HopeSprings Posted December 27, 2011 Report Share Posted December 27, 2011 I hope it's ok to post this here? There was a post about this book on Facebook and just thought I'd share. I haven't read it, so I can't say if it's any good, but just wanted to let you guys know it's out there. I plan to check it out. http://www.amazon.com/POTS-Together-Stand-Riding-Dysautonomia/dp/1466371501 Quote Link to comment Share on other sites More sharing options...
Trach Posted December 27, 2011 Report Share Posted December 27, 2011 Thank you for posting the book. I just started seeing Dr. Blitshteyn for phone consults and found her to be very understanding and helpful. I look forward to reading the book. Quote Link to comment Share on other sites More sharing options...
E246 Posted December 27, 2011 Report Share Posted December 27, 2011 I have read it and found it really helpful.I thought at first there was too much about psychological support but realised this was helpful in the context of the book.it has a really clear section on the different causes/types of pots. The best i have seen. Quote Link to comment Share on other sites More sharing options...
janiedelite Posted December 27, 2011 Report Share Posted December 27, 2011 I had no idea that this book existed. Dr. Blitshteyn has been an amazing resource for DINET as a Medical Advisor. I'm thrilled that she put together this book which can, hopefully, serve to guide other patients and doctors who deal with dysautonomia. Quote Link to comment Share on other sites More sharing options...
songcanary Posted December 28, 2011 Report Share Posted December 28, 2011 Naomi,This is a real find. Thank you for posting. Quote Link to comment Share on other sites More sharing options...
juliegee Posted December 28, 2011 Report Share Posted December 28, 2011 Very Cool- I glanced through the Table of Contents and saw that Dr. John Fortunato, wrote a chapter on the GI issues that often accompany POTS. He is awesome. Mack saw him at Hopkins seven years ago. He was a fellow for Dr. Anil Darbari, a pediatric GI motility specialist, at that time. They were among the first to connect the slow GI tract with dysautonomia. Last I heard, Dr. Fortunato was at Duke if anyone needs a great GI doc who connects the dots with dysautonomia. Thanks for sharing, Naomi!Julie Quote Link to comment Share on other sites More sharing options...
dizzyallie Posted December 28, 2011 Report Share Posted December 28, 2011 Thanks Naomi I'm gonna buy this. Hope it's safe buying over the net - oh man I am not in the 21st century Quote Link to comment Share on other sites More sharing options...
handmadebyemy Posted December 28, 2011 Report Share Posted December 28, 2011 Thanks! Quote Link to comment Share on other sites More sharing options...
lexcyn Posted December 29, 2011 Report Share Posted December 29, 2011 Just bought it on my kindle..I have lots of gi problems and have had a a few years now. I just got diagnosed with pots in September 2011. I know there is something more going on then just the pots, I can just feel it but can't get doctors to run any more test. And I just learned after this past Monday not to go to er for these problems, they just don't know how to diagnose you and send you home. So i am really looking forward to reading this book. Thanks for letting us know about it! Quote Link to comment Share on other sites More sharing options...
juliegee Posted December 29, 2011 Report Share Posted December 29, 2011 Hey Lex-Not sure where you are, but I can highly recommend Dr. Fortunato to help you sort out the GI stuff. I think he's at Duke in NC. Tell me what you problems are and I will share what we learned at Hopkins from he & Dr. Anil Darbari- GI motility specialist. BTW, you are SO right that most GI's haven't got a clue as to how this relates to our autonomic dysfunction. The symptoms are so severe & finding help is almost impossible. GI stuff was my son's WORST symptom by far. I feel for you. Julie Quote Link to comment Share on other sites More sharing options...
roxie Posted December 29, 2011 Report Share Posted December 29, 2011 I second what Mack's mom is saying. I've had horrible stomach problems and no one took me seriously. I've finally found a good dr and that is the first thing he wants to address. I go to Dr Suleman in Dallas and he has a great gastro and clinical nutritionist. The nutritionist spent a lot of time explaining to me how much my malabsoprtion has stalled my progress. I am just starting with them so I don't know the full result but I am hopeful and definitely try to find someone to help you. Good luck Quote Link to comment Share on other sites More sharing options...
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