Tuesday Posted January 23, 2013 Report Share Posted January 23, 2013 Has anyone else experienced a complete shift in their symptoms over time? It seems like 4-5 years ago my major symptoms were tachycardia, palpitations, low blood pressure, and lightheadedness.Now, I am dealing with high blood pressure, visual problems, headaches, and nausea in addition to dizziness/wooziness (which I would classify as different than lightheadedness). I guess I'm just wondering if this is common, for the symptoms to change and vary so much over time? Quote Link to comment Share on other sites More sharing options...
Christy_D Posted January 23, 2013 Report Share Posted January 23, 2013 My son's symptoms have changed since the beginning of all of this, with the exception of the nausea(has been there since day one). He, too, had low blood pressure, low bp at the beginning and now both are on the high side. He no longer gets migraines that would send him to the ER to get rid of, no longer has 'licorice' legs or 'heavy head'. His dizziness is almost non-existant. So I think for some people the symptoms cycle through. If we could only decrease the severity of his nausea he could be a functioning person. Quote Link to comment Share on other sites More sharing options...
roxie Posted January 23, 2013 Report Share Posted January 23, 2013 I'm starting to go high too. I'm not sure if its ALL the meds I'm on to raise it or if its happening on its own? My dr said "you're trading one disease for another." That's a frustrating thing, I couldn't function well with meds now we have to figure out why this has changed and I'll function even less wihtou them Quote Link to comment Share on other sites More sharing options...
Tuesday Posted January 23, 2013 Author Report Share Posted January 23, 2013 Yeah, I was wondering if being on Florinef was making my BP too high, but my cardiologist told me to stay on it and just added Lisinopril to lower my BP. I really don't know what to expect going forward Quote Link to comment Share on other sites More sharing options...
looneymom Posted January 23, 2013 Report Share Posted January 23, 2013 When my son was first diagnosed, I thought no big deal. But playing with medication changes the whole big picture. If you have an underlying condition thats unknown and mixed up with POTS this could be one reason why your symptoms have changed. Quote Link to comment Share on other sites More sharing options...
Katybug Posted January 23, 2013 Report Share Posted January 23, 2013 Mine changed and then came back full circle. Now it seems like a have different cycles of symptoms ...some on days when the weather is changing, some show up when I overdo the day before, the summer holds a whole other more dramatic set of symptoms than the cooler weather. Quote Link to comment Share on other sites More sharing options...
bebe127 Posted January 23, 2013 Report Share Posted January 23, 2013 I too have had changes over the years. I began with high blood pressure, now it is on the lower side. I have other changes too, but the list is too long. Mine are kind of like yours although I started out with high bp. Don't know if the changes are from meds or I'm just getting used to them and don't notice that much anymore. I also have some new symptoms like, rushes in the early morning, pains out of nowhere, more chest pain, vision issues, night sweats and more. Still, I don't know if these are due to meds or what.I created a table on my computer listing all of my symptoms and catagorized them by frequency ie: always (daily), frequently (5-6x/week), sometimes (2-3x/week), rarely (1-2x/month) and never/don't know. My goal is to review this list each month and make changes as necessary although keeping original copy so as to compare. My hope is to be able to take this into the dr. for some type of evaluation or at the very least he can see progression/regression.From what I've read here and elsewhere, symptoms seem to wax and wane. Hope you get some answers soon.Bebe Quote Link to comment Share on other sites More sharing options...
Tuesday Posted January 23, 2013 Author Report Share Posted January 23, 2013 I created a table on my computer listing all of my symptoms and catagorized them by frequency ie: always (daily), frequently (5-6x/week), sometimes (2-3x/week), rarely (1-2x/month) and never/don't know. My goal is to review this list each month and make changes as necessary although keeping original copy so as to compare. My hope is to be able to take this into the dr. for some type of evaluation or at the very least he can see progression/regression.Ooooh, this is a fantastic idea!!! I have realized that I definitely need to get more organized about putting together my own "medical chart" to keep and share with doctors. This is a great way to start! Thanks for sharing, I think I'll try something similar Quote Link to comment Share on other sites More sharing options...
Tobiano Posted January 24, 2013 Report Share Posted January 24, 2013 Mine seemed to change too. Started as low HR and low BP. Now I am tachy. Hope you get some more answers soon. I agree, great idea about the table! Quote Link to comment Share on other sites More sharing options...
CarrieJessica Posted January 25, 2013 Report Share Posted January 25, 2013 YES YES YES! I was passing out or coming close to it daily and very tachy even when sleeping, then I stopped passing out or even feeling like it to just getting a slight dizziness but then went bradycardia. After I got used to that I started convulsing and having vision issues... can only guess whats next Quote Link to comment Share on other sites More sharing options...
Chaos Posted January 25, 2013 Report Share Posted January 25, 2013 Yes, definitely symptoms have been changing over time. Not an uncommon thing according to my POTS specialist. Quote Link to comment Share on other sites More sharing options...
roxie Posted January 25, 2013 Report Share Posted January 25, 2013 Yes, definitely symptoms have been changing over time. Not an uncommon thing according to my POTS specialist. Really? What does he say about that? Quote Link to comment Share on other sites More sharing options...
SeattleRain Posted January 25, 2013 Report Share Posted January 25, 2013 My symptoms started as very low BP, very low pulse and lightheadedness/fatigue. That's since been replaced with a normal supine HR/BP and fluctuating BP upon standing with some tachycardia. It's a welcome change because it feels like my body learned how to compensate for whatever's wrong compared to making me feel like I was about to die 24/7. Quote Link to comment Share on other sites More sharing options...
yogini Posted January 27, 2013 Report Share Posted January 27, 2013 Yes, they can definitely change over time or it could be high BP causing all the symptoms. I am surprised your dr is giving you another med to lower BP rather than reducing your Florinef dose. Quote Link to comment Share on other sites More sharing options...
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