Timbo Posted February 4, 2004 Report Share Posted February 4, 2004 Sometimes when I am in bed and trying to go to sleep, parts of my body start to jerk periodically. The jerks are mild, its like one muscle contrats and releases, not a whole limb. I also have noticed that I have more twitching than normal over my body during the day. It's nothing alarming, but I do notice it. I was wondering if anyone else has had one or both or these symptoms?Thanks,Tim Quote Link to comment Share on other sites More sharing options...
EarthMother Posted February 4, 2004 Report Share Posted February 4, 2004 Oh the twitches! I had a twitch in my left index finger that lasted 2 weeks and before that it was some strange twitch in my abdomen. I chaulk it up to not having the proper balance of electrolytes in my system. But I can't say for sure what finally makes them go away. I use the shotgun approach and try extra magnesium, calcium and potasium (lots of bannanas and orange juice.)Good luck!EM Quote Link to comment Share on other sites More sharing options...
Timbo Posted February 4, 2004 Author Report Share Posted February 4, 2004 One of the side effects of Florinef is hypokalemia (low postassium or in otherwords an electrolye imbalance). Quote Link to comment Share on other sites More sharing options...
culmara2001 Posted February 4, 2004 Report Share Posted February 4, 2004 Hi everbody, I am on 2 Florinef daily, when the cardiologist put me on Florinef he told me and my G.P. that I would have to have blood checks every 3 months. They check for potasium and about 4 other things. So far so good. Have a great day, from, Dot. Quote Link to comment Share on other sites More sharing options...
MightyMouse Posted February 5, 2004 Report Share Posted February 5, 2004 Tim, I used to get twitches and jerks all the time until I had my spinal surgery. I think mine were not ANS related, but rather, were due to nerve compression.Nina Quote Link to comment Share on other sites More sharing options...
MomtoGiuliana Posted February 5, 2004 Report Share Posted February 5, 2004 When my POTS was really bad, my body was very twitchy, especially when I was going to sleep, like you describe. It was very weird. I don't have this anymore at all.Katherine Quote Link to comment Share on other sites More sharing options...
Timbo Posted February 5, 2004 Author Report Share Posted February 5, 2004 It could also be this lipoma (benign fat tumor) I have, its close to the spinal cord and I am having it removed. Quote Link to comment Share on other sites More sharing options...
EarthMother Posted February 5, 2004 Report Share Posted February 5, 2004 Must be subliminal suggestion .... but sure enough that tick I had in my finger that was gone for the last week came back last night. How odd. I better watch my thoughts more carefully.Good luck with your surgery Tim.EM Quote Link to comment Share on other sites More sharing options...
divine spark Posted February 6, 2004 Report Share Posted February 6, 2004 Yes, I have those twitches; they usually occur at night when I am trying to go to sleep. I never know which part of my anatomy is going to do the twitchy dance.Last night I was watching television and felt one strong and somewhat painful electrical sensation in the ball of my right foot, accompanied by milder shocks. Following these events my entire right leg jerked so strongly upward that I was pretty amazed and impressed. I was wondering what on earth I would do should they continue. They have not. Quote Link to comment Share on other sites More sharing options...
justin Posted February 6, 2004 Report Share Posted February 6, 2004 big time. actually, they're usually not little twitches, either. most of the time, one side of my body will jerk (no particular side that i can remember) when i'm lying down. Quote Link to comment Share on other sites More sharing options...
Louby Posted February 6, 2004 Report Share Posted February 6, 2004 Hello,yep i get twitches too!Last night I fell asleap on the sofa, and my whole body twitched so hard i almost fell on the floor, managed to click my neck as well - ouch! Apparently according to my boyfriend it was quite impressive, after he had managed to get over the intial shock.I also get very bad cramps in my hands and feet - the only way I can describe it, is that they go like claws, and it is really painful. does anyone else ever suffer with this.(My head is really fuzzy today, so sorry if i am not making too much sense.) Quote Link to comment Share on other sites More sharing options...
tsampa Posted February 6, 2004 Report Share Posted February 6, 2004 I also I have twitches but only during the night and on my legs. And I don't take florinf. Quote Link to comment Share on other sites More sharing options...
Timbo Posted February 6, 2004 Author Report Share Posted February 6, 2004 Last night I was in bed and my right leg and part of my left has this weird corkscrew sensation in it and jerked pretty hard. Neither limb lifted totally off the bed but it scared the **** out of me. I am going to make an appointment with the neurologist at the VA just to have all these movements looked at. Thankfully I have been extremely calm through this, probably because I do not have any other symptoms of a systemic disease other than these involuntary movements.No problems with weakness, gait, ridigity or stiffness, no problems voluntarily moving my arms or legs or any part of my body. Maybe I will post a poll and see how many of you POTS people out there have these problems. Quote Link to comment Share on other sites More sharing options...
DawnA Posted February 9, 2004 Report Share Posted February 9, 2004 Louby: I have had the claws thing when I used to hyperventilate. I thing it is caused from to much CO2. Do you have difficulty breathing?Dawn Quote Link to comment Share on other sites More sharing options...
Louby Posted February 9, 2004 Report Share Posted February 9, 2004 Hi Dawn,Yes sometimes I do have difficulty breathing, at the moment I am out of breath a lot, but I think this is due to being incredibly symptomatic at the moment. Which may explain the increase in "claw like" symptoms.I plan to keep a lifestyle and symptom diary, I have just spent a week in a pots hole, and whilst things are getting better I'm still not right, as such I'm hoping my diary will be able to establish connections that maybe I have not considered before. I shall keep an eye out for this one - thank you! Quote Link to comment Share on other sites More sharing options...
justme Posted February 9, 2004 Report Share Posted February 9, 2004 My wife has had a lot of issues with her legs. This seems to have been better in recent months. She was diagnosed with Restless Leg Syndrome and then told No, you don't have that. That goes along with Parkinson's, M.S., and the list goes on. Neurology isn't an exact science from what I have seen and if I could pick one area of specialty that is the most aggravating it would be neurology. There are some good ones out there, but my experience (and my wife's) has been that this is very rare. Good Luck!!!! Quote Link to comment Share on other sites More sharing options...
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