Roselover Posted April 14, 2005 Report Share Posted April 14, 2005 Hi everyone,I've been searching the archives about Florinef and I haven't found the answer to this question, so I thought I would ask you all to give me input. I understand that the dosing of Florinef really depends on the person, but I am very curious what types of doses are you are all taking. I am on .2/day, one in morning and one in eve. I started with this dose, then it was increased to .4 which I think is really really high. Then it was lowered to .3, which I also thought was high and I've now lowered to .2 again.So how much is alot, and how much do you take???Thanks for sharing your personal info with me! Quote Link to comment Share on other sites More sharing options...
Aprilmarie52 Posted April 14, 2005 Report Share Posted April 14, 2005 I take .1mg once a day. I have been on this dose for 4 years. If I am having a particularly bad day I will take another .05mg. That usually does the trick. Quote Link to comment Share on other sites More sharing options...
Roselover Posted April 14, 2005 Author Report Share Posted April 14, 2005 Thank you April! Anyone else willing to share with me? Quote Link to comment Share on other sites More sharing options...
Ernie Posted April 14, 2005 Report Share Posted April 14, 2005 I was on .1 mg twice a day but I was very sick with it so I stopped after 2 months.Ernie Quote Link to comment Share on other sites More sharing options...
wareagle Posted April 14, 2005 Report Share Posted April 14, 2005 Hi Roselover..I take florinef..but I can only tolerate a very small dose! I take 1/4 of a 0.1mg tablet a day. A whole tablet knocked me out..and the 1/2 tab made me anxious and shakey...I don't seem to be able to tolerate meds. as much as some people on the forum. It has helped a little bit..in combo. with salt tablets..I may go to twice a day eventually. Hope this helps! Quote Link to comment Share on other sites More sharing options...
cnm1 Posted April 14, 2005 Report Share Posted April 14, 2005 My daughter Rachel takes .1mg 1x a day. It helps her some - though she is still primarily homebound. She tried to increase the dose but got severe headaches. At least now she can go up and down the stairs without feeling as if she is having a heart attack. Louise Quote Link to comment Share on other sites More sharing options...
PattiL Posted April 15, 2005 Report Share Posted April 15, 2005 Hi,My daughter Chrissy is taking .1 mg 2x daily, although she feels that this doseage needs to be tweaked a bit higher. It has really helped her these last couple of years.Patti Quote Link to comment Share on other sites More sharing options...
yogini Posted April 15, 2005 Report Share Posted April 15, 2005 My cardio put me on .1 tablet once a day a couple of weeks after getting sick, which I think is the recommended starting dose. It was later increased to .1 twice/day. The florinef really did help me, with minimal side effects. But my cardio didn't tell me that I was supposed to have high salt and wear compression hose on top of the florinef. I later saw a POTS dr who told me to add these, and I wound up with BP spikes and had to wean off the florinef. I now manage my condition with salt, compression hose and beta blocker. Quote Link to comment Share on other sites More sharing options...
Brwneyedchica Posted April 15, 2005 Report Share Posted April 15, 2005 I just started taking 0.1mg of florinef once a day. I've been taking it for almost a month now, and the difference in the way I feel is incredible. They tried to wean me down to half of a tab but my symptoms returned... (I was feeling sweaty, shaky, nauseated). Quote Link to comment Share on other sites More sharing options...
danish Posted April 15, 2005 Report Share Posted April 15, 2005 Hi.I originally took .6 mg a day of florinef but it gave me really bad headaches, so now I'm down to .4 mgs a day.~Sarina Quote Link to comment Share on other sites More sharing options...
shelby Posted April 16, 2005 Report Share Posted April 16, 2005 I take .1 to .2 mg daily depending on how I feel when I get up in the morning and how I am feeling during the day. And what the weather is doing. My doctor basically put my florinef and midodrine dosages in my hands because I know how I am feeling and what works and what doesn't. Shelby Quote Link to comment Share on other sites More sharing options...
Amy Posted April 16, 2005 Report Share Posted April 16, 2005 I take .1 to .2 mg daily depending on how I feel when I get up in the morning and how I am feeling during the day. And what the weather is doing. My doctor basically put my florinef and midodrine dosages in my hands because I know how I am feeling and what works and what doesn't. Shelby<{POST_SNAPBACK}> Quote Link to comment Share on other sites More sharing options...
Amy Posted April 16, 2005 Report Share Posted April 16, 2005 I take 0.1 once a day along with 5 mg of midorine every 4 hours and 50 mg of topral. Quote Link to comment Share on other sites More sharing options...
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