Guest Alex Posted May 23, 2013 Report Share Posted May 23, 2013 http://www.cosmopolitan.com/advice/health/rare-diseasesAlex Quote Link to comment Share on other sites More sharing options...
HopeSprings Posted May 23, 2013 Report Share Posted May 23, 2013 Oooo, this is great - POTS coverage in a popular women's magazine! How exciting! Only thing I didn't like... she was getting IVIG and still developed POTS? I was kind of hoping IVIG would be a good treatment for us. Quote Link to comment Share on other sites More sharing options...
bebe127 Posted May 23, 2013 Report Share Posted May 23, 2013 Great article, glad to see it out there and in the open, and kudos to her and her mother for being advocates! Only thing that I question is "POTS or Postural Orthostatic Tachycardia Syndrome was the end-stage of Dysautonomia." I've never heard this before, POTS being the "end-stage". Hmmm... Quote Link to comment Share on other sites More sharing options...
clare Posted May 23, 2013 Report Share Posted May 23, 2013 Thanks so much for posting this. I shared it on my Facebook page so my friends and family can see it and understand that these concerns are things that I too struggle with daily! That whole preoccupation or internal questioning with things like, "where is the closest seat?" and "is that line to long to stand on?" And that's on a good day Quote Link to comment Share on other sites More sharing options...
blueskies Posted May 25, 2013 Report Share Posted May 25, 2013 Great to see an article about POTS in a widely read magazine. I hope Australia's 'Cosmo' mag picks it up and runs with it.In the comments section someone brings up the point that 'POTS is not the end stage of dysautonomia.' The reply is that the writer did not mean it to sound like that, but could understand how it could be read that way, and realized it was not an 'end stage.'blue Quote Link to comment Share on other sites More sharing options...
imapumpkin Posted May 28, 2013 Report Share Posted May 28, 2013 this is so good!! the more awareness the better! Quote Link to comment Share on other sites More sharing options...
joyagh Posted May 29, 2013 Report Share Posted May 29, 2013 this isn't about POTS. all it says is POTS is end-stage dysautonomia, which it isn't. Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You can post now and register later. If you have an account, sign in now to post with your account.