Aimes Posted February 26, 2013 Report Share Posted February 26, 2013 Hi all! I just had to share that I finally got my appointment with Dr. Goodman at Mayo Clinic in AZ! He was the doctor who diagnosed me with POTS when he was at the Mayo Clinic in Rochester. The receptionist didn't go over all of the testing he had planned for me, but she said I should plan on being there the entire week (in the middle of April). I'll know more once I get the packet in the mail! I'm hoping he's going to run me through the ringer and test for everything under the sun! I would love to rule out autoimmune, small fiber neuropathy, EDS, MCAS, all those lovely things so many of us deal with!Thanks for all of the support you've all given me since I've joined the site! My family and friends are happy for me, but I knew all of you would actually relate! Getting appointments can be such a battle! Now I just hurry and wait! Ha Ha! Quote Link to comment Share on other sites More sharing options...
Mydoggielovesme2 Posted February 26, 2013 Report Share Posted February 26, 2013 Aimes, so glad you got your appt!! It's such a relief just getting that far, isn't it. I too am hoping to get tested for EVERYTHING when I see him. Best of luck to you. Shona Quote Link to comment Share on other sites More sharing options...
HopeSprings Posted February 26, 2013 Report Share Posted February 26, 2013 People seem to really like this Doctor. If you're going to be there a whole week, sounds like he'll be doing a lot of testing - that's good! Hope you get answers. Quote Link to comment Share on other sites More sharing options...
Aimes Posted February 26, 2013 Author Report Share Posted February 26, 2013 Shona, good luck at your appointment! I hope you get some answers, but more importantly I hope you get help to start feeling better!Naomi, I loved him when I saw him in MN! He's the only doctor I saw who gave me his personal card. I think he's very thorough and I remember him really taking his time and listening to all of my concerns! That in itself is worth a lot! Quote Link to comment Share on other sites More sharing options...
Joann Posted February 26, 2013 Report Share Posted February 26, 2013 Do you stay in the hospital while they run the tests? Just curious, I go for some tests in April at the Cleveland Clinic, but I stay in a hotel and do the tests during the day. I am a little bit scared, I know how my body can react to some things, and they want me to attempt to go off meds before they start. I don't see me being able to do this, so I am freaking out a little. Just wondered if this was standard or not. I am thinking of asking them if I can stay on meds, I know they may change the results some, but the alternative scares me more. Quote Link to comment Share on other sites More sharing options...
arizona girl Posted February 26, 2013 Report Share Posted February 26, 2013 Congrats on getting your appointments. I wanted to also welcome you both to our beautiful arizona. That area of scottsdale is just so pretty being in the foothills.If you want any good ideas of things to eat, see or do while your here, let me know. Quote Link to comment Share on other sites More sharing options...
Aimes Posted February 26, 2013 Author Report Share Posted February 26, 2013 Joann, I stay in a hotel during the week also. I think it is standard for them to want you off meds before testing but if this is a concern for you, I'd see if you could discuss it with someone. Sometimes, I don't think it's completely necessary especially if you aren't able to function without the meds. I'm only on some allergy medications (a low dose at that) so I don't really have concerns going off of them. I hope everything goes well for you in Cleveland! I'll keep you in my thoughts!Arizona, thanks for the welcome! My hubby has a lot of family in the scottsdale/ phoenix area so we're hoping to turn this trip into a mini-vacation as well. We'll have to see how I'm feeling! I'm just excited for some sunshine and warmth! It's much needed after a long winter in the frozen tundra! Quote Link to comment Share on other sites More sharing options...
trice125 Posted February 27, 2013 Report Share Posted February 27, 2013 Joann- who are you seeing in Cleveland and when will you be there? I went to see Dr. Jaeger and to have testing there in December and will be going back for follow up in the middle of April. Quote Link to comment Share on other sites More sharing options...
Angela Posted February 27, 2013 Report Share Posted February 27, 2013 dr. goodman is who all my pots friends go to so i think you r in well hands no one has ever told me anything bad...and they must like your insurance lol Quote Link to comment Share on other sites More sharing options...
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