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  1. My doctor does not require any blood tests prior to infusions. Currently I have an standing order for 1 liter every 2 weeks but this might change after I see my cardiologist on Tuesday.
  2. I went to a really small private college where all of the professors knew me and knew about my illness. They worked with me and I also lived at home after unsuccessfully trying to live in the dorms. I took the minimum amount of classes that I could to be full time because I could not stay on my mom's health insurance if I wasn't a full time student. My symptoms have gotten worse with time so I ended up having a harder time as I went through college until I was begging my mom to let me quit/drop out when I was student teaching. At that time she didn't let me drop out since I was so close to graduating but now I have all of these student loans and can't use my degree. After graduating I only taught at a preschool full time for less than a year before having to stop working completely because my symptoms have gotten too severe. Feel free to ask me any questions you may have either by posting on this topic or sending me a message.
  3. I see the surgeon in the morning to discuss getting the port. Are there any particular questions I should ask him?
  4. Thanks Chaos. I raised my concern about infection risk to my doctor and he told me that the risk is there but it's more risky to no do anything. I have an consult appointment with a general surgeon that I've seen in the past and my doctor told me that I can talk in detail with him about the risks/benefits of getting a port which I plan to do.
  5. Does anyone on this board get scheduled IV fluids? If so, what has been your experience with them and have they made any difference for you? Also, anyone got a port placed to get them through? Due to have really bad veins my electrophysiologist has suggested a port and that I start off getting IV fluids once a month increasing as needed. FYI- we have test results that I have really low blood volume and more conservative measures have not helped, if anything I am only getting worse.
  6. I've been on the nuvaring for the last 18 months and it has seemed to help. My GYN and GI doctors pretty much told me that it was my only option due to me also having gastroparesis especially since I do go thur periods of time when I have trouble keep meds down. It has greatly lightened my periods, lessened my symptoms during that week, and made them less painful. I do still get set back each month but not as much.
  7. Anyone else on this forum fight against with regular headaches? If so, have you found anything that helps them?
  8. I can understand a lot of medical jargon but not this article. It just confused me and I take magnesium for constipation daily.
  9. Pain, cramping, constipation, bloating, nausea, vomiting, reflux, heartburn..........................
  10. Sounds like overactive bladder to me..........or a symptom of diabetes if that hasn't been ruled out yet.
  11. I also have a college degree and am only 27 I got told the same thing by multiple lawyers. I finally did get approved a year ago after finding a wonderful lawyer that went out of his way to help me. He worked out of an office with one other lawyer and a secretary but I could call or email him directly anytime I wanted to or needed to. I truly don't believe I would have got approved if I did not find such a good lawyer since there is such a negative view of sick young adults especially ones that are educated. Good luck and feel free to send me a message if you would like to.
  12. I've had this problem before and my GI told me that it's caused by reflux.
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