Lemons2lemonade Posted May 15, 2013 Report Share Posted May 15, 2013 Hi all, please fill the fludrocortisone section if and only if you took it for more than a month. Thank you! Quote Link to comment Share on other sites More sharing options...
ramakentesh Posted May 15, 2013 Report Share Posted May 15, 2013 How is it possible 4 people havent taken either propanalol or florinef? Quote Link to comment Share on other sites More sharing options...
Guest Alex Posted May 16, 2013 Report Share Posted May 16, 2013 Hard to tell what each of them did or did not as they were rx'ed to me together.I've been on other betas though before introducing florinef and they've all been the same to me.Alex Quote Link to comment Share on other sites More sharing options...
Justin-in-MI Posted May 17, 2013 Report Share Posted May 17, 2013 I was on florinef for two weeks. In that time it completely drained my potassium which gave me leg pain. Then my heart rate started to increase with no signs of stopping. I hit about 190bpm by the time I got to the hospital. When I got there they gave me some meds, it finally started to go back down. When it got to about 100bpm I felt like I had just finished running a marathon. Not a good experience.Justin Quote Link to comment Share on other sites More sharing options...
Relax86 Posted May 19, 2013 Report Share Posted May 19, 2013 No propanolol for me. I took fludro for only a few days. Spiked my nighttime BP, gave me terrible headaches. Didn't change my tachy, lightheadedness, shortness of breath or fatigue. Quote Link to comment Share on other sites More sharing options...
JanaDaisy Posted May 22, 2013 Report Share Posted May 22, 2013 Propranolol dropped my hr to the 20's, but Florine's raised my BP to the 170/110's. neither made me feel better. Was on both for 3-4 months because they did that after dose was increased. On the lower doses they didn't help at all and I just had extra side effects, but I'm sure they help some ppl. Quote Link to comment Share on other sites More sharing options...
Lethargic Smiles Posted May 31, 2013 Report Share Posted May 31, 2013 Florinef messed with my pancreas so I had to stop taking it. It was the first medication I ever took for POTS and I did notice it seemed to help with my energy. Quote Link to comment Share on other sites More sharing options...
Libby Posted June 2, 2013 Report Share Posted June 2, 2013 I've been on both, but I selected 'I have not taken this medication' for florinef because headaches had me off of it after 3 weeks. Propranolol increased drowsiness for me - it looks like the increase/decrease options may have been left off the poll for that symptom. Quote Link to comment Share on other sites More sharing options...
Becia Posted April 6, 2014 Report Share Posted April 6, 2014 The fludro headaches for me are a reason I wished I DIDN't take this med, but I'm still on it. Quote Link to comment Share on other sites More sharing options...
Goschi Posted April 6, 2014 Report Share Posted April 6, 2014 I took Propranolol which did actually nothing for me except make me very dizzy and tired. I would really like to try Florinef, but my doc is too much afraid it would make my bp higher than it already is sometimes. Quote Link to comment Share on other sites More sharing options...
amyksmith Posted April 6, 2014 Report Share Posted April 6, 2014 One thing you don't ask about is BP - The propanolol decreased my BP too much, causing trouble with syncope, even though my tachycardia and shortness of breath were much improved. I'm on Florinef again now (third time trying it, with a few years between each round). It's week nine and the leg cramps aren't alleviated by the potassium supplements and my anxiety is absurd. But, it does give me some help with the hypotension. Quote Link to comment Share on other sites More sharing options...
Christy_D Posted May 14, 2014 Report Share Posted May 14, 2014 My son took fludrocortisone for over 2 years and it took his dizziness away. After stopping it, the dizziness did not return. He currently takes Propranolol which decreases his b/p(which is now high) and his tachycardia. Quote Link to comment Share on other sites More sharing options...
DeGenesis Posted June 4, 2014 Report Share Posted June 4, 2014 Beta-blockers improve my symptoms. They normalize my BP and HR. Unforunately they impair circulation in my peripheries, probably by increasing peripheral resistance, thus causing cold as well as aching arms and legs.Nebivolol is the only B1-selective beta-blocker that appears to decrease peripheral resistance, but I have not tried it.Non-selective beta-blockers like propanolol increase peripheral resistance more so than B1-selective beta-blockers, and I expect this is part of its MOA in POTS. Quote Link to comment Share on other sites More sharing options...
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