Lemons2lemonade Posted August 13, 2012 Report Share Posted August 13, 2012 Sometimes I get lightheaded but that's about it. Thought I would share to give others hope. Proper medication and continuing to stay on my feet has helped most. Each day I try to do more and more. Quote Link to comment Share on other sites More sharing options...
bellgirl Posted August 13, 2012 Report Share Posted August 13, 2012 That's great Lemons Celebrating with you!!...I've gotten a lot better, too, on my meds and supplements. Vitamin D3 and CoQ10 helped immensely with meds, fluids and exercise!! Quote Link to comment Share on other sites More sharing options...
lillybits Posted August 13, 2012 Report Share Posted August 13, 2012 thats great to hear! soooooo happy for you!!! Quote Link to comment Share on other sites More sharing options...
Kellysavedbygrace Posted August 13, 2012 Report Share Posted August 13, 2012 That's great news. How long have you not met clinical presentation for POTS? Which meds have helped you most? Also, how long did you have it? Quote Link to comment Share on other sites More sharing options...
McBlonde Posted August 13, 2012 Report Share Posted August 13, 2012 That's great Lemons! Did you have "regular POTS" ( high HR on standing with no BP issues?) Quote Link to comment Share on other sites More sharing options...
Ashelton80 Posted August 13, 2012 Report Share Posted August 13, 2012 Awesome news! Love to hear someone doing well! Thanks for sharing! Quote Link to comment Share on other sites More sharing options...
targs66 Posted August 13, 2012 Report Share Posted August 13, 2012 That's great to hear. Thanks for sharing this - it's nice to get encouragement. Quote Link to comment Share on other sites More sharing options...
mully2014 Posted August 13, 2012 Report Share Posted August 13, 2012 Soooo happy to hear this it gives me even more hope!!! Quote Link to comment Share on other sites More sharing options...
LMG Posted August 13, 2012 Report Share Posted August 13, 2012 Thanks for sharing, Lemons and also Kim. It is great for those of us trying to work our way out of this to know that it is possible. Like the other posters, I would love to know a bit more...how long was your most severe downtime, and what started the trend to improvement and once you started to feel better, how long before you felt able to do more normal things (work, vacation, be outside, etc)? And CONGRATULATIONS!!!!!! Quote Link to comment Share on other sites More sharing options...
anaphylaxing Posted August 13, 2012 Report Share Posted August 13, 2012 YAhooooooooooooooooooooooo Quote Link to comment Share on other sites More sharing options...
Relax86 Posted August 14, 2012 Report Share Posted August 14, 2012 Super congrats. I no longer consider myself orthostatic intolerant at this time as well. My BP is close to normal, and therefore HR most days stays close to normal. I still have occasional ear pain, face pain and R handed vessels will pop out along with some lightheadedness - mostly at night. But I believe with fingers crossed that I am coming out of an 8 month flare. Congrats to you lemons for the grace of improvement. And to all the other POTS/Dysauto folks that fight each day with baby or big steps for our successes. It's such a battle. Quote Link to comment Share on other sites More sharing options...
kjmom Posted August 14, 2012 Report Share Posted August 14, 2012 Woo hoo! That's great. I'm kind've on that path to with new meds. I guess just stay positive and everything'll be ok. I always think about how I've changed in a good way with POTS. Like I was terrified of needles and doctors, and now it's just as natural as breathing! Hope you keep feeling better! Kayla Quote Link to comment Share on other sites More sharing options...
Dizzysillyak Posted August 14, 2012 Report Share Posted August 14, 2012 Congratulations. Are you taking the meds in your signature ? I may have to try more meds. I actuallyjust added klonopin back in for sleep as needed after being off it for 6 years. It's working likea charm. Tc .. D Quote Link to comment Share on other sites More sharing options...
anna Posted August 14, 2012 Report Share Posted August 14, 2012 Well done, keep up the good work. Quote Link to comment Share on other sites More sharing options...
bellgirl Posted August 14, 2012 Report Share Posted August 14, 2012 Thanks for sharing, Lemons and also Kim. It is great for those of us trying to work our way out of this to know that it is possible. Like the other posters, I would love to know a bit more...how long was your most severe downtime, and what started the trend to improvement and once you started to feel better, how long before you felt able to do more normal things (work, vacation, be outside, etc)? And CONGRATULATIONS!!!!!!For me, it took about a year to get medications and supplements right, but I was very sick, and became progressively worse without any meds, except B/P medication for about 13 years before diagnosis, so it took awhile. I still have dysautonomia, I'm just a lot more functional and my vital signs, most of the time, are more normal. My signature has all my stats, medications and supplements. I usually do about 5-6 miles on the elliptical a week, and walk my dog every day short distances. I have to pace myself, and when I take long car rides, I still become motion sick, but I am so much better!! I even went para sailing with zofran for nausea!! Gotta keep living as full a life as possible Quote Link to comment Share on other sites More sharing options...
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