CharmedLinz Posted July 4, 2012 Report Share Posted July 4, 2012 I might of missed a post since this book was just released this spring.Has anyone heard of this Theory or read this book???Unfortunately I don't have $1,000 to spend a book, ridiculous, makes no sense to me!!!Still curious about it though.http://www.amazon.com/Driscoll-Theory-Ehlers-Danlos-Communicating-Hydrocephalus/dp/0984847235/ref=sr_1_2?s=books&ie=UTF8&qid=1341378901&sr=1-2&keywords=mast+cell+disease Quote Link to comment Share on other sites More sharing options...
corina Posted July 4, 2012 Report Share Posted July 4, 2012 I think it has been discussed before, not 100% sure though. Wow I had no idea it's so expensive, I actually thought that was a mistake. Quote Link to comment Share on other sites More sharing options...
anna Posted July 4, 2012 Report Share Posted July 4, 2012 That is very expensive, have a look at Dr. D web site I am sure you will find info there and for free! Quote Link to comment Share on other sites More sharing options...
RichGotsPots Posted July 4, 2012 Report Share Posted July 4, 2012 I found this link for ya Quote Link to comment Share on other sites More sharing options...
RichGotsPots Posted July 4, 2012 Report Share Posted July 4, 2012 http://prettyill.com/. This is her website Quote Link to comment Share on other sites More sharing options...
ramakentesh Posted July 4, 2012 Report Share Posted July 4, 2012 Some of what her theory says doesnt actually make sense. Quote Link to comment Share on other sites More sharing options...
Dizzysillyak Posted July 4, 2012 Report Share Posted July 4, 2012 (edited) Her solution is drugs that no doubt have side effects. I was on diamox and allergy meds for several years but itdidn't help my me/cfs / dysautonomia. Gfcfsf,etc Diet has helped me more than anything.I see a certain doctor on tv talking like this to us too. It's just terminologyDoc. Ugh .. Tc .. D Edited July 4, 2012 by corina Quote Link to comment Share on other sites More sharing options...
Libby Posted July 4, 2012 Report Share Posted July 4, 2012 (edited) you're right. Edited July 4, 2012 by corina Quote Link to comment Share on other sites More sharing options...
CharmedLinz Posted July 4, 2012 Author Report Share Posted July 4, 2012 (edited) She does have some good links though.Specifically she has a link under Mast Cell that goes to the article from Dr. Afrin that Christy posted recently. Edited July 4, 2012 by corina Quote Link to comment Share on other sites More sharing options...
LindaJoy Posted July 4, 2012 Report Share Posted July 4, 2012 A book like this for $1,000?????? Wow. Must be the secret to life and the afterlife in that for that price!Lindajoy Quote Link to comment Share on other sites More sharing options...
bellgirl Posted July 4, 2012 Report Share Posted July 4, 2012 You always have to be skeptical when someone is charging that much for a book I have listened to some of her videos though, and as Rich said, they are free!! Quote Link to comment Share on other sites More sharing options...
CharmedLinz Posted July 4, 2012 Author Report Share Posted July 4, 2012 Oopsey, I got in trouble for being negative.No offense taken Moderators............. I have an excuse though......... I was tired!!!!! Brain not working!!!!Guess the brain stops working with Huge Price Tags for help.There are some very good links through the site though. Quote Link to comment Share on other sites More sharing options...
DoozlyGirl Posted July 5, 2012 Report Share Posted July 5, 2012 Charmed,Maiysa has been reading several books by Diana Driscoll. You could send her a message. I recall she got it really cheap for her e reader. The price is ridiculous!! Lyn Quote Link to comment Share on other sites More sharing options...
GypsySoulNicole Posted July 5, 2012 Report Share Posted July 5, 2012 This has to be a mistake. I downloaded both driscoll theory 1 & 2 for my kindle fire for 99cents each. I found her theory interesting although I have not tried her reccomendations. Quote Link to comment Share on other sites More sharing options...
GypsySoulNicole Posted July 5, 2012 Report Share Posted July 5, 2012 Her theory is for the cause of POTS in those with EDS, so the theory doesn't fit everyone. Quote Link to comment Share on other sites More sharing options...
anna Posted July 5, 2012 Report Share Posted July 5, 2012 Plus most of her actual research is primarily MS linked, as Dr D stats herself their were more MS Dr. and researchers interested in her ideas, thus the leaning to studies is more to MS than just EDS and POTs. Quote Link to comment Share on other sites More sharing options...
Relax86 Posted July 5, 2012 Report Share Posted July 5, 2012 I'm annoyed that my ear symptoms, and R neck pulsating are constantly ignored. I watched 5 minutes of her video and she mentioned CCSVI. Something I've not yet heard of and something no Doctor has tested me for. I wish just one of my providers has worked hard for me the way I work hard for my patients in Physical Therapy. One of my primary symptoms always has been R neck spasm, ear pain and lots of times the rest of my POTS symptoms follow. I'm not trying to say that I diagnosed myself with CCSVI but if I could just get a diagnosis I can go about finding my best solution of maintenance. It does make sense to me that if this is the root cause of my symptoms then I would have a positive response to hydrocortisone because it's calming down my inflamed vein. Quote Link to comment Share on other sites More sharing options...
anna Posted July 5, 2012 Report Share Posted July 5, 2012 Relax86 do you by chance have EDS as well as POTs? Quote Link to comment Share on other sites More sharing options...
Relax86 Posted July 6, 2012 Report Share Posted July 6, 2012 Anna - I really don't exactly know what i have as I haven't had the extensive testing as most of the people here have...was diagnosed with POTS by my family doc. I don't think he was wrong at the time but some of my symptoms keep changing. Regarding EDS - I think it's a no for me. I don't have the hyper mobility nor do I have any pain except R ear that radiates down my neck. Quote Link to comment Share on other sites More sharing options...
issie Posted July 7, 2012 Report Share Posted July 7, 2012 Dr. Driscols book was only 99 cents. So, that has to be a typo. I find her theory interesting and it has helped some people. As Gypsy said - most of her ideas are related to those with EDS. I'm trying an herbal right now that works similiar to diomox. We will see what happens. So far, it's increased my oxygen levels. So, that's a good sign. I can tell you one thing - for sure - high altitude is not good for POTS!!!!Issie Quote Link to comment Share on other sites More sharing options...
humbled_pie Posted July 8, 2012 Report Share Posted July 8, 2012 Wow! She must have stopped printing it and now someone has a copy and wants to sell it for a huge profit... I got my copy for $20-25 a couple of months ago. Anyone want to buy it? I'll sell it to you for half price: $500! Quote Link to comment Share on other sites More sharing options...
anna Posted July 8, 2012 Report Share Posted July 8, 2012 Oh issie can you tell me the name of herb that similar to Diomox works would like to give it a try. Quote Link to comment Share on other sites More sharing options...
issie Posted July 9, 2012 Report Share Posted July 9, 2012 Oh issie can you tell me the name of herb that similar to Diomox works would like to give it a try.I'll PM you Anna. This won't work for everyone.Issie Quote Link to comment Share on other sites More sharing options...
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