WyomingGal Posted January 20, 2012 Report Share Posted January 20, 2012 I was wondering if anyone could share what is high blood pressure for them. I have been on thyroid medication for almost four months and my TSH has gotten better. I noticed today that I was extremely dizzy. I took my blood pressure at home and it was 123/87 with a heart rate of 75, and that seems so high! I had my compression stockings on as I usually do so maybe that was it, but just took them off to see if I can get some relief. Also, my first midodrine does was wearing off, so why was it still so high?Does anyone notice they get high or higher blood pressure and it actually makes things worse?(Maybe I am getting better-positive thoughts!) Quote Link to comment Share on other sites More sharing options...
Lemons2lemonade Posted January 20, 2012 Report Share Posted January 20, 2012 During a pots attack my bp gets up to 130/100 pretty consistently, but it has been higher before, the highest it has been is 157/107 but that was after taking too much salt on fludrocortisone. I usually run 109/75 ish. You can look through your medical records and see what is used to run before you got sick--120/80 isn't normal for everyone. Quote Link to comment Share on other sites More sharing options...
puppylove Posted January 20, 2012 Report Share Posted January 20, 2012 Normally high for me is in 130s/ 100s- 150s/100s Quote Link to comment Share on other sites More sharing options...
kayjay Posted January 20, 2012 Report Share Posted January 20, 2012 Mine has been about 200/170... but it has also been really low. When It was that high I went into the ER. I thought I was going to "kick the bucket" I do have a good cardiologist and she told me that your body can handle ups... but if it stays high it is dangerous. Healthy people have blood pressure swings also. Yours does not seem too high to me- I am happy when I have number like yours. My resting heart rate has been in the high 30's and also over 180. Very scary but again it doesn't stay that high or low. I have symptoms with blood pressure swings and sometimes when my blood pressure is good I feel horrible!It is really important if your bp is high that it lowers when you are sleeping. This is one of the reasons many of us have had a 24hr blood pressure cuff. Please don't worry about those numbers so much. The way we feel is sometimes so scary..... JOYS of POTS! Quote Link to comment Share on other sites More sharing options...
lillybits Posted January 22, 2012 Report Share Posted January 22, 2012 highest my bp has gone was last night in the er 127/76...bathroom floors are all too unforgiving... Quote Link to comment Share on other sites More sharing options...
DoozlyGirl Posted January 24, 2012 Report Share Posted January 24, 2012 My highest BP on record is 210/100 in the ED, with crushing headache, major flushing and chest pain. ED didn't know what to do with me, within a few hours, I was back down to normal, then discharged. This was several months prior to diagnosis of autonomic neuropathy and orthostatic hypotension. Since then 175/110 is the highest I've recorded at home. Quote Link to comment Share on other sites More sharing options...
Sif Posted January 24, 2012 Report Share Posted January 24, 2012 My highest was 145/100ish in ED and I was freaking out because a systolic BP of anything over 100 was pretty unusual for me. I usually run somewhere between 70/50 to 100/70 on florinef now. Quote Link to comment Share on other sites More sharing options...
potsyturvy Posted January 24, 2012 Report Share Posted January 24, 2012 My normal high bp is 130/90 but my highest was 140/120. My "normal" bp is about 100/70 Quote Link to comment Share on other sites More sharing options...
anna Posted January 24, 2012 Report Share Posted January 24, 2012 200/150 officially picked up at Dr.'s but 235/155 on home monitor a good one at that oh and yes I felt like ***** much like I do when it goes low!!! then lows of 85/50 don't you love fluctuating BP's !!! Quote Link to comment Share on other sites More sharing options...
firewatcher Posted January 24, 2012 Report Share Posted January 24, 2012 173/149typically 100/80 Quote Link to comment Share on other sites More sharing options...
julieph85 Posted January 24, 2012 Report Share Posted January 24, 2012 I think that's actually a good Bp. I know it may be high for you but it isn't worrisome at that level. The highest mine has been is 165/110 so they put me on labetolol and it brought it down. Regularly when standing my Bp is about 128/87. Compression hoes will definitely make your Bp higher as well Quote Link to comment Share on other sites More sharing options...
Angela Posted August 29, 2012 Report Share Posted August 29, 2012 my highests have been 176/110 and 143/123.....lowest recorded 101/64....which is why I don't want to take clonodine, I don't want it to drop lower or have to take another med to compensate. my neuro did say he was concerned about consistant high bp and thinks I should go on meds but as long as I am sitting down or laying it is normal, 120's or 130's over 80's. I was reading on another topic that other's docs were saying high bp's are okay as long as they don't stay high for awhile, mine fluctuate when I stand up it goes up with my heart rate and then when I sit or lay it just flux's with my hr level until they both stable out. Any thoughts on why my doc wants me on bp meds while other's say it is fine? BTW, I find a vodka/gatorade coctail will bring it down to pretty normal range if it ever gets high when sitting:) Plus helps with the adrenal surges, overall calming effect and gets my mind off feeling like crap. Quote Link to comment Share on other sites More sharing options...
louloutinks Posted August 29, 2012 Report Share Posted August 29, 2012 my highest bp mainly diastolic was 131/124. The other day it was 166/87 and the lowest has been 82/35 (which my doc said was impossible and that I would be dead Quote Link to comment Share on other sites More sharing options...
Sheila1366 Posted August 29, 2012 Report Share Posted August 29, 2012 Mine has been as high as 185/132 with heartrate in the 100's just a couple of weeks ago and as low as 80's over 50's with heartrate in the 50's. Quote Link to comment Share on other sites More sharing options...
Guest Alex Posted August 30, 2012 Report Share Posted August 30, 2012 My highest (recorded) was 160/100 (or so) but I feel uncomfortable at 120/80. My norm is 90-100/50-70. Quote Link to comment Share on other sites More sharing options...
Wendy C. Posted August 30, 2012 Report Share Posted August 30, 2012 My highest was 117/70 and that was on Midodrine, Florinef, high salt and wearing compression hose. Typically, it is about 108/65, but there were a few months there where it was consistently only 95/60. Oh, all of these numbers are from when I was standing up, too. Laying down it is much lower. Quote Link to comment Share on other sites More sharing options...
Angela Posted August 30, 2012 Report Share Posted August 30, 2012 just stood up for 5 minutes, 168/117 hrate 113. Aaaghh. Quote Link to comment Share on other sites More sharing options...
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