julieph85 Posted November 22, 2011 Report Share Posted November 22, 2011 A wonderful person on this forum gave me the name of Dr. G at Mayo clinic in Scottsdale and I was able to get an appt for January 3rd! I am so thankful as I have gone 2 years without a diagnosis and told i can't get into vanderbilt till May. I was hoping others who have been diagnosed there and maybe by him could share with me their experiences? How long was your visit and did they do testing right away? i'm nervous because i'm coming from across the country so I would need to get everything done in one visit. Thank you!!! Quote Link to comment Share on other sites More sharing options...
ramakentesh Posted November 22, 2011 Report Share Posted November 22, 2011 Let me know how you go. I also have a ';comorbid' as they put it autoimmune disorder with POTS. In my case its ankylosing spondylitis. Quote Link to comment Share on other sites More sharing options...
yogini Posted November 23, 2011 Report Share Posted November 23, 2011 Mayo MN has the best POTS facilities - not sure too many people travel to AZ. You may want to talk to others who have been there. Quote Link to comment Share on other sites More sharing options...
caroline Posted November 23, 2011 Report Share Posted November 23, 2011 I saw dr g at mayo scottsdale and he was wonderful. I stayed tuesday to friday. Tests were begun immediately. Intro and final summary sessions were lengthy, complete, easy to follow. Written report (sent later) was tremendously helpful. Quote Link to comment Share on other sites More sharing options...
icesktr189 Posted November 23, 2011 Report Share Posted November 23, 2011 He is a very nice doctor.... my mom currently sees him right now Quote Link to comment Share on other sites More sharing options...
potsgirl Posted November 23, 2011 Report Share Posted November 23, 2011 I just got back from Mayo Scottsdale because I've been having seizures due to my very low BP. They ran all of the autonomic tests again, because it had been a year. I've been to both Rochester and Scottsdale, because I like my doctor so much. Since I live in Tucson, when he moved back to AZ from MN, I was very happy. Truly a special doctor who cares and listens. Rochester is good too, but Scottsdale was 80 degrees today. : ) Quote Link to comment Share on other sites More sharing options...
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