'm noticing that my eyes are more often blurry these days and have decided it's time to make another appointment with an opthamologist, even if it's just to be reassured it's dys., or in my case maybe 'getting older' and nothing else. I have all sorts of vision problems and it's time I had my eyes rechecked by a proper eye doctorblue Quote Link to comment Share on other sites More sharing options...
TCP Posted August 19, 2014 Report Share Posted August 19, 2014 With dysautonomia there seems to be a link with eyes. My pupils are slow to react to changes in light and my left pupil is often larger, too. My optometrist saw a slow reaction. She said it was linked to the nervous system. My sight has never been good in the dark and I wondered years ago if it was linked to my dad's retinitis pigmentosa, but latterly I think when the ME started it was linked to the nervous system changes. There seems to be issues with eyesight with EDS, POTS and ME. Many people get dry eye, too. (Quote: vision problems. This could be blurry vision, or the failure of the pupils to react quickly enough to changes in light.) I was recently dx glaucoma suspect meaning I may get glaucoma as my eye pressure can be a raised. StephsurfIn answer to your question I have major nerve issues with my bowel and when my bowel is upset everything goes haywire. I feel really unwell when needing to use the bathroom. The pressure on my nerves makes my nerve pain much worse and I feel sick, headachey, weak, shaky etc. Not good at all. When I have managed to go to the bathroom, I then get widespread spasm in all the nerves and muscles in and around my gut for hours afterwards. It helps if I drink a lot and my motions are softer. I always know if I need to go more from the way it affects my body rather than from the bowel itself. The way it has been explained to me is that your gut has more nerve endings than the brain and is often called your second brain as it responds so strongly to events, emotions and changes etc. If anything is going on in our body then chances are that the gut will be responding or causing many of the events like, pain, discomfort, nausea etc. So if you have head pain, like I do, it may emanate from the gut and may also affect the heart. After I eat my heart often flutters or judders. I also often get nerve pain extending from my thigh right up the left side of my body into my neck. So you can see how it's all linked. Quote Link to comment Share on other sites More sharing options...
lfreem02 Posted August 19, 2014 Report Share Posted August 19, 2014 Blue - I see an Ophthalmologist annually, who had offered to refer me to a Neuro Ophthalmologist if the issue continued, but it stopped. The only issue she found is that I have excessively dry eyes, which I use OTC drops for. My vision varies. I have issues when I am walking, because my vision rocks. No one can explain it, but I am seeing a new Neurologist in October. Quote Link to comment Share on other sites More sharing options...
sweinbe6 Posted August 19, 2014 Report Share Posted August 19, 2014 Hi. I am a 55 year old woman with dysautonomia. Lightheadedness controlled with 3000mg. salt tabs 2x/day. I have definitely been getting more brain fog and for that I don't have an answer. forget what im about to do all the time. I also have developed crippling daily headaches and blurriness in my eyes. So far, sorry nothing works. for anxiety, I take KLonopin 2-6 mg. usually in am, when it is worst and that helps. do you have all the other symptoms. chest pain and palps, no appetitie and food sits there, intermittent naseau, fatigue, etc... Thanx. Hope your doc can help Lisa Quote Link to comment Share on other sites More sharing options...
blueskies Posted August 19, 2014 Report Share Posted August 19, 2014 Hi lfreem, i sometimes get that rocking vision too. You described that well. I don't get that symptom much anymore. I used to experience it a lot. Hopefully the neurologist can explain it. I never thought to mention it to anyone -there were always other symptoms to address first.Blue Quote Link to comment Share on other sites More sharing options...
blueskies Posted August 19, 2014 Report Share Posted August 19, 2014 Hi Lisa, A lot of my POTS symptoms ramped up in intensity with the menopausal transition, everything you mentioned sounds familiar to me. In my experience,Menopause can see an increase in POTS SYMPTOMS and you are that age. I trust that you are under medical care. I find reading and posting to the forum helps a lot. A ton of info to be found here, and people are kind. Blue Quote Link to comment Share on other sites More sharing options...
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