sisblostg Posted June 20, 2011 Report Share Posted June 20, 2011 I have been able to "recover" from 2 POTS episodes in the past but this current one has been the longest and most severe(complicated with my new flat feet and joint pain). Even though I still feel like I can do very little, I'm alot better then I was 1 year ago. 1 year ago I was happy to be able to shower and occansionally help with laundry/light cooking. Now because it is summer and the kids are home I'm forced to do more. I might be achy at the end of the day or occasional feel dizzy and have to lay down asap I know I should be able to do more outside of my "safe house" but I get nervous of the thought of actually trying to go out alone. My HR is still high when standing but I have gotten used to it and how to deal with it and the warning signs. So far I have tried the very gradual approach to getting back out but sometimes what I call secondary aniexty kicks in(or is it adrenline surges from h-pots?).For example. My child's school is 2 miles away. (I have never fainted from pots so I feel okay to drive short distances). I drive to the school with my husband in the car. My HR is 90-95. I tried to do this 2 times a week. My child had a half day and I had to go get them alone. I took the same 2 mile drive alone and my HR was 150 and I by the time I made it home(it didn't help that a fire truck went by and the sudden siren shocked me) I had an adreline surge and was all shaky. Another example is I can go to the grocery store for about 15 minutes with my husband and kids, if my HR is too high at checkout I go to the car. I tried going into the store myself for 10 minutes and by the time I was at the checkout I was shaking.I have tested myself at home. I have stood at my doorway talking to my neighbor for 30 minutes and I was okay(a little dizzy but I know I can do it). During the days I am up on my feet more then ever, making the kids snacks, filling water ballons, doing crafts and even shotting a few hoops. My mind knows that since I am at home if I feel dizzy or my HR is too fast I have a place to lay down right away. For some reason I think being H-pots makes it worse when I go out I get anxious because there is no place to sit down. If I can stand at home for 30 minutes I should be able to go to the store for 30 minutes. Just curious how people have gotten back into the real world again after being housebound?My doctors have offered my all sorts of meds. I perfer not to be on anything I have to take for a long period of time of wean off of. I have taken kolonpin on and off over the last 15 years. I take .5 a day and an extra .5 if I have a huge adernline issue. I took 1.5 mg in one day which is the most I have taken in 15 years because I had to go to a long event at school. It helped but I felt a little sedated which I didn't like. Severeal dr's have said to up 1.5mg klonopin a day while I'm getting the confidence to go out again. They say if I have taken it for 15 years and I havent needed a higher dosage till now I should be fine weaning back .5. One dr offered my Xanax which I do not like how it makes me feel(HR feels fast mind feels slow). I have been offered lexapro, cymbalta, effxor, and paxil. Since I have h-pots and all my dr's are very unfamiliar with pots or h-pots I scared of trying one of these since some are SSNI and some are SSRI's. I also watched a neighbor go through come off of cymblata when she lost her insurnace and it was horrible. My goal by september is to be able to drive to the school, drive to my dr's office and drive to the store for quick things like milk. I would like to take some burden off my husband who is running around like crazy all day. I have 10 weeks, should I try it medicated or unmedicated and which meds have helped others? Quote Link to comment Share on other sites More sharing options...
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