Pots Book

[HopeSprings]

I hope it's ok to post this here? There was a post about this book on Facebook and just thought I'd share. I haven't read it, so I can't say if it's any good, but just wanted to let you guys know it's out there. I plan to check it out.

http://www.amazon.com/POTS-Together-Stand-Riding-Dysautonomia/dp/1466371501

[Trach]

Thank you for posting the book. I just started seeing Dr. Blitshteyn for phone consults and found her to be very understanding and helpful. I look forward to reading the book.

[E246]

I have read it and found it really helpful.

I thought at first there was too much about psychological support but realised this was helpful in the context of the book.

it has a really clear section on the different causes/types of pots. The best i have seen.

[janiedelite]

I had no idea that this book existed. Dr. Blitshteyn has been an amazing resource for DINET as a Medical Advisor. I'm thrilled that she put together this book which can, hopefully, serve to guide other patients and doctors who deal with dysautonomia.

[songcanary]

Naomi,

This is a real find. Thank you for posting.

[juliegee]

Very Cool- I glanced through the Table of Contents and saw that Dr. John Fortunato, wrote a chapter on the GI issues that often accompany POTS. He is awesome. Mack saw him at Hopkins seven years ago. He was a fellow for Dr. Anil Darbari, a pediatric GI motility specialist, at that time. They were among the first to connect the slow GI tract with dysautonomia. Last I heard, Dr. Fortunato was at Duke if anyone needs a great GI doc who connects the dots with dysautonomia.

Thanks for sharing, Naomi!

Julie

[dizzyallie]

Thanks Naomi I'm gonna buy this. Hope it's safe buying over the net - oh man I am not in the 21st century

[handmadebyemy]

Thanks!

[lexcyn]

Just bought it on my kindle..I have lots of gi problems and have had a a few years now. I just got diagnosed with pots in September 2011. I know there is something more going on then just the pots, I can just feel it but can't get doctors to run any more test. And I just learned after this past Monday not to go to er for these problems, they just don't know how to diagnose you and send you home. So i am really looking forward to reading this book. Thanks for letting us know about it!

[juliegee]

Hey Lex-

Not sure where you are, but I can highly recommend Dr. Fortunato to help you sort out the GI stuff. I think he's at Duke in NC. Tell me what you problems are and I will share what we learned at Hopkins from he & Dr. Anil Darbari- GI motility specialist. BTW, you are SO right that most GI's haven't got a clue as to how this relates to our autonomic dysfunction. The symptoms are so severe & finding help is almost impossible. GI stuff was my son's WORST symptom by far. I feel for you.

Julie

[roxie]

I second what Mack's mom is saying. I've had horrible stomach problems and no one took me seriously. I've finally found a good dr and that is the first thing he wants to address. I go to Dr Suleman in Dallas and he has a great gastro and clinical nutritionist. The nutritionist spent a lot of time explaining to me how much my malabsoprtion has stalled my progress. I am just starting with them so I don't know the full result but I am hopeful and definitely try to find someone to help you. Good luck